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re: Update P7: 6 months later - trust your parental instincts and to hug your children.
Posted on 12/20/20 at 6:23 am to Displaced
Posted on 12/20/20 at 6:23 am to Displaced
Great wisdom OP.
We had to go through something medically similar with one of our children and it changes you for the better.
Makes me appreciate every day with my kids.
We had to go through something medically similar with one of our children and it changes you for the better.
Makes me appreciate every day with my kids.
0
Posted on 12/20/20 at 6:37 am to Displaced
She’s beautiful and so glad she’s ok. Prayers for all involved- love your message!
Posted on 12/20/20 at 6:39 am to Displaced
She is so precious. I hope everything continues to improve and you all can have a Merry Christmas. Love up on that baby because they grow up entirely too fast. 
Posted on 12/20/20 at 7:21 am to Displaced
I know exactly what you’re going through. It is extremely tough seeing your baby hooked up to everything and fighting to live. Your girl sounds like a fighter and one day will be the toughest of all your kids. Never take a day with your kids for granted.
Things like this makes you realize how unimportant some of the normal things we stress about really are.
You and your wife did right. You know your child’s normal better than anybody and don’t settle if you know somethings not right.
Things like this makes you realize how unimportant some of the normal things we stress about really are.
You and your wife did right. You know your child’s normal better than anybody and don’t settle if you know somethings not right.
Posted on 12/20/20 at 7:58 am to Displaced
I am very glad it worked out
.. a touching story that got me in the feels.
.. a touching story that got me in the feels.
Posted on 12/20/20 at 8:06 am to Displaced
quote:
she is in better condition than any of them expected. They immediately took out the breathing and ng tubes. She was able to start bottle feedings last night and she held it all down. Her check contracts normally and she is no longer wheezing. If everything stays the same, she should be able to come home today or tomorrow.
I was holding my breath and damn near anxiety mode till I got here. Glad she is doing better and thanks for thread, definitely true to make the most out of our time with kids and family. Please keep us updated
Posted on 12/20/20 at 8:09 am to Displaced
I’m so glad she is doing ok. Can only imagine how scary that was for you and your wife, especially in the midst of all the visitor restrictions due to the pandemic.
I learned very quick when I was a peds nurse to never dismiss a parent’s intuition. They know their child better than anyone else. They may not have a lot of medical knowledge but they know when something is just not right with their child. And doctors and nurses need to really listen to that and not dismiss it as a parent just freaking out. I’m so glad the medical team were able to figure out what was wrong and operate before it caused serious issues.
Praying for continued speedy recovery for that precious baby girl. Always a fairly good sign in the PICU when she isn’t connected to so many things and is able to eat on her own.
I learned very quick when I was a peds nurse to never dismiss a parent’s intuition. They know their child better than anyone else. They may not have a lot of medical knowledge but they know when something is just not right with their child. And doctors and nurses need to really listen to that and not dismiss it as a parent just freaking out. I’m so glad the medical team were able to figure out what was wrong and operate before it caused serious issues.
Praying for continued speedy recovery for that precious baby girl. Always a fairly good sign in the PICU when she isn’t connected to so many things and is able to eat on her own.
Posted on 12/20/20 at 8:10 am to pleading the fifth
quote:
Kids are tough.
When it comes to babies, especially girls. Wife (no pics) was a NICU nurse, always said boys were scary as hell when sick, and most of the miracle babies were the girls.
Posted on 12/20/20 at 8:11 am to lsunurse
quote:
I learned very quick when I was a peds nurse to never dismiss a parent’s intuition
I’m only a medic, but this is so damn important right here, to everyone in the medical field
Posted on 12/20/20 at 8:13 am to Displaced
God bless you. I am praying for your family.
Posted on 12/20/20 at 8:13 am to windshieldman
quote:
always said boys were scary as hell when sick,
Wimpy white boys. That’s a term I’ve heard NICU nurses use (I’m sure your wife has said it before).
White baby boys seem to not be as strong a fighter in the NICU compared to baby girls.
Posted on 12/20/20 at 8:14 am to Displaced
God Bless your little angel and her continued recovery!
Posted on 12/20/20 at 8:15 am to lsunurse
quote:
Wimpy white boys. That’s a term I’ve heard NICU nurses use (I’m sure your wife has said it before).
This is correct, she used to use that term a lot. She always said black girls were the strongest and white boys the weakest
Posted on 12/20/20 at 9:00 am to Displaced
What a precious child!
My son had the initial breathing/swallowing issues at 8½ weeks premature. I am grateful that your medical team found this and grateful to God that she is now healthy. I hope you are better, too. My boys are 24 and 21, now, and I hug the shite out of them every time I see them.
Blessings upon you and your family, Displaced!
My son had the initial breathing/swallowing issues at 8½ weeks premature. I am grateful that your medical team found this and grateful to God that she is now healthy. I hope you are better, too. My boys are 24 and 21, now, and I hug the shite out of them every time I see them.
Blessings upon you and your family, Displaced!
Posted on 12/20/20 at 9:21 am to Displaced
Update: She's coming home!
She spent all day yesterday in the PICU and last night was moved back to the PACU.
Yesterday my wife noticed a lump on her back while burping her that wasn't there before. Out of caution, they x-rayed the lump to make sure it wasn't another cyst or worse. Turns out it was just inflammation.
She is being released today and I am heading to the hospital within the hour to pick her and my wife up to bring them home. Clean bill of health as far as we can tell now!
We are going to have a litany of follow ups, but that is totally worth it to be able to bring my precious angel home. Her big brother can't wait to get a hold of her again.
Thank you all for your thoughts and well wishes. It really does mean a lot to know so many people are pulling for her even through an anonymous online community such as this.
Here she is this morning with her cross-eyed little smile letting us all know she is going to be ok!
She spent all day yesterday in the PICU and last night was moved back to the PACU.
Yesterday my wife noticed a lump on her back while burping her that wasn't there before. Out of caution, they x-rayed the lump to make sure it wasn't another cyst or worse. Turns out it was just inflammation.
She is being released today and I am heading to the hospital within the hour to pick her and my wife up to bring them home. Clean bill of health as far as we can tell now!
We are going to have a litany of follow ups, but that is totally worth it to be able to bring my precious angel home. Her big brother can't wait to get a hold of her again.
Thank you all for your thoughts and well wishes. It really does mean a lot to know so many people are pulling for her even through an anonymous online community such as this.
Here she is this morning with her cross-eyed little smile letting us all know she is going to be ok!
Posted on 12/20/20 at 9:30 am to Displaced
What a beautiful angel. 
Posted on 12/20/20 at 9:30 am to Displaced
That’s awesome, man! So happy to hear that this is resolved and you guys can try to get back to normal. I know this ordeal had to be scary. It sucks as a parent when you know something is wrong, but you realize in that same moment that you don’t have the means to fix it.
You are your children’s strongest advocate. Good on you and your wife for pushing it forward. Godspeed to you all, and Merry Christmas!
PS: She’s absolutely PRECIOUS, tubes and all. While somewhat scary, it’s also a blessing to know that we can do all that we can via those instruments. The good news? She won’t recall a bit of it. Today is the first day of the rest of her life. Keep em close.
You are your children’s strongest advocate. Good on you and your wife for pushing it forward. Godspeed to you all, and Merry Christmas!
PS: She’s absolutely PRECIOUS, tubes and all. While somewhat scary, it’s also a blessing to know that we can do all that we can via those instruments. The good news? She won’t recall a bit of it. Today is the first day of the rest of her life. Keep em close.
Posted on 12/20/20 at 9:32 am to Displaced
Im glad she is better and hope she continues to stay healthy.
Posted on 12/20/20 at 9:33 am to Displaced
She’s beautiful-praying for y’all. There is no substitute for parental instinct.
Posted on 12/20/20 at 9:37 am to Displaced
Thanks for sharing your story. God bless you and have a Merry Christmas!!!
We sometimes take things for granted.
I hope you can experience the joy of Christmas knowing Jesus came for our salvation. So happy for you that your daughter is better.
We sometimes take things for granted.
I hope you can experience the joy of Christmas knowing Jesus came for our salvation. So happy for you that your daughter is better.
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