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re: I have never felt more powerless in all of my life

Posted on 5/22/14 at 12:33 pm to
Posted by Mindenfan
Minden
Member since Sep 2006
4823 posts
Posted on 5/22/14 at 12:33 pm to
It's Votrient. Used for renal cell carcinoma.
Posted by Scruffy
Kansas City
Member since Jul 2011
77267 posts
Posted on 5/22/14 at 12:33 pm to
quote:

Votrient.
Thats it. Thanks.
Posted by darkhorse
Member since Aug 2012
7701 posts
Posted on 5/22/14 at 12:34 pm to
I have a very good friend who just had his kidney removed. Was seriously the first time I have ever heard of that.

My prayers go out to you and your mom. I will see him today and ask if he has any information. Will also help look up places that could help.
Posted by papasmurf1269
Hells Pass
Member since Apr 2005
21448 posts
Posted on 5/22/14 at 12:35 pm to
I am sorry to hear that. Prayers will be said for your mother and your family.
Posted by Mindenfan
Minden
Member since Sep 2006
4823 posts
Posted on 5/22/14 at 12:36 pm to
I'm sorry this is happening to your family. Best wishes and prayers for your mother and you.
Posted by RD Dawg
Atlanta
Member since Sep 2012
28285 posts
Posted on 5/22/14 at 12:38 pm to
Sorry to hear...lost my Brother to Pancreatic cancer last December.He was diagnosed in September.
Posted by StrangeBrew
Salvation Army-Thanks Obama
Member since May 2009
18367 posts
Posted on 5/22/14 at 12:38 pm to
quote:

I'm sorry this is happening to your family. Best wishes and prayers for your mother and you.


Hopefully her plan has a max out of pocket like the others have stated. I find it hard to believe it would not.
Posted by L.A.
The Mojave Desert
Member since Aug 2003
66680 posts
Posted on 5/22/14 at 12:40 pm to
Sorry to hear about your mom. What about the ACA website? That might direct you to a possible source of help.
Posted by darkhorse
Member since Aug 2012
7701 posts
Posted on 5/22/14 at 12:41 pm to
quote:

I can't find any reference to a drug called Dotrient.


I believe it's Votrient
Posted by goatmilker
Castle Anthrax
Member since Feb 2009
76503 posts
Posted on 5/22/14 at 12:44 pm to
Tough news. I wish nothing but the best for your Mom.


quote:

If nothing else, call 877-336-7287, the number for the Patrick Dempsey Center for Cancer Hope & Healing in Lewiston, Maine. Anyone in any location can call, says Mary Dempsey, the center's assistant director and sister of the star of the ABC series "Grey's Anatomy." The center, founded in 2008, was inspired by Dempsey’s mother, Amanda, who has a rare form of ovarian cancer. It provides free support, education and integrative medicine to anyone affected by cancer.


LINK
Posted by lsufan1971
Zachary
Member since Nov 2003
24228 posts
Posted on 5/22/14 at 12:45 pm to
quote:

I believe the maximum out-of-pocket under the new ACA law is $6300 per year


Prescription drugs are not included in the max OOP...you thank your dear leader Obama for his deal with big Pharma.


Prayers sent to the OP. It's a tough spot your in with your mom. We had to put my mom in a nursing home at 58 for early onset dementia\Alzheimer's and it's costing my dad 4K a month because they don't qualify for Medicaid. He will likely have to keep working until she passes. It sucks to see your parents suffer.
This post was edited on 5/22/14 at 12:53 pm
Posted by NC_Tigah
Make Orwell Fiction Again
Member since Sep 2003
138951 posts
Posted on 5/22/14 at 12:46 pm to
quote:

asurob1
Sorry to hear about your mom.
As several folks have said, there are supposed to be limits on OOP costs. Should not be continual outlays after the max.
Is she Medicare?

The facility she's receiving treatment from should be able to professionally advise you on costs and coverages. I'd talk with them initially, then contact her insurance reps.

Note the name, position, and discussion date/time/content of every insurance rep you talk with. Verify what they've told you with your mom's hospital/doctor.

If necessary, contact your political representative(s).

This post was edited on 5/22/14 at 12:48 pm
Posted by davesdawgs
Georgia - Class of '75
Member since Oct 2008
20307 posts
Posted on 5/22/14 at 12:47 pm to
Prayers sent.
Posted by mauser
Orange Beach
Member since Nov 2008
26938 posts
Posted on 5/22/14 at 12:48 pm to
I hate to hear this for you. A lot of good tips and advice in this thread. Best of luck to you and your mom.
Posted by darkhorse
Member since Aug 2012
7701 posts
Posted on 5/22/14 at 12:48 pm to
Ok.. I'm not sure where you live, and I'm not asking that you post that on a website, so don't.


I'm not sure what all links have been placed, but:

LINK

This has a huge list of resources.

LINK

Help you requested... They specifically help with the co-pay and out of pocket.

LINK

They help with everyday bills... house payment, car, food, etc.... So, it frees up money for treatment.





This post was edited on 5/22/14 at 12:53 pm
Posted by SSpaniel
Germantown
Member since Feb 2013
29658 posts
Posted on 5/22/14 at 12:49 pm to
Sorry to hear about your mother.

You can check This out. Assuming she's on votrient, it seems to be covered under GSK's patient assistance program.
Posted by HarveyDent
Harvey
Member since May 2014
58 posts
Posted on 5/22/14 at 12:50 pm to
Outside of whatever financial help you can get, try to be one of the strong ones emotionally in the family. Be the very best son you can be, and this will be an invaluable strength to your Mother.

My stepfather(practically my dad) passed in 2003 from lung cancer complications. I wish my relationship had been good with him my entire life with him, and not just his last few years. But I'm glad I was there and strong for us all. For him to talk with me privately about his fears and concerns, and how much of a comfort I was, that was nice.

Also, try/start staying well-informed. Doctors see that and are likely to share more with you on what they can realistically do
Posted by KosmoCramer
Member since Dec 2007
80526 posts
Posted on 5/22/14 at 12:51 pm to
quote:

Prescription drugs are not included in the max OOP


Is it a prescription or is it an in patient treatment?

Either way, I doubt she has an ACA plan. Probably already had one and they will have different rules depending on her plan as others have said.

He needs to check with her insurance company to see what the max OOP is.
Posted by Rex
Here, there, and nowhere
Member since Sep 2004
66001 posts
Posted on 5/22/14 at 12:51 pm to
quote:

Prescription drugs are not included in the max OOP...you thank your dear leader Obama for his deal with big Pharma.

Your link to that? Because my own prescription drugs were definitely included in my yearly max out of pocket. I pay $0 for prescriptions since my operation in early March.
Posted by LSUnKaty
Katy, TX
Member since Dec 2008
4900 posts
Posted on 5/22/14 at 12:54 pm to
I'm sorry to hear that.
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