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UPDATE: Difficult news regarding unborn child

Posted on 8/3/23 at 4:40 pm
Posted by Mor Miles
Member since Apr 2017
419 posts
Posted on 8/3/23 at 4:40 pm
Wife and I were ecstatic to learn we were expecting our first child earlier this year. When the Dr’s office said insurance only covered 3 sonograms, that it wasn’t a big deal, and that they recommended waiting until 20w to do the first one, we didn’t know any better. Looking back I wish I would’ve paid out of pocket for an earlier one to get a precise age/conception date, because now it’s causing all sorts of problems.

We chose to pay for the genetic testing at 10w vs an early sonogram. It was supposed to give much more info and the baby’s sex much sooner. We learned we were having a boy and that he had a clean bill of health! Then at 20w they told us he was looking small for his expected age and that we’d need a follow up visit with a specialist.

Today the specialist confirmed he was smaller than he should be (if our date of conception is correct, but hell all we are going off of is some conception app), but that the base of his neck is wide and his intestines show up too bright. Now they are telling us there is a high chance he not only could have Down’s (though he tested negative at 10w), but also cystic fibrosis and/or multiple sclerosis. They tell us he could be developmentally delayed, blind, deaf, or still born. That he could die an early incredibly painful death. All sorts of horrific shite.

I don’t know how to handle the news. Don’t know if I’m in denial, but can’t help but to think they are putting us on somehow. I don’t even know why I’m posting this here beyond hoping some of you have been in a similar scenario only to find the Drs were FOS.
This post was edited on 8/6/23 at 11:01 am
Posted by YumYum Sauce
Arkansas
Member since Nov 2010
8298 posts
Posted on 8/3/23 at 4:42 pm to
There are massive support groups for this type of stuff. I'm not a huge fb person but have seen great stuff on there for similar life challenges.
Posted by jizzle6609
Houston
Member since Jul 2009
3976 posts
Posted on 8/3/23 at 4:42 pm to
Prayers my brother. I am sorry you are having to go through this.
Posted by tonydtigr
Beautiful Downtown Glenn Springs,Tx
Member since Nov 2011
5095 posts
Posted on 8/3/23 at 4:42 pm to
Prayers sent for guidance. I hope you and wife have a strong support group to help you through this.
Posted by Death Before Disco
Member since Dec 2009
6169 posts
Posted on 8/3/23 at 4:42 pm to
All I can do is send prayers, man.
Posted by Bucktail1
Member since Feb 2015
3186 posts
Posted on 8/3/23 at 4:43 pm to
We paid for those genetic tests too with our first child….huge mistake. Told us there was a chance of spina bifida but everything came out normal. Hope everything turns out well for you!
This post was edited on 8/3/23 at 4:44 pm
Posted by Kato
Sec 102
Member since Nov 2006
2768 posts
Posted on 8/3/23 at 4:43 pm to
Man, that’s horrible. Hopefully they’re wrong and your baby is healthy.
Posted by Corinthians420
Iowa
Member since Jun 2022
6450 posts
Posted on 8/3/23 at 4:45 pm to
quote:

I don’t know how to handle the news. Don’t know if I’m in denial, but can’t help but to think they are putting us on somehow. I don’t even know why I’m posting this here beyond hoping some of you have been in a similar scenario only to find the Drs were FOS

I really would not want to believe the doctors would lie about all of this. It's an awful situation and there is no good way to have to break that news to you.

Im sorry for you and your wife, no parent deserves this, it is part of the circle of life though if that is any consolation at all, which I doubt it is
Posted by DrewBoy
Member since Jun 2022
86 posts
Posted on 8/3/23 at 4:47 pm to
Know of two who were told same scenarios. One immediate family. Both ended up just fine with no issues. Prepare and pray on it brother. It’ll work out.
Posted by Ross
Member since Oct 2007
47824 posts
Posted on 8/3/23 at 4:47 pm to
I wish you all the strength in the world my brother. This would be extremely tough on anyone so I don’t doubt it will take a while to even process it. I don’t know if you are a religious man, but church can offer community and a support group in tough times.
Posted by tigafan4life
Member since Dec 2006
48915 posts
Posted on 8/3/23 at 4:47 pm to
Oh I am so sorry to hear this. Be there for your wife right now and maybe find a support group on FB. Unfortunately you are not the first parents to face this kind of news. Again I’m sorry this has happened.
Posted by Beessnax
Member since Nov 2015
9130 posts
Posted on 8/3/23 at 4:49 pm to
How many weeks presently?
Posted by SpotCheckBilly
Member since May 2020
6402 posts
Posted on 8/3/23 at 4:52 pm to
Medical science is very often imprecise.

I am very sorry that you and your wife are in this situation.

I know of a guy who weighed 2 pounds and was born dead before being resuscitated. The doctors told his momma he would never make it and if he did, would be a vegetable. He was in NICU for five months and had several operations and problems as a young child.

Right now, he's practicing with the Seahawks. Last year he was an All-SEC linebacker for Auburn.
Posted by dualed
Member since Sep 2010
4690 posts
Posted on 8/3/23 at 4:52 pm to
With tech as advanced as it is these days I would say chances are minimal that the doctors are FOS. My wife and I lost our first kid because at 20 weeks we go in for an ultrasound and they find no amniotic fluid. No fluid turns into no kidneys and a litany of other issues, BUT he still had a heartbeat. We were told he would maybe live throughout pregnancy but die within minutes of being born. He could’ve also been crushed to death within the womb as time moved on and become disfigured. He was diagnosed with Potter’s Syndrome.

Ultimately we chose to do a medically induced abortion. It was the worst experience of our lives and I don’t envy your situation. We decided we didn’t want our child to suffer. I don’t have the perfect advice for you, but I would consider all options. I’m sorry you’re going through this.
Posted by Mr. Misanthrope
Cloud 8
Member since Nov 2012
5474 posts
Posted on 8/3/23 at 4:52 pm to
I’m sorry you’re going through this. We’ve been through issues related to pregnancy and delivery but not so alarming as you’re sharing. We will pray that you and your spouse get the strength to walk this ordeal and support each other and y’all’s yet born child. Also that the medical personnel involved are compassionate, knowledgeable, and wise.

If I can offer any advice it would be to get a second specialist to review this complex pregnancy.

I’m terribly sorry.

M.
Posted by mahdragonz
Member since Jun 2013
6932 posts
Posted on 8/3/23 at 4:53 pm to
Get a second opinion asap with a MFM.

The most important thing is to make sure your wife is as calm as possible since stress is the worst thing for a high risk pregnancy.

You need to do everything for your wife now to make her life easier as far as chores and stuff.
Posted by TDsngumbo
Alpha Silverfox
Member since Oct 2011
41548 posts
Posted on 8/3/23 at 4:54 pm to
Prayers to you and your wife.
Posted by CaptainsWafer
TD Platinum Member
Member since Feb 2006
58310 posts
Posted on 8/3/23 at 4:54 pm to
Man I don’t think they’d be putting you on. Are they basing the size off of the apps suggested conception date too?

I really hope there’s an error somewhere in there and your baby is just younger than they think rather than any actual issues with the baby.

I hope your boy comes out with everything he should and nothing he shouldn’t.
Posted by Clark W Griswold
THE USA
Member since Sep 2012
10506 posts
Posted on 8/3/23 at 4:55 pm to
You didn’t do anything wrong. Pray for the baby and your wife. It’s a lot but it might not be as bad as you thought. My friends daughter had similar prognosis. She is 8 now with lots of issues (wheelchair bound, deformities, organ issues requiring annual surgeries). Wouldn’t change it for anything. Kid is amazing and just competed in special Olympics and set records. She is smart, opinionated and happy. You just never know what might happen. Love your kid and make the best of it.
Posted by Dixie2023
Member since Mar 2023
1382 posts
Posted on 8/3/23 at 4:56 pm to
I’ve seen where those tests were incorrect and babies born just fine. Not saying this to give you false hope. I can’t imagine how you must be feeling. Definitely get second opinions and listen to your heart. If you are a believer, trust in God. Please keep us updated.
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