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re: UPDATE 4/26 -Just In Case the OT Didn't Know - The UK is murdering a little baby right now
Posted on 4/25/18 at 11:11 am to TheFonz
Posted on 4/25/18 at 11:11 am to TheFonz
quote:
I ask again, other than reasons of pride, what is it to the NHS if the parents remove the child from the hospital and seek treatment elsewhere at no expense to the NHS?
It sets a bad precedent (in their eyes), that could lead to a future removal of a certain degree of control they have had over their citizenry since 1989.
Posted on 4/25/18 at 11:12 am to DirtyMikeandtheBoys
quote:Responding to stimuli isn’t evidence of cognitive ability.
LINK to video of Alfie's cognitive responses to stimuli
Many of them, including sucking on a pacifier, are primitive reflexes.
This post was edited on 4/25/18 at 11:16 am
Posted on 4/25/18 at 11:13 am to Pilot Tiger
quote:
I think that the govt is making a tough decision but one that they came to very carefully and not without very careful consideration of the well being of the child. It's just an unfortunate situation
Why should they have this power when the parents can pay for treatment elsewhere? Why can't you just condemn this for what it is?
Posted on 4/25/18 at 11:13 am to Mike da Tigah
quote:
Remember folks. Trust your government. They know what’s best for you and are there to protect you.
Posted on 4/25/18 at 11:13 am to TH03
quote:
Well that changes things if the Italian doctors admit they can't even fix anything.
It just prolongs the inevitable.
Yes, but prolonging the inevitable is often most of the goal with all sorts of treatment. In my personal life, prolonging the inevitable allowed my wife's mom to see her graduate from high school, etc.
I'm not saying that's necessarily comparable here, I just don't think it's a good standard to use.
Posted on 4/25/18 at 11:13 am to DirtyMikeandtheBoys
quote:
but you as the child's parent would get to decide.
No, you just might not have the government deciding it for you. That's the issue here.
Posted on 4/25/18 at 11:14 am to LNCHBOX
quote:I'm not saying they SHOULD have that power. Christ
Why should they have this power when the parents can pay for treatment elsewhere?
quote:the reality of the situation is unfortunate. A child is dying and there is nothing anyone can do to cure him.
Why can't you just condemn this for what it is?
There's no one to condemn
Posted on 4/25/18 at 11:14 am to Scruffy
quote:
LINK to video of Alfie's cognitive responses to stimuli
Responding to stimuli isn’t evidence of cognitive ability.
I know you are a medical professional, thank you for the insight. I was unsure if it qualified or not. It is pretty unnerving to see though.
Posted on 4/25/18 at 11:15 am to TH03
quote:
It just prolongs the inevitable.
May as well just kill everyone now since we inevitably all die anyway.
If these parents can pay for whatever treatment they seek, no government should be able to tell them no.
Posted on 4/25/18 at 11:15 am to Pilot Tiger
quote:
There's no one to condemn
Posted on 4/25/18 at 11:16 am to Pilot Tiger
quote:
There's no one to condemn
At heart, this is a proxy argument against the power of the state to control life decisions in a manner that exceeds the power of individuals' next of kin to do so.
Nobody is evil here.
That said, arguably there is a bad system in place that can lead to harsh, and potentially evil results if allowed to continue in this manner.
Posted on 4/25/18 at 11:17 am to Pettifogger
It's much different if the patient is a vegetable.
There comes a point in these cases where it's less about the care of the sick person and more about the family not wanting to let go.
I think that should be left up to the family and the doctors, not the government. Government shouldn't force doctors to treat and shouldn't tell families they can't seek other treatment.
There comes a point in these cases where it's less about the care of the sick person and more about the family not wanting to let go.
I think that should be left up to the family and the doctors, not the government. Government shouldn't force doctors to treat and shouldn't tell families they can't seek other treatment.
Posted on 4/25/18 at 11:17 am to Pilot Tiger
quote:
the reality of the situation is unfortunate. A child is dying and there is nothing anyone can do to cure him.
There's no one to condemn
Medically, I agree. The policy that grants the state more decision making ability than the parents is a tough pill to swallow though.
Posted on 4/25/18 at 11:17 am to TheFonz
quote:
I ask again, other than reasons of pride, what is it to the NHS if the parents remove the child from the hospital and seek treatment elsewhere at no expense to the NHS?
It is only pride at stake here. Some people don't recognize how celebrated and revered the NHS is in Britain. In recent years they have made draconian budget cuts in other areas to preserve it amidst rapidly increasing costs. Hell, half of the opening ceremony of the London Olympics was a tribute to the NHS, remember?
The NHS can do no wrong, and it's integrity will be spared at all costs, including the deaths of children.
Posted on 4/25/18 at 11:17 am to TH03
quote:
It's much different if the patient is a vegetable.
There comes a point in these cases where it's less about the care of the sick person and more about the family not wanting to let go.
I think that should be left up to the family and the doctors, not the government. Government shouldn't force doctors to treat and shouldn't tell families they can't seek other treatment.
agree with all of that
Posted on 4/25/18 at 11:17 am to LNCHBOX
quote:
May as well just kill everyone now since we inevitably all die anyway.
That's ridiculous and not what I said.
quote:
If these parents can pay for whatever treatment they seek, no government should be able to tell them no.
You're arguing my point with my point.
Posted on 4/25/18 at 11:18 am to Pilot Tiger
quote:
There's no one to condemn
Yes there is. The UK government wants to give up.
The Parents want to try other avenues and have the means to pay for it.
Why should they be denied that? What an utterly ridiculous position to take. We are talking pure logic here.
Posted on 4/25/18 at 11:18 am to Pettifogger
quote:I don't disagree with any of this
At heart, this is a proxy argument against the power of the state to control life decisions in a manner that exceeds the power of individuals' next of kin to do so. Nobody is evil here. That said, arguably there is a bad system in place that can lead to harsh, and potentially evil results if allowed to continue in this manner.
Posted on 4/25/18 at 11:18 am to LNCHBOX
quote:
May as well just kill everyone now since we inevitably all die anyway.
If these parents can pay for whatever treatment they seek, no government should be able to tell them no.
At the most basic level, there isn't a scenario where the government should be able to decide that a family can't leave the country if the members have committed no crimes.
Healthcare aside, that's pretty basic.
If necessary I could make a great argument for the family being able to decide how long they want the child to stay on life support with the understanding that they will bear the financial burden.
Posted on 4/25/18 at 11:19 am to LNCHBOX
quote:
Why should they have this power when the parents can pay for treatment elsewhere? Why can't you just condemn this for what it is?
here is something to read to understand this decision better
A further scan was ... undertaken on 2 February 2018. This scan showed the almost total destruction of Alfie's brain, with fluid identical to water or CSF now present where brain matter should be.
Professor Cross [instructed to produce a review independent from Alfie's treating doctors] concluded that Alfie has a progressive, ultimately fatal, neurodegenerative condition, most likely a mitochondrial disorder. Professor Cross considered all the evidence, including the dramatic deterioration on the EEG. Professor Cross concluded that Alfie's brain was now only able to generate seizures. ... she told [Alfie's father] in gentle terms that even if it were possible to stop Alfie's seizure, which did not look likely given his poor response to anticonvulsant treatment to date, his brain is entirely beyond recovery.
Three specialists from Bambino Gesù in Rome reviewed Alfie's records and on 11 September 2017 travelled to Alder Hey to examine him. They too agreed that Alfie had a neurodegenerative disease and fitting disorder which was untreatable. They agreed that even if further testing were carried out, it would not provide a cure or, "bring a different treatment plan." In respect of the proposal that Alfie be transferred to their care: "It is possible that during travel Alfie may present continuous seizures due to stimulations related to the transportation and flight: these seizures might induce further damage to (the) brain, being the whole procedure of transportation at risk."
It then records how a German doctor who manages an air ambulance visited Alfie in the guise of a normal visitor, read a minority of his notes, believed the parents' description of his condition over that of the previous experts, and issued a "fit to fly" certificate. Having considered his evidence against that of other doctors, the judge said:
"I am at a loss to know quite why Dr Hubner fell so far below the standards expected of his profession. I am constrained to say that he has failed the parents, the Court but most importantly, Alfie."
In a further report commissioned by the parents, again with a non-UK doctor:
"The main underlying problem seems in my opinion that from the side of Alfie's parents that they do not understand and/or accept that: ... the majority of Alfie's reaction to external stimuli (i.e. touching, pain stimulation like pinching, etc., reaction to noise, parents voice etc.) is very likely not a purposeful reaction but very likely caused by seizures (as proven by repeat EEG monitoring)
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