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East Coast Band
Alabama Fan
Member since Nov 2010
38290 posts

Treatment for infant muscle wasting disease to hit market. potential price: $2 million
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quote:

A new treatment for an infant muscle-wasting disease is about to go on sale at a potential cost of $2 million, a record price tag likely to fuel the continuing scrutiny of how companies price their drugs and how insurers pay for them. Novartis AG NVS has yet to set a price for the gene therapy called Zolgensma, but executives say the drug’s potential to cure spinal muscular atrophy, an inherited disease that typically kills babies before they turn two, justifies a seven-figure price.


quote:

Gene therapies target diseases that result from a faulty gene by introducing a working version into the body. They are attracting interest, both for their ability to cure otherwise devastating illnesses in one treatment and also for their high cost. Luxturna, the only gene therapy on sale in the U.S. so far to treat a form of inherited sight loss, costs $850,000 a patient. The issue is gaining in importance as more gene therapies go on sale. The Food and Drug Administration expects to approve 10 to 20 gene and cell therapies a year by 2025.


Even at $2M, most of us would probably be willing to pay for their own children.


mylsuhat
Chicago Cubs Fan
NOLA
Member since Mar 2008
45916 posts

re: Treatment for infant muscle wasting disease to hit market. potential price: $2 million
Seems cruel but these people don't work for free either



ETA: I'm not saying it's right, this is 100% because they know the insurance companies will either cover it or the government will subsidize it. It's a cruel circle
This post was edited on 5/7 at 6:39 am


TDsngumbo
USA Fan
Member since Oct 2011
17075 posts

re: Treatment for infant muscle wasting disease to hit market. potential price: $2 million
I hope the person in charge of pricing it is tortured by ISIS.


HailToTheChiz
Auburn Fan
Back in Auburn
Member since Aug 2010
30974 posts

re: Treatment for infant muscle wasting disease to hit market. potential price: $2 million
Is 2mil what they charge insurance?


el Gaucho
Southern Fan
bawcomville
Member since Dec 2010
40661 posts

re: Treatment for infant muscle wasting disease to hit market. potential price: $2 million
So they’ll sell drugs so babies can get swole but it’s still illegal for a doctor to give medicine to help a man build muscle?


stonedbegonias
New Orleans Saints Fan
Member since Jan 2010
10891 posts
 Online 

re: Treatment for infant muscle wasting disease to hit market. potential price: $2 million
Self pay discount: 1.5 mil


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260
BurningHeart
LSU Fan
Member since Jan 2017
5817 posts
 Online 

re: Treatment for infant muscle wasting disease to hit market. potential price: $2 million
quote:

I hope the person in charge of pricing it is tortured by ISIS.


So you'd rather not have the drug on the market?


LuckySo-n-So
LSU Fan
Member since Jul 2005
19646 posts

re: Treatment for infant muscle wasting disease to hit market. potential price: $2 million
quote:


So you'd rather not have the drug on the market?



At that price, it may as well not be on the market. Insurance companies won’t pay it. Only the wealthiest of the wealthy will be able to pay for it.


BurningHeart
LSU Fan
Member since Jan 2017
5817 posts
 Online 

re: Treatment for infant muscle wasting disease to hit market. potential price: $2 million
quote:

At that price, it may as well not be on the market. Insurance companies won’t pay it. Only the wealthiest of the wealthy will be able to pay for it.


The market will take care of that then. If it's too expensive and price can be brought down, Novartis will work for a way to reduce the price.

If the price can't be brought down and no one pays, it'll be off the market.

Capitalism ftw


Fun Bunch
New Orleans Pelicans Fan
New Orleans
Member since May 2008
63653 posts
 Online 

re: Treatment for infant muscle wasting disease to hit market. potential price: $2 million
You do realize why they charge what they charge right?

It is an extremely rare disease. They put a ton of money into R&D.

Small market. Tons of money spent developing it.


TDsngumbo
USA Fan
Member since Oct 2011
17075 posts

re: Treatment for infant muscle wasting disease to hit market. potential price: $2 million
quote:

you'd rather not have the drug on the market?

That’s not what I meant at all. As a father I can’t imagine the medication needed to save my child existing but not being able to afford it.


mailman
Louisiana Tech Fan
Houston
Member since Jul 2009
5900 posts

re: Treatment for infant muscle wasting disease to hit market. potential price: $2 million
quote:

You do realize why they charge what they charge right?

It is an extremely rare disease. They put a ton of money into R&D.

Small market. Tons of money spent developing it.




8b ppl in this world, I doubt its rare enough to justify the cost. My guess is that they need to milk the market before generic drugs come out.


BurningHeart
LSU Fan
Member since Jan 2017
5817 posts
 Online 

re: Treatment for infant muscle wasting disease to hit market. potential price: $2 million
quote:

8b ppl in this world, I doubt its rare enough to justify the cost. My guess is that they need to milk the market before generic drugs come out.


quote:

Novartis AG NVS has yet to set a price for the gene therapy



Great guess


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140
BurningHeart
LSU Fan
Member since Jan 2017
5817 posts
 Online 

re: Treatment for infant muscle wasting disease to hit market. potential price: $2 million
quote:

That’s not what I meant at all. As a father I can’t imagine the medication needed to save my child existing but not being able to afford it.


Then you must be for a fully socialized medical system. That's the only way you're going to guarantee every infant is able to get the treatment.

As we all know, socialism = innovation all throughout history


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178
Mid Iowa Tiger
Iowa State Fan
Houston
Member since Feb 2008
5410 posts

re: Treatment for infant muscle wasting disease to hit market. potential price: $2 million
I am usually in the drug company’s corner but if they are pricing this because they can hold people “hostage” with the life of their child instead of some sort of cost/amortization basis that is in humane and the decision maker should die a painful death.

If it really costs $2mm (including a reasonable margin) that’s one thing but if they are basically price gouging that’s another thing.


el Gaucho
Southern Fan
bawcomville
Member since Dec 2010
40661 posts

re: Treatment for infant muscle wasting disease to hit market. potential price: $2 million
quote:

That’s not what I meant at all. As a father I can’t imagine the medication needed to save my child existing but not being able to afford it.

If you woulda worked more turnarounds instead of leaving for piano recitals and travel ball games you could afford it like the rest of us


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261
GetCocky11
South Carolina Fan
Member since Oct 2012
34159 posts

re: Treatment for infant muscle wasting disease to hit market. potential price: $2 million
quote:

If it really costs $2mm (including a reasonable margin)


I'd be curious to see what the actual cost is to the customer.

The list price may be $2mm, but with insurance and coupons it may be less (still incredibly expensive though, I'd imagine).


Jack Bauers HnK
LSU Fan
Baton Rouge
Member since Jul 2008
3640 posts

re: Treatment for infant muscle wasting disease to hit market. potential price: $2 million
quote:

At that price, it may as well not be on the market. Insurance companies won’t pay it. Only the wealthiest of the wealthy will be able to pay for it.


It’s okay for there to be some things available only to the wealthiest who can afford it. If whoever is selling it could reduce the price and still make profit, they would to increase the volume of their sales. There’s a reason 200 ft yachts are only affordable to the wealthy.


Cosmo
Houston Astros Fan
glassman's guest house
Member since Oct 2003
93249 posts

re: Treatment for infant muscle wasting disease to hit market. potential price: $2 million
How much did the drug cost to develop?

Miracle drugs just fall from the sky?


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222
LSU Tigershark
South Alabama Fan
10,000 posts
Member since Dec 2007
9497 posts

re: Treatment for infant muscle wasting disease to hit market. potential price: $2 million
$15 copay?


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