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re: Thread for OTers with aging parents

Posted on 8/30/22 at 7:47 am to
Posted by LSUJML
BR
Member since May 2008
45338 posts
Posted on 8/30/22 at 7:47 am to
quote:

Just buried my 98 year old grandmother this past Sat.


My Grandpa made it to 95, a month away from 96
He said 90 was way too long to live

This is a good reminder to sit down with your parents or kids & make sure your papers are in order & that you understand what your parents want / your kids understand your wishes
It’s not always an easy conversation but it needs to be done before you can’t speak for yourself
Posted by fallguy_1978
Best States #50
Member since Feb 2018
48466 posts
Posted on 8/30/22 at 7:50 am to
My wife and I both have parents in their 70s and each one of us has one dying from cancer. It's rough seeing them go through that, particularly for my wife because her parents are 6 hrs away.
Posted by Jim Rockford
Member since May 2011
98170 posts
Posted on 8/30/22 at 8:01 am to
My dad had COVID a few weeks ago. He's fine now but the stress seemed to do a number on my mother. I won't say things were perfect before but she was driving, cooking etc. She held together ok while he was sick, but after he was better she had an episode of confusion and she hasn't been the same since. She's always been an anxious person and her symptoms seem worse when she's worried. She has a benzo prescription which she is supposed to take before bed and whenever she feels anxious. I infer her Dr doesn't think there's much more that can be done about it.


Posted by latxwoman
Member since Mar 2019
749 posts
Posted on 8/30/22 at 8:06 am to
My husband's parents are 93. My MIL (mother-in-law)has signs of cognitive decline that are getting very bad. Recently she argued with my husband for twenty minutes. She believed his cousin, who is 52 is 21. My FIL (father-in-law) has COPD, and an oxygen tank. He was recently asked by his Mom to come over and bathe his Dad.

The real problem is that his siblings, ( 3 older sisters, 2 at retirement age) refuse to admit that their parents have any issues whatsoever. They still think they are vibrant, and okay to live alone in their home. Of course, the sisters all live in another state and have no intention of helping at all, other than "a check". They recently told my husband to find a CNA to sit with them for $8.00 an hour and they'd help to pay for their care. What year do they think it is?

Our medical system does not care if the elderly are a drain on their families or society. They just see the dollar signs when they suggest a 50 thousand dollar heart surgery to an elderly person who may not be astute enough to know they are a cash cow.

At this point, we are stuck here. My husband lost a very well-paying job years ago, and we've had struggles financially for years. I just recently found a job that pays more than his, so we are recovering. However, it does not lessen the sting when his sisters post photos on social media of their recent trip to Jamaica. We are lucky if we get to evacuate for a hurricane because his parents refuse to leave when they occur.

I am sure we are not alone. Something needs to be done. At this point, I am considering moving and leaving him to care for them. His inability to stand up to his sisters is ruining our lives, and our marriage- because he's married to his parents. I hope this does not seem unkind or insensitive, it's just factual. He spends all of his time helping them. If his sisters would wise up, perhaps we could sell their home and get them care before his Mom burns the house down cooking for them.

This post was edited on 8/30/22 at 8:15 am
Posted by Bard
Definitely NOT an admin
Member since Oct 2008
51535 posts
Posted on 8/30/22 at 8:45 am to
quote:

I thought I'd start this thread for mutual support for those of us in this situation.

My dad is 86, my mother is 83. Although my dad has some physical problems, his mind is razor sharp. My mother however seems to be showing signs of mental decline. In the past 7 or 8 years she's had 5 or 6 episodes variously diagnosed as seizures, TIA's and episodes of confusion or brief psychosis. She's recovered each time more or less back to baseline, but in the last few months she's started to noticeably decline, and especially in the last few weeks. Her short term memory Has gotten pretty bad and she's starting to imagine things that didn't happen, or didn't happen the way she thinks they did. As might be expected, I'm having trouble processing this...


I've already gone through this with grandparents, the time is coming where my mother (83) and step-father (85) are up at bat. Their situation is the reverse of yours. Mom is still sharp while his mind has been very slowly wandering for the last 5-8 years, but over the last year it's gotten far worse (especially after his brother passed). The last time the wife and I were visiting we told them some big news and we all discussed it for a good hour. A day and a half later I make a comment about it in passing to my step-father and it was like the previous conversation had never happened.

No matter how tough it is on you, imagine what your father is having to go through. I watched my grandfather try to solo care for my grandmother as her Alzheimer's set in during my youth (she was also a bad diabetic, which made things worse) until he physically, mentally and emotionally was simply wiped out. I think one of the big moments was when she called out to him from the back porch (he had a phone call) and when he walked up she looked at him as if he were some new farm hand, then asked him where her husband was.

She refused in-home assistance so he finally had to put her in a nursing home. He went every day while she slowly deteriorated to the point where she was just a vegetable.

I don't say all this to make you feel worse, but to remind you that in you're not the only one in it. Your father is going to need someone to lean on and so will you. During all the drama and pain, don't let it distract you from being there for one another.

Good luck.
Posted by Turf Taint
New Orleans
Member since Jun 2021
6010 posts
Posted on 8/30/22 at 8:55 am to
Hang in there and best to your Mom.
Posted by Giantkiller
the internet.
Member since Sep 2007
20290 posts
Posted on 8/30/22 at 9:17 am to
My folks are late 60's/early 70's and they're still good to go but I know these situations are likely just around the corner. Just curious, have any of you ever researched different ways to stave dementia off, like bright light therapy? Cognitive stimulation therapy? Things of that nature?

I've been reading a lot into Elon Musk's Neuralink. It's still pretty experimental but they've made a good bit of advancement creating a neural lace that can one day, back up the brain, fight disease, etc. It's fascinating and I hope they continue to make progress before decline begins to massively creep up on our generation.
Posted by tunechi
Member since Jun 2009
10178 posts
Posted on 8/30/22 at 9:21 am to
quote:

She calls me daily bitching at me, telling me to come get her, she wants to go home, blah blah. I send her to voice-mail. I Don't feel sorry for her mean arse one bit.


Sounds like Tony Soprano's mom
Posted by ladygoodman
under there
Member since Oct 2016
371 posts
Posted on 8/30/22 at 9:49 am to
Thanks for the thread. So many people endure this, and it is a wretched club to be in, but sharing experiences can help. My dad turns 80 next month and has been dealing with Parkinsons since 2013, had a stroke in 2017 and is in serious decline. More bad days now than good. He struggles with hallucinations as well as the physical effects, and they are simply terrible. He is convinced people are in the room with him at night, dogs and cats are all over the house, helicopters landing in the backyard, and will not be convinced otherwise. The worst is when he begs me to take him home when he is sitting in his living room.

My mom is his principal caregiver, but she almost died of Covid in January and is still recovering. I am watching her closely trying to ascertain if her forgetfulness is "brain fog" from Covid or something else.

I am an only child, so pretty much handle it myself along with my amazing husband and adult son. We have in-home caregivers and are so fortunate that they can afford that. They were adamant about keeping their parents in their own homes until the end, and I will try to do that for them as well...but it is not easy. I tell my husband all the time that I will simply do the best I can do as long as I can.
Posted by cable
Member since Oct 2018
9639 posts
Posted on 8/30/22 at 9:52 am to
My father is approaching 80. His personality has noticeably changed and the last time I saw him he was imagining flies. My mother is the same age, but she's still totally fine - she might outlive me.
Posted by Horsemeat
Truckin' somewhere in the US
Member since Dec 2014
13526 posts
Posted on 8/30/22 at 9:54 am to
My dad got bit by the bad mosquito in 2004 after retiring from the state & LANG and has been fighting everything onset by west nile since then - M.S., transverse myelitis, etc. 18 years of fighting and he's now to the point that walking just isn't happening anymore. Watching how he has fought that for so long is why I have zero room to complain about going through the cancer treatments i've gone through. This is a minor bobo compared to how he has just been plagued with pain and neurological problems.
My mom is the real MVP through it all - she has taken care of that man since day 1. Stubborn old country girl won't take no for an answer from him.
Posted by LSUA 75
Colfax,La.
Member since Jan 2019
3701 posts
Posted on 8/30/22 at 9:57 am to
Quote:
“His inability to stand up to his sisters is ruining our lives”
I understand your frustration but I hope you don’t leave your husband to deal with it by himself.What can he do about it?

Wife and I went through the same thing with both our sets of parents and neither of us got any help from our siblings.Wife has 2 brothers and neither lifted a finger to help,several year ordeal.Same for me,I have 2 sisters and they left the whole burden to me.My mother was declining and my sister moved to frickin Seattle.Other sister lives in La.out of town,she didn’t help either ,just come visit a few hours every month or two.

I would see an elder care lawyer ,get power of attorney and sell the house.That’s what I did and used her money to help care for her.My sisters didn’t complain as they are both affluent but I didn’t care what they said.If they had complained I would have told them to pound sand.
Mil didn’t have anything so the whole financial burden fell on us.Both her brothers are wealthy but they ever contributed a penny for sitters,etc.Actualy they hardly even visited.

It’s a tough situation for sure.
Posted by tigerinthebueche
Member since Oct 2010
36791 posts
Posted on 8/30/22 at 9:59 am to
funny, my wife just started dealing with the first pronounced signs of her mother's aging. I've been dealing with it for a while with my own mother. The forgetfulness, the short(er) temper, the remembering of how things didn't happen or never happened. All you can do is laugh and be patient. As long as they don't hurt themselves or harm anyone else, it doesn't really matter. I get the same questions and same stories every time we talk. But there will come a day when we wont be able to talk. Just as it happened with my father. So I'll take the nonsensical ramblings and redundant questions while I can.
Posted by RedPop4
Santiago de Compostela
Member since Jan 2005
14400 posts
Posted on 8/30/22 at 10:41 am to
Thank you for this thread Jim Rockford.
I am in the same boat, Mom is 87, and four years ago at this time had multiple "episodes" and spates of hospitalizations followed by skilled nursing. Dehydration issues which were persistent, cardiac arrhythmia with which she has dealt most of her life, and a Christmas Day 2018 stroke.

I ended up having to move in three years ago, and there has been little help, emotional support or anything else. She's healthy enough, with all her maladies, but...I'm damned near empty.

Seeing so many posting to this thread, it helps me, and I pray for all of us in these situations.
Posted by Jim Rockford
Member since May 2011
98170 posts
Posted on 8/30/22 at 10:41 am to
I'm really struggling with acceptance of the new reality. I keep thinking she'll bounce back like before. My dad has been noticing some changes for a few years but they were always minor enough I could ignore them or put it down to something else. I still hope when I go over there today she'll be a lot better, or even a little better. I talked to my dad just now and he said things are "so-so" today so I guess that's not going to happen.
Posted by Wolfhound45
Hanging with Chicken in Lurkistan
Member since Nov 2009
120000 posts
Posted on 8/30/22 at 10:43 am to
My 84 year old mother died in March. This past year helping to care for her was the most difficult of my life. Absolutely horrible how my oldest sibling treated her (and then ended up abusing her power of attorney and defrauding her).

Best wishes to any and all as they take on this difficult task.
Posted by Gris Gris
OTIS!NO RULES FOR SAUCES ON STEAK!!
Member since Feb 2008
47368 posts
Posted on 8/30/22 at 10:57 am to
I feel for everyone caring for their parents and the parents going through these issues. It's awful from both standpoints.

My Mom is in her late 80's. A year and a half ago, she was on a walker, but still driving herself, still doing some cooking and able to use her ipad pretty well. She had some mild short term memory issues like mistaking the phone for the remote or repeating herself. One morning, she went to get up from the bed and fell to the floor. She could not stand up at all. Long story short, she had a UTI and we learned those can be devastating in older people. We had no idea a UTI could cause those kinds of problems. They can also make the person delirious which happened another time.

She is pretty much wheelchair bound. She can use the walker with the sitter or home health folks walking right by her in the house some during the day, but she no longer drives, cooks and has trouble on the ipad. She has 24/7 sitters now because she cannot stay alone. She was not able to come back from the UTI completely, though over time she has made a good bit of progress. It changed her life in big ways.

Keep an eye out for those UTIs when you see some change in your parents. It is worth getting them tested. We have Mom drinking lots of water and cranberry juice every day and, so far, that has warded them off.
Posted by Korkstand
Member since Nov 2003
28705 posts
Posted on 8/30/22 at 11:24 am to
quote:

Keep an eye out for those UTIs when you see some change in your parents. It is worth getting them tested.
Absolutely! They can have a UTI with no pain or what you might expect to be UTI symptoms. The only symptoms might be severe mood swings and just acting generally nutty.
Posted by Pepe Lepew
Looney tuned .....
Member since Oct 2008
36113 posts
Posted on 8/30/22 at 11:47 am to
My father passed 3 years ago in December at 91, mom will be 94 in November. Mom is at home, fortunately my older sister is at her house 24/7. We’ve tried the assisted living route but she won’t leave her home. She has a rebuilt hip, scoliosis, but her mind is sharp. My dad was taken home to die, I wouldn’t ever do this again, it was terrible. Just think it through if this is in your plans. Godspeed
Posted by Jim Rockford
Member since May 2011
98170 posts
Posted on 8/30/22 at 11:57 am to
It seems like most of us have experienced or are experiencing this. The validation is really helpful.
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