- My Forums
- Tiger Rant
- LSU Recruiting
- SEC Rant
- Saints Talk
- Pelicans Talk
- More Sports Board
- Fantasy Sports
- Golf Board
- Soccer Board
- O-T Lounge
- Tech Board
- Home/Garden Board
- Outdoor Board
- Health/Fitness Board
- Movie/TV Board
- Book Board
- Music Board
- Political Talk
- Money Talk
- Fark Board
- Gaming Board
- Travel Board
- Food/Drink Board
- Ticket Exchange
- TD Help Board
Customize My Forums- View All Forums
- Show Left Links
- Topic Sort Options
- Trending Topics
- Recent Topics
- Active Topics
Started By
Message
re: Any special needs parents here in the OT? ADMIN NEEDED
Posted on 6/18/20 at 7:40 pm to couv1217
Posted on 6/18/20 at 7:40 pm to couv1217
I asked a minister, a lawyer, and a doctor after a decades long family illness "how much was enough". response from all three was too do the best you can, nothing less
0
Posted on 6/18/20 at 7:40 pm to Privateer 2007
I donated to the cause. Godspeed friend.
Posted on 6/18/20 at 7:52 pm to lsufan112001
quote:
lsufan112001
Thanks so much and again thanks to everyone for the kind words. Feel free to share on your social media’s if you’d like. It’s got a pretty decent start. We are both in shock and awe right now over peoples kindness. I just asked her how far do you think what we currently have will take us. Her response, “it’s already budgeted and gone for older medical bills.” Dohhh!!!
Posted on 6/18/20 at 7:55 pm to lsufan112001
I don't have any special wisdom or words of advice. I'm just stopping in to say she is an absolute cutie. 
Posted on 6/18/20 at 10:05 pm to WhiskeyThrottle
I think that I know who your buddy is. My neighbor had her grand daughter outside the other day. The little girl was in a stroller. I didn't even know that something was wrong with the little girl until my neighbor told me what the little girl was going through. They are really working with the child plus she sees a specialist. I told my neighbor that her granddaughter will be talking before they know it. I'm a firm believer that anything can happen and the love that the family shows that child will have that child speaking in no time. I also believe that miracles can happen and that people who have a special needs child was given an angel by God. Everyone has a purpose on this earth.
Posted on 6/18/20 at 10:10 pm to couv1217
Hang in there. Prays are with y'all. Have a cousin that has been dealing with one of their daughters going on 40 years.
Posted on 6/18/20 at 10:19 pm to couv1217
You will muddle through. You don’t have a choice. My oldest son was born with cerebral palsy. He turned 18 in February.
This may sound odd to you, but perhaps the best thing you can do for your child right now is really support and listen to your wife. The rate of divorce in the special needs community is shockingly high. You just have to make that decision now and stick by it. It will be so much better if you can stay together.
After that, read about the condition. Enroll in Early Steps, and someone mentioned Families Helping Families. It’s a good resource. There is a lot of well funded support among Downs parents. And when she gets a little older there are lots of fun things to do with her.
It will be ok. But seriously, take care of yourself and your marriage.
This may sound odd to you, but perhaps the best thing you can do for your child right now is really support and listen to your wife. The rate of divorce in the special needs community is shockingly high. You just have to make that decision now and stick by it. It will be so much better if you can stay together.
After that, read about the condition. Enroll in Early Steps, and someone mentioned Families Helping Families. It’s a good resource. There is a lot of well funded support among Downs parents. And when she gets a little older there are lots of fun things to do with her.
It will be ok. But seriously, take care of yourself and your marriage.
Posted on 6/18/20 at 10:21 pm to theenemy
quote:
Morgans Wonderland is a great amusement park built for children with special needs.
Yes! Love this place. Toyota sponsors it and was a big reason why I bought a Tundra. Been wanting to go again but Rona.
Posted on 6/18/20 at 10:30 pm to couv1217
I didn’t read the entire thread, but some thing I know about high functioning DS kids/adults:
-They are the most loving people on Earth. They seek touch, all the hugging at Special Olympics isn’t just a thing, it’s a must
-They can be the most stubborn people on Earth. When they have their minds made up, you gonna have a hard time changing it. My friend at work has an adult DS daughter. He said when she was young, up to a teenager, if she wanted to do something or get something, and you tell her no, she would plop down on the floor and not move. Kind of like a kid throwing a fit at a store, wanting a toy or something, but without the fit. Basically a sit in.
She is now 30+. She likes to gamble (not a lot, but she likes the slot machines) and drink daiquiris. She is very happy go lucky.
-They are the most loving people on Earth. They seek touch, all the hugging at Special Olympics isn’t just a thing, it’s a must
-They can be the most stubborn people on Earth. When they have their minds made up, you gonna have a hard time changing it. My friend at work has an adult DS daughter. He said when she was young, up to a teenager, if she wanted to do something or get something, and you tell her no, she would plop down on the floor and not move. Kind of like a kid throwing a fit at a store, wanting a toy or something, but without the fit. Basically a sit in.
She is now 30+. She likes to gamble (not a lot, but she likes the slot machines) and drink daiquiris. She is very happy go lucky.
Posted on 6/18/20 at 11:42 pm to couv1217
Hope things look up. Stay strong big guy. Im sure she will inspire you and many.
Posted on 6/18/20 at 11:45 pm to couv1217
Hey, I just want to give props to the special needs moms and dads out there. The resiliency and humanity that ya'll display is fricking beautiful.
Posted on 6/18/20 at 11:52 pm to couv1217
The posters on this board are amazing.
God bless you and your beautiful child
God bless you and your beautiful child
Posted on 6/19/20 at 12:02 am to SteelMoney
I know your name man, You have a beautiful family
I hope things all well with you these days
I hope things all well with you these days
Posted on 6/19/20 at 12:36 am to couv1217
Don’t treat her any differently than any other child. Love her, make her feel special but not different. She is going to change and effect, in a good way, everyone she contacts in her life. You are still going to have your moments of laughter, tears (good and sad), heartache, frustration, and pure joy. Downs children are some of the sweetest kids that I work with on a daily basis. I have a daughter with autism. We have pushed her every step of the way. She is going to be a junior in high school and is on track to graduate with a diploma and near a 3.0gpa. Celebrate every accomplishment, big and small.
Posted on 6/19/20 at 12:38 am to OWLFAN86
quote:
The posters on this board are amazing.
Sometimes this gets lost in the day to day of TD. Many things get posted on here that are racist, misogynist, and sexist. However there is a lot of good things that come out of these boards as well. Glad to see things like this
Posted on 6/19/20 at 12:58 am to couv1217
Congrats on your new baby girl. I know you have a lot to learn and a lot to handle but you can do it. Baby Girl is gonna have you wrapped around her little finger.
I have a disabled grandson and he is pure joy. He has a rare genetic disorder that was only recently discovered.
Our lil man just graduated high school.He is non verbal and is about on the level of a young toddler. He walks, runs, laughs a lot and is such a lovebug. Never has a bad day or a tantrum. He has some health issues but nothing too serious.
My wife worked with disabled children and she always said her downs children were the sweetest students.
I have a disabled grandson and he is pure joy. He has a rare genetic disorder that was only recently discovered.
Our lil man just graduated high school.He is non verbal and is about on the level of a young toddler. He walks, runs, laughs a lot and is such a lovebug. Never has a bad day or a tantrum. He has some health issues but nothing too serious.
My wife worked with disabled children and she always said her downs children were the sweetest students.
Posted on 6/19/20 at 1:02 am to couv1217
That's a blessing man.
Congrats on your child.
Congrats on your child.
Posted on 6/19/20 at 4:33 am to djangochained
quote:
djangochained
Give me some more info
Posted on 7/31/20 at 10:37 pm to couv1217
Well guys and ladies we are back at it again. You have all been a part of little MJs saga so wanted to keep you updated. After the initial visit with several specialists at the same time, the BR ENT decided that she was fine and nothing was needed. The other 3 specialists left the meeting and immediately called our DR and expressed their displeasure with the ENT. When they told him who the ENT was she immediately said that he was terrible and she hadn’t sent any patients to that guy in years. She immediately made us an appt in Nola. Within 10 minutes this ENT had put a scope up MJs nose and down her throat and identified the problem. Excessively large tonsils and adenoids. We set up a date for surgery which was this coming Tuesday. She got fit for her little sweet giraffe cpap mask and we were on our way to figuring stuff out.
Then came Wednesday night/Thursday morning. MJ started running high fever, wheezing, not eating, mouth foaming, and just overall not herself. Fluids, antibiotics, pricks and prods, bloodwork this, and bloodwork that. I head to work this morning and the wife asks me to call her around lunchtime. White blood cells low. Platelet count low. Something with the bone marrow. Nothing good can come from those things. We are on pins and needles waiting for another round of tests to come back in the morning. There are so many things they are thinking it could be. Mis-c which is something kids are getting weeks after having Covid, some other crap, leukemia, or hopefully just some virus that is throwing her counts all out of whack.
With all of the uncertainty from this, we have had to cancel her tonsillectomy and adenoid surgery and put on hold her eye surgery that was scheduled for September.
You guys have been very supportive through MJs first year and a half since day 1. So here I am again asking for your thoughts, well wishes, and prayer for little MJ. Kid is a fighter and will conquer whatever it is. Thanks y’all. It is appreciated more than I could ever express.
Then came Wednesday night/Thursday morning. MJ started running high fever, wheezing, not eating, mouth foaming, and just overall not herself. Fluids, antibiotics, pricks and prods, bloodwork this, and bloodwork that. I head to work this morning and the wife asks me to call her around lunchtime. White blood cells low. Platelet count low. Something with the bone marrow. Nothing good can come from those things. We are on pins and needles waiting for another round of tests to come back in the morning. There are so many things they are thinking it could be. Mis-c which is something kids are getting weeks after having Covid, some other crap, leukemia, or hopefully just some virus that is throwing her counts all out of whack.
With all of the uncertainty from this, we have had to cancel her tonsillectomy and adenoid surgery and put on hold her eye surgery that was scheduled for September.
You guys have been very supportive through MJs first year and a half since day 1. So here I am again asking for your thoughts, well wishes, and prayer for little MJ. Kid is a fighter and will conquer whatever it is. Thanks y’all. It is appreciated more than I could ever express.
Page 6 of 8
Popular
Back to top
Follow TigerDroppings for LSU Football News