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re: Any special needs parents here in the OT? ADMIN NEEDED
Posted on 6/18/20 at 4:17 pm to couv1217
Posted on 6/18/20 at 4:17 pm to couv1217
Now is the time to setup a special needs trust in the event you predecease your kid. Then put the trust as Beneficiary on your life insurance policies and any kind of financial accounts. I have a cousin who has some kind of mental issues. He works but needs help managing some things. Having someone do that for him makes his life easier and he's financially set because mom and dad started early. Best of luck to you and your new girl.
This post was edited on 6/18/20 at 4:18 pm
2
Posted on 6/18/20 at 5:09 pm to yatesdog38
quote:
Now is the time to setup a special needs trust in the event you predecease your kid. Then put the trust as Beneficiary on your life insurance policies and any kind of financial accounts. I have a cousin who has some kind of mental issues. He works but needs help managing some things. Having someone do that for him makes his life easier and he's financially set because mom and dad started early. Best of luck to you and y
You seem to have a very good grasp on this. Would love to talk about this more if possible
Posted on 6/18/20 at 5:12 pm to couv1217
What state are you in? If in Louisiana, I can give you the name of a lawyer who specializes in estate planning with special needs children.
This post was edited on 6/18/20 at 5:13 pm
Posted on 6/18/20 at 5:14 pm to couv1217
That Macy is a beautiful baby!!!! Best wishes for you all — she’s lucky to have you!!
Posted on 6/18/20 at 5:15 pm to boosiebadazz
quote:
boosiebadazz
Yes please
Posted on 6/18/20 at 5:15 pm to tiger91
quote:
tiger91
Thanks so much. Doesn’t matter what type of day you’re having, her smile changes everything
Posted on 6/18/20 at 5:19 pm to couv1217
Posted on 6/18/20 at 5:20 pm to boosiebadazz
quote:
boosiebadazz
Thanks
Posted on 6/18/20 at 5:32 pm to Brazos
quote:
That most certainly is why the divorce rate is so high but yet it makes absolutely no sense. Divorce only adds to the economic strain on top of all the emotional pain and the innocent child involved.
I know of several cases where the parents divorced simply because it would greatly improve the care available for their child by having the child “technically” with a single parent and qualifying for Medicaid. Call it fraud if you want, but I can understand having to work the system to get the best care and education for yourchild.
Posted on 6/18/20 at 6:07 pm to couv1217
She’s absolutely adorable!
Posted on 6/18/20 at 6:26 pm to ANewFlame
dsagbr.org
Posted on 6/18/20 at 6:34 pm to couv1217
I work with special needs children and their motor skills. High functioning ds kids can hold a job, perform daily activities, and at times can hold normal conversations. I’ve trained some DS kids in track who have went on to run for their high schools track team and do very well. Sometimes you wouldn’t even know a kid has Down syndrome if not for their look. Not saying they have a bad look, but they their own special look. Obviously this is best case scenario. Don’t put any restrictions on the kid just because of their diagnosis. DS kids are my favorite to work with because they surprise the hell out of you, and they work their butts off.
Posted on 6/18/20 at 6:39 pm to couv1217
Four year old now. Communication is still a little rough at times compared to a 4 year old without it, but he is doing well. Sign language is much easier for him then saying words and that seems fairly common with kids with down syndrome. He is still just like any normal kid. Sneaky little bastard, knows what he likes and dislikes, etc. Just not quite as developed in the academic sense and with his vocal ability. He can say a few words now, but struggles pronouncing with clarity.
Potty training is an absolute nightmare though. Prepare to change a lot of diapers man.
Potty training is an absolute nightmare though. Prepare to change a lot of diapers man.
Posted on 6/18/20 at 6:39 pm to yatesdog38
quote:
Now is the time to setup a special needs trust in the event you predecease your kid.
Absolutely. Great advice.
OP, find an attorney in your area who is experienced in special needs trusts. Make sure it’s set up right. Your child will need lifetime care after you’re gone so start planning now.
Also, get on the Medicaid waiver wait list now. The list is literally years long.
Explore moving from BR. Your child will need different schooling than what you might be able to get in BR. Most private schools don’t have much to offer special needs, and you probably don’t want to frick around with a BR public school.
Posted on 6/18/20 at 6:42 pm to TBoy
quote:
The waiting list for waiver coverage under Medicaid, which provides a secondary payer, was nine and a half years for us.
Yeah I wasn’t sure how long it was but I knew it was long in Louisiana.
When we moved to Texas we got the waiver within a few months.
Posted on 6/18/20 at 7:06 pm to couv1217
Haven't faced it myself.
However, I've coached multiple Special Olympics Sports for several years. And many athletes are Downs Syndrome.
Get involved with other Special Needs families. The kids can all interact with each other.
She's likely going to know she's different, so surround her with other similar kids.
Reach out to Special Olympics, families helping families, stuff like that. They'll be able to refer you to people in a similar situation.
If you'd like feel free to reply with an email and I'd be happy to speak with you.
However, I've coached multiple Special Olympics Sports for several years. And many athletes are Downs Syndrome.
Get involved with other Special Needs families. The kids can all interact with each other.
She's likely going to know she's different, so surround her with other similar kids.
Reach out to Special Olympics, families helping families, stuff like that. They'll be able to refer you to people in a similar situation.
If you'd like feel free to reply with an email and I'd be happy to speak with you.
Posted on 6/18/20 at 7:17 pm to couv1217
My son was born with sever cerebral palsey.
At 1st it can seem overwhelming....but you will settle in. You will learn how to overcome the hardships and it will just become normal....that might seem crazy now....but trust me...you figure out how to overcome the difficulties and it just becomes normal day to day life.
Don't worry about the stares in public....you will learn that they just come from innocent curiosity, compassion, and/or reflection.
Accept acts of kindness from people....it benefits your child and the person offering.
Shriners hospital is a wonderful organization.
Morgans Wonderland is a great amusement park built for children with special needs.
Check into support groups (national, regional, and local)....they can point you into the right direction for help and available programs.
I don't know if you are religious but this was always special to us (maybe it will help you)....
Joshua 1 9 "Have I not commanded you? Be strong and courageous. Do not be afraid; do not be discouraged, for the Lord your God will be with you wherever you go.”
At 1st it can seem overwhelming....but you will settle in. You will learn how to overcome the hardships and it will just become normal....that might seem crazy now....but trust me...you figure out how to overcome the difficulties and it just becomes normal day to day life.
Don't worry about the stares in public....you will learn that they just come from innocent curiosity, compassion, and/or reflection.
Accept acts of kindness from people....it benefits your child and the person offering.
Shriners hospital is a wonderful organization.
Morgans Wonderland is a great amusement park built for children with special needs.
Check into support groups (national, regional, and local)....they can point you into the right direction for help and available programs.
I don't know if you are religious but this was always special to us (maybe it will help you)....
Joshua 1 9 "Have I not commanded you? Be strong and courageous. Do not be afraid; do not be discouraged, for the Lord your God will be with you wherever you go.”
Posted on 6/18/20 at 7:22 pm to couv1217
I can't help you from a personal perspective, but God bless you and your family. We have a friend with a child with Downs Syndrome, and he is the joy of their lives, and an incredible amount of work at the same time.
Posted on 6/18/20 at 7:23 pm to blight
quote:
we went to Special Olympics event. Wish we could be as happy as these kids.
I challenge anybody to go to a Special Olympics event, and not leave with a smile.
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