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re: Any CPAP users in here?

Posted on 9/22/22 at 8:45 am to
Posted by Salamander_Wilson
Member since Jul 2015
7689 posts
Posted on 9/22/22 at 8:45 am to
I was diagnosed with Central Sleep Apnea in February.

Took 4 months to receive my ResMed.

Tried 2 nasal pillows but couldn’t get used to them as I typically breathe through my mouth due to multiple sinus issues.

Have tried the full mask for two nights now and can’t get used to it. I don’t think the fit is right as it leaked unless I have it so tight it feels like a strong midget is smothering me.

Needless to say my sleep has been even worse since trying this and I’m starting to lose hope.

Anyone use an ASV machine for Central Apnea? Research says it may be better than CPAP. I’d be interested to know how the transition was helpful or not if so.
Posted by Puffoluffagus
Savannah, GA
Member since Feb 2009
6101 posts
Posted on 9/22/22 at 9:25 am to
quote:

Central Sleep Apnea


Central apnea much harder to treat. If intolerable to all mask devices may be worth asking or looking into the remede procedure to see if it would work for you. Not in widespread use so I don't know how good the results have been.
Posted by SaintEB
Member since Jul 2008
22735 posts
Posted on 9/22/22 at 11:27 am to
I got one back in April. I'm kind of a big baw. Even in my 20s, and not overweight, I snored and was told that I should get checked. As I've gotten older and bigger, its gotten much worse and that sluggish feeling was getting unbearable.

I was having 92 apneas an hour. Yeah, pretty bad. I am also a mouth breather so I have the Bane, fighter pilot face mask. The first night, I took it off in the middle of the night without realizing it. The second night, I left it on and noticed a difference immediately. I haven't missed a night since. Game changer.
Posted by Salamander_Wilson
Member since Jul 2015
7689 posts
Posted on 9/22/22 at 11:45 am to
Thanks. It’s honestly scary to know that my nervous system just forgets to breathe often while I’m sleeping.

I’m young, in shape and otherwise healthy but finding out something in my nervous system is out of whack is unsettling.

I’d rather not have to have a major surgery to implant something into my chest, so I’m hopefull I’ll get this figured out with an APAP or ASV
Posted by Warfox
B.R. Native (now in MA)
Member since Apr 2017
3144 posts
Posted on 9/22/22 at 11:52 am to
quote:

Are CPAP machines easy to sleep with? It seems like you would lose more sleep with a mask over your face versus a couple of times holding your breath at night.


Full face mask user here.

Once accustomed to it, for me there is a noticeable decrease in the work of breathing on the CPAP.

I utilize EPR though expiratory pressure relief on my ResMed, which drops the pressure on exhalation.

I sleep like a baby with it on, and can definitely feel the difference the next day if I don’t use it.
Posted by tommy2tone1999
St. George, LA
Member since Sep 2008
6781 posts
Posted on 9/22/22 at 11:52 am to
Posted by Warfox
B.R. Native (now in MA)
Member since Apr 2017
3144 posts
Posted on 9/22/22 at 11:59 am to
quote:

I was diagnosed with Central Sleep Apnea in February. Took 4 months to receive my ResMed. Tried 2 nasal pillows but couldn’t get used to them as I typically breathe through my mouth due to multiple sinus issues. Have tried the full mask for two nights now and can’t get used to it. I don’t think the fit is right as it leaked unless I have it so tight it feels like a strong midget is smothering me. Needless to say my sleep has been even worse since trying this and I’m starting to lose hope. Anyone use an ASV machine for Central Apnea? Research says it may be better than CPAP. I’d be interested to know how the transition was helpful or not if so.


Perhaps you require a different mask size?

There is also a memory foam mask.

Check out the air sense F series with and without the memory foam.

I use a regular f20 but I am going to try the F20 with memory foam next round.



This post was edited on 9/22/22 at 12:00 pm
Posted by Salamander_Wilson
Member since Jul 2015
7689 posts
Posted on 9/22/22 at 12:10 pm to
I’ll ask about them. Will see the respiratory therapist next week.

I don’t like how much ‘just try this’ is involved. Wish they’d spend more time with you trying on multiple things in office until you feel comfortable.
Posted by Big Chipper
Charlotte, NC
Member since Sep 2008
2777 posts
Posted on 9/22/22 at 12:13 pm to
One other thing I'd recommend is seeing if you can get an auto BiPAP instead of a CPAP. With a CPAP you have one constant pressure. In my case, it lead to me swallowing air throughout the night and I'd end up with a bloated stomach and constant morning farts for like 30 min after I woke up. There's a name for it (Aerophagia).

With auto BiPAP, the machine has two pressure levels, high for inhalation and low for exhalation. The auto part means that it adjusts you pressure levels throughout your sleep. Cool thing is, once it's on, it almost breathes for you and breathing against it is no issue. It also eliminated the aerophagia.

This explains it better: Machines and Pressures
Posted by Original Corn Pop
The public pool
Member since Nov 2020
547 posts
Posted on 9/22/22 at 12:15 pm to
quote:

quote:

Yep, it’s pretty awesome, new leash on life….

Lease


You're clearly not a CPAP user....
Posted by Thorny
Montgomery, AL
Member since May 2008
1909 posts
Posted on 9/22/22 at 1:17 pm to
quote:

Are CPAP machines easy to sleep with? It seems like you would lose more sleep with a mask over your face versus a couple of times holding your breath at night.


1. My breathing was stopping 4-8 times an hour. Sometimes for such a long time that the lack of snoring woke up my wife. So, I was losing more than a couple of time holding my breath.

2. I can't sleep without it now. If I try, I never really get to sleep and the back of my throat is raw from the apneas.

3. I don't love it. Sometimes, I get tangled in the hose and it wakes me up. I've even pulled the machine off my nightstand.

4. The inconvenience of #3 doesn't outweigh the benefits. I've even had to check into a hotel when my house lost power simply to get electricity for it to work. (Got an uninterruptible power supply to fix this need.)

Life changing.
Posted by tigersaint74
Poopoo, Hawaii
Member since Feb 2007
667 posts
Posted on 9/29/22 at 4:24 pm to
Has anyone encountered an issue where they were diagnosed with sleep apnea years before and never used their CPAP? Then, the daily sleepiness had gotten so bad to the point where you have no motivation to do anything and you feel very lazy and possibly depressed? That's where I'm at right now. I started using my CPAP again several days ago but not feeling any different yet. I know it can sometimes take a while to start feeling better but I'm wondering if what I am going through is sleep apnea related or depression.
Posted by LSU316
Rice and Easy Baby!!!
Member since Nov 2007
29311 posts
Posted on 9/29/22 at 4:28 pm to


Once I started using this one as opposed to the one that went over the bridge of my nose it was a game changer from a mask comfort standpoint.
Posted by Big Scrub TX
Member since Dec 2013
33446 posts
Posted on 9/29/22 at 4:31 pm to
quote:

Tried 2 nasal pillows but couldn’t get used to them as I typically breathe through my mouth due to multiple sinus issues.

Have tried the full mask for two nights now and can’t get used to it. I don’t think the fit is right as it leaked unless I have it so tight it feels like a strong midget is smothering me.
Have you tried taping or not?
Posted by Big Scrub TX
Member since Dec 2013
33446 posts
Posted on 9/29/22 at 4:32 pm to
quote:

I was having 92 apneas an hour. Yeah, pretty bad. I am also a mouth breather so I have the Bane, fighter pilot face mask. The first night, I took it off in the middle of the night without realizing it. The second night, I left it on and noticed a difference immediately. I haven't missed a night since. Game changer.
Have you ever tried simple taping?
Posted by Salamander_Wilson
Member since Jul 2015
7689 posts
Posted on 9/29/22 at 8:53 pm to
I haven’t. I think that would give me too much anxiety to sleep.

I find it very hard to breathe through my nose with out consciously thinking about it.
Posted by Bard
Definitely NOT an admin
Member since Oct 2008
51679 posts
Posted on 9/29/22 at 8:58 pm to
quote:

I was having 92 apneas an hour.


JEEEEBUS!!! I thought I was bad at 70. I feel ya though. When you're having an apnea episode just under every minute for the night, it takes a massive toll.
Posted by 257WBY
Member since Feb 2014
5603 posts
Posted on 9/29/22 at 9:22 pm to
For those dreading the test, my clinic set me up with a study at home. I had to connect a couple of things to my chest. More comfortable than sleeping in a lab.
Posted by tgrbaitn08
Member since Dec 2007
146214 posts
Posted on 9/29/22 at 9:27 pm to
quote:

For those dreading the test, my clinic set me up with a study at home. I had to connect a couple of things to my chest. More comfortable than sleeping in a lab.


Yep I did the home sleep test twice. Much better than sleeping in a lab
Posted by ladygoodman
under there
Member since Oct 2016
371 posts
Posted on 9/29/22 at 9:59 pm to
TapPap

This is what I use. It looks insane, but really works. I did well with the full face mask, but did not like the marks on my face in the morning or that the strap around my head messed up my hair. It also leaked sometimes, which was disruptive and left me with dry eye. Now I can totally sleep on my side and move around freely. The pillows don't budge. It ensures my mouth stays closed. Kind of a game changer.

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