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Message
re: Alzheimers: Has anyone experienced it with a parent and willing to share experiences?
Posted on 7/16/20 at 8:55 pm to ShermanTxTiger
Posted on 7/16/20 at 8:55 pm to ShermanTxTiger
quote:
I am struggling with "going along" like -"I am sure they will pay you in a couple of weeks". As opposed to "You don't work anymore dad".
My father passed 2 years ago with Alzheimers and I wish I would have learned to give him the most comforting answer I could much earlier than I did. Nothing is to be gained by getting him agitated.
Posted on 7/16/20 at 9:00 pm to ShermanTxTiger
My Father had it. One thing I can tell you for sure, do not waste your time trying to drag him back into your reality. Humor him as best as you can and treasure the moments you have left. Share old photos and talk about good times you shared in the past. Oh, and don't be hesitant to get some professional care-giving. You and your mom and sister are not professionals. Best of luck to you and your family.
Posted on 7/16/20 at 9:03 pm to ShermanTxTiger
Both grandmothers. My mom did the heavy lifting For both. It’s hard to see.. I’m sorry to hear your shitty news. It’s a terrible fkn disease.
This post was edited on 7/16/20 at 9:03 pm
Posted on 7/16/20 at 9:03 pm to ShermanTxTiger
Grandma. It was scary
Posted on 7/16/20 at 9:10 pm to ShermanTxTiger
I’m so sorry your father has this horrible disease. I read the entire thread and can relate to everyone’s experience. My Dad died in ‘99 at the age of 75, he had Alzheimer’s for about 8 years. The other posters have given you good advise based on their experiences with their loved ones. I can only emphasize to see that your Mom is cared for and gets relief or she will burn out. My Dad was a walker/wander, was hell on my Mother. There were two instances where my Dad was in the here and now and knew who I was and spoke to me as his daughter. It was only a flash but for the first time in years I had my Dad back. I cherish those two moments. I pray for you and your family, it’s going to get rough, just go with the flow.
Posted on 7/16/20 at 9:18 pm to Pussykat
I've been a reader for 13 years on this site and though I don't post much I do lurk on way too many threads.
The OT and the poli board can be an absolute cesspool of cynicism and stupidity on a good day, but I must say this thread of several pages of earnest advice and people sharing their stories with nary a shitepost to be found is probably the nicest I've seen on here...maybe ever.
Hope the OP gets some comfort from others and wishing you all the best.
The OT and the poli board can be an absolute cesspool of cynicism and stupidity on a good day, but I must say this thread of several pages of earnest advice and people sharing their stories with nary a shitepost to be found is probably the nicest I've seen on here...maybe ever.
Hope the OP gets some comfort from others and wishing you all the best.
Posted on 7/16/20 at 9:36 pm to ShermanTxTiger
quote:
My mom is getting pretty tired of it and seems to be losing control (not physically, just mentally).
My Mom had early onset. Your dad is to the point your mom can’t care for him full time. You should look at hiring a sitter for at least the day time to help out. We did that for about 2 years before we had to put her in a NH. It gets easier on them and harder in the family.
This post was edited on 7/16/20 at 9:39 pm
Posted on 7/17/20 at 8:19 am to ShermanTxTiger
My dad passed away in January from this, shortly after having to put him in a memory care facility. He fell and broke his hip the Thursday before Christmas. I believe he & my stepmom had a pact that neither one would allow that and we had to get the court system involved (years).
He was still trying to drive and would leave the house saying he was going home. Got a speeding ticket for doing 88 on a posted 60 two lane highway.
Walked into his shed to be hit in the face with gas fumes. I found two open top buckets of gasoline that apparently, according to my SM, he had picked up gas the day before for the riding lawn mower.
Lots of imaginary visitors & people w/o names he wanted to find & help. Sometimes would introduce himself to me.
He was a good man of faith and we knew this wasn't him. For all he couldn't remember, up until the last months had a good recall of his childhood. We started singing old gospel songs, he would join right in and not miss a beat.
So glad we didn't have to go thru a Covid-19 funeral and having a packed church for an 89 year old man was a testament to the man he was. Miss you Dad.
He was still trying to drive and would leave the house saying he was going home. Got a speeding ticket for doing 88 on a posted 60 two lane highway.
Walked into his shed to be hit in the face with gas fumes. I found two open top buckets of gasoline that apparently, according to my SM, he had picked up gas the day before for the riding lawn mower.
Lots of imaginary visitors & people w/o names he wanted to find & help. Sometimes would introduce himself to me.
He was a good man of faith and we knew this wasn't him. For all he couldn't remember, up until the last months had a good recall of his childhood. We started singing old gospel songs, he would join right in and not miss a beat.
So glad we didn't have to go thru a Covid-19 funeral and having a packed church for an 89 year old man was a testament to the man he was. Miss you Dad.
This post was edited on 7/17/20 at 8:34 am
Posted on 7/17/20 at 8:26 am to mingoswamp
quote:
So glad we didn't have to go thru a Covid-19 funeral and having a packed church for an 89 year old man was a testament to the man he was. Miss you Dad.
This hit me hard in the feels, damn. Sorry for your loss.
Posted on 7/17/20 at 8:26 am to mingoswamp
My mom had it. It got to the point we had no choice but to put her in a nursing home. It was just me and my wife at the time to take care of her. Brothers and sisters lived far away. At that time I came down with heart failure and there was no way I or my wife could handle mom anymore. Sad part, I don't tell my mom that I was sick. 

Posted on 7/17/20 at 8:34 am to ShermanTxTiger
I've had two grandparents go through it before they died.
It's tough to watch.
But it amazes me how the mind works, even in that state. Repeating the same story over and over, adding new details here and there. Some past event gets "stuck" in their minds and they harp on it for a while, and maybe even combine events during their narrative.
Good luck to you. Patience is tough.
It's tough to watch.
But it amazes me how the mind works, even in that state. Repeating the same story over and over, adding new details here and there. Some past event gets "stuck" in their minds and they harp on it for a while, and maybe even combine events during their narrative.
Good luck to you. Patience is tough.
Posted on 7/17/20 at 8:37 am to ShermanTxTiger
I am sorry. Praying for your family. It fricking sucks. Horrible disease. Realize what your dad is going through and try to stay patient. Don’t get angry with him. It will be easy to do so and unfortunately, it will just get worse.
Eventually as the sense of confusion increases, your dad may start having a lot of anxiety and anger as he loses more and more of himself. Try to keep engaging him and reminding him that he’s loved.
Piece of advice. Get a big dry erase board that your family can write notes on to remind him what’s going on. This helped my grandmother’s anxiety when she got bad. She would at least be able to read it when my grandfather was outside mowing the lawn and she didn’t know why was going on or to remind her that she had already eaten lunch or taken her pills...etc.
Eventually as the sense of confusion increases, your dad may start having a lot of anxiety and anger as he loses more and more of himself. Try to keep engaging him and reminding him that he’s loved.
Piece of advice. Get a big dry erase board that your family can write notes on to remind him what’s going on. This helped my grandmother’s anxiety when she got bad. She would at least be able to read it when my grandfather was outside mowing the lawn and she didn’t know why was going on or to remind her that she had already eaten lunch or taken her pills...etc.
This post was edited on 7/17/20 at 8:43 am
Posted on 7/17/20 at 8:46 am to ShermanTxTiger
i experienced it with my paw paw, and now experiencing it with my wifes paw paw.
terrible disease for everyone involved. Both of them had to have all their guns taken away b/c they threatened to kill themselves. After experiencing it with them, if i could take it back, i'd let them do it. I already told my wife, if this happens to me, i do not want to go on living for a few years like this. just put me out of my misery and everyone else's.
It's fine at first when it's just the repetitive questions, but there will come a point where you have lost your loved one mentally, and you don't accept that you've lost them until well after they've been lost. At that point, the person that was your loved one, is just a lost soul that's scared and miserable and wants to die. that is the worst part about it, when you look in their eyes and you see the confusion and fear. It's like you can tell they are there, and not there, at the same time.
I am sorry for being so morbid about it, but those are my feelings about this awful disease.
terrible disease for everyone involved. Both of them had to have all their guns taken away b/c they threatened to kill themselves. After experiencing it with them, if i could take it back, i'd let them do it. I already told my wife, if this happens to me, i do not want to go on living for a few years like this. just put me out of my misery and everyone else's.
It's fine at first when it's just the repetitive questions, but there will come a point where you have lost your loved one mentally, and you don't accept that you've lost them until well after they've been lost. At that point, the person that was your loved one, is just a lost soul that's scared and miserable and wants to die. that is the worst part about it, when you look in their eyes and you see the confusion and fear. It's like you can tell they are there, and not there, at the same time.
I am sorry for being so morbid about it, but those are my feelings about this awful disease.
Posted on 7/17/20 at 9:03 am to ShermanTxTiger
Grandma had it and passed last year from it.
Father In Law was diagnosed with it about two years ago and it’s getting progressively worse.
It’s very tough man, FIL is at the stage where he forgets words or stops mid sentence. Grandma got diagnosed and passed within a 3 year timeframe, super aggressive. It’s hard to watch FIL get frustrated with simply trying to hold a conversation.
I was raised by my grandma and lived with her most of my young life. I’m not at all ashamed to say that the day I was speaking to my grandma and she asked who I was I cried like a baby for hours.
After watching my grandma pass slowly, I had a very serious conversation with my wife saying if I ever forget who she is to understand that it’s time to let me go and to know that I lived a fantastic life but can’t live without my memories. Prayers for you and your family man, it’s very tough.
Father In Law was diagnosed with it about two years ago and it’s getting progressively worse.
It’s very tough man, FIL is at the stage where he forgets words or stops mid sentence. Grandma got diagnosed and passed within a 3 year timeframe, super aggressive. It’s hard to watch FIL get frustrated with simply trying to hold a conversation.
I was raised by my grandma and lived with her most of my young life. I’m not at all ashamed to say that the day I was speaking to my grandma and she asked who I was I cried like a baby for hours.
After watching my grandma pass slowly, I had a very serious conversation with my wife saying if I ever forget who she is to understand that it’s time to let me go and to know that I lived a fantastic life but can’t live without my memories. Prayers for you and your family man, it’s very tough.
Posted on 7/17/20 at 9:03 am to ShermanTxTiger
Dad had it.
In the end, he didn't remember what the next room looked like. He would leave his bedroom to see if he could find the kitchen.
Then he contracted pneumonia. The hospital wouldn't admit him because of covid.
It continued to worsen.
Finally a wing was reopened for non- covid patients and he was admitted.
My mother watched Dad die.
His sons were not allowed to be with him.
He was denied a funeral Mass because covid closed his church.
He was denied a military honor guard because of covid.
His friends and most of his extended family did not attend his graveside service because of covid.
Eternal light shine upon you Daddy.
In the end, he didn't remember what the next room looked like. He would leave his bedroom to see if he could find the kitchen.
Then he contracted pneumonia. The hospital wouldn't admit him because of covid.
It continued to worsen.
Finally a wing was reopened for non- covid patients and he was admitted.
My mother watched Dad die.
His sons were not allowed to be with him.
He was denied a funeral Mass because covid closed his church.
He was denied a military honor guard because of covid.
His friends and most of his extended family did not attend his graveside service because of covid.
Eternal light shine upon you Daddy.
Posted on 7/17/20 at 9:11 am to TeddyPadillac
One of the biggest problems my wife & I had with her mother is that she started getting up in the middle of the night & going outdoors. Luckily, the family home was on several acres so she never got close to a street. The other was, early on before we understood what was going on, when riding in a car, she would start to open the car door to get out while the car was moving. The best advice I've heard here is to get in the same boat as your loved one, don't try to take her back to yours.
Posted on 7/17/20 at 9:13 am to ShermanTxTiger
Alzheimer’s is awful. Watching a love one slowly deteriorate hurts. The end is especially the hardest when the doctors tell you there is nothing else they can do. All you can do is make sure you love them and enjoy the time with them.
Posted on 7/17/20 at 9:30 am to ShermanTxTiger
Brace yourself , dad was diagnosed at 55 . 5 years later he was bedridden . After 10 years he passed . I would get depressed after visits to see him . He was a proud man and played on the 58 championship team . I get upset every fathers day and miss him dearly . I feel anyone who suffers from alzheimers goes straight to heaven . Hang in there and remember some of the things he says or does are not him .
Posted on 7/17/20 at 9:38 am to ShermanTxTiger
Man we need to find a cure for this soon. This is easily the most terrifying common disease for me. I never want to experience that pain and having to do this. So sorry you have to.
Posted on 7/17/20 at 9:41 am to beulahland
I am so sorry for your loss
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