re: Things you think would be worse than death

Right now I am watching my mom fighting the end stages of ALS. The only thing she can do... literally.. is move her eyes and let out a grunt. Her mind is still good, however; everything that depends on muscles to do, when her brain tells it to do something, has no muscle or very little muscle. Its actually to the point where only her heart, lungs and other organs just hasn't gotten weak enough yet.

Anyone remember the Metallica video for their song One? If I recall I think parts of the video took parts of a movie in which a solider, on the battle field, ended up loosing all of his limbs. He lost his ability to talk and and could not communicate in any form.. So he was just alive unable to communicate anything. That is worse than death. I personally believe that when we pass away we just no longer exist... like before we were born. Hopefully I am wrong.. but you just no longer exist... Everything keeps moving forward and you are just no longer there. Being here, while things move forward and unable to do anything such as communicate.. That is a form of hell to me.

And this was years ago but someone close to my family lost a daughter to cancer. Her daughter was in her late 20s at the time, had been married for just over a year when she found out she had cancer. She went through treatment and at the time it seemed like it was gone, then within months it appeared again and was growing at a faster rate. She went through treatment again and the second time it made her a lot sicker to the point it killed her..

I remember her mom saying.. before she passed away, but was getting really sick that she truly believed we experience hell on Earth. That there are some things no one should have to experience, yet we do.. Maybe or maybe not, but yeah there are a few things that I believe are worse than death.

Getting stuck on a Carnival Cruise

Killing your unborn baby.

quote:

---

Fibrodysplasia ossificans progressiva

---

Is that Stoneman Syndrome? There’s only like 100 people in the entire world who have it. Painful disease though

quote:

---

Life in prison

---

Legit probably the only thing that’s worse than becoming sick with a terminal ailment or losing a loved one

quote:

---

Right now I am watching my mom fighting the end stages of ALS.

---

1.) I’m so sorry you and your mom are experiencing this nightmare…

And 2.) I would’ve said “probably end stages of ALS” a few months ago, before I experienced what I posted on page 1.

But watching someone with ALS, starting to realize it’s now effecting the way you breathe, and it’s almost like you forget how, and can’t relax, rest, or experience any peace, because literally the most necessary thing for our survival that you know how to do automatically, is becoming something you now have very little control over. It’s literal torture. Like water boarding with no water.

Bama fan

quote:

---

Almost 15 years in the medical field now, and I’ve seen so many unfortunate events…… but I can still think of nothing worse than this.

---

At least he’s 84. As a quadriplegic, he’s not going to life much longer.

Imagine that happening to someone at 20.

quote:

---

Life in prison that starts when you’re under 30.

---

I know of a guy who committed his crime at 18, and has been serving life with no possibility of parole for around 35 years.

quote:

---

At least he’s 84. As a quadriplegic, he’s not going to life much longer. Imagine that happening to someone at 20.

---

I mean yeah, it sucks for anybody. But just the moment he’s living in, he barely sleeps, and anytime it’s just me and him, he’s asking “why?” And I obviously dance around it and say nothing but positive reinforcing things, and he just keeps asking “why can’t I just end this?” He always starts crying, and like a coward, I always tap out and say some shite like, “it’s ok buddy, you have so many people that love you!” Then I hurry out of the room to let the family know they can go back in…. So that he can continue to fake smile for them, and I don’t have to focus on HIS misery.

But he’s present in this state like 20 hours a day. He barely sleeps, and gets very few pain or anxiety meds, definitely not anything to pacify him or distract him from the prison he’s in.

Idk, I’ve seen this a million times, from 18 year olds to him, and this one hits me the hardest. Just seems like he lived a great life, worked so hard taking care of everyone, did everything damn near perfect… and his final days are him being locked inside of his useless body, and totally aware of everything. He could live like this for years.