re: It angers me how some kids are dealt a bad hand in life

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What must it be like to never get to run or climb trees or have a normal social life like most kids? I can't even fathom it

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Adults can cope better than kids too. A kid in a wheel chair will turn him into a soldier before he deserves to be. (in a metaphorical sense).

Breaks my heart.

Look.up the word compassion.

Be healed.

Love more. And really.

Do you have a life?

Along those lines, there was a moving story in NOLA.com recently about an OBGYN who accompanied his non verbal autistic son to every class at Tulane since 2014. Son just graduated from Tulane. Great read and impressive accomplishments by dad and son.

LINK

disabled children are all part of god's plan, bro

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I stopped for a second and wondered how much effort and time it must take to care for a child that is permanently disabled.

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I agree. People with special needs family members of whatever type have a burden on them that I don't fully understand or appreciate.

So, my son has a genetic disorder and uses a wheelchair for longer distances. He has autism (high functioning) and can theoretically die from a cold (though he is as healthy as possible right now). And yeah, sometimes it's sad. Sometimes when other moms get on FB and complain about all the baseball practices and driving to this game or birthday party or school trip, it really stings. But man I wouldn't trade this kid for the whole world. He is a wonder of a human being that I somehow was given the privilege of being his mother. He is kind and loving and smart and hilarious and thoughtful and deep and just an exceptional person. That wheelchair is just how he gets about. I don't know why this had to happen, but more often than not, I am so grateful for the health he has and the joy he brings to this world.

Having a disabled kid is to have a window into a different world. Having other kids who aren't, means balancing it all out.

You don't think of the extra time, work, and effort that go into things, because to some extent you are just conditioned to it; its not an inconvenience, its how life has always worked with a child, so it becomes incorporated with the work that comes with another child.

The difficult part is trying to ensure that their disability doesn't define their opportunity-- or impair that of their siblings. Time, effort, money? My disabled son takes up disproportionate amounts of each. Attention, excitement, interactivity, and the ability to try new things without care? My daughters get those disproportionately.

I'd love to take my boy to a ball game. We tried a few times, when he was small, but crowds are just a no-go. Same with movie theaters, or really any public place (or private gathering) with more than about a classroom full of people.

My girls? They love those things. I had to explain to my Boy's two sisters a few years ago, why Bubba doesn't go with us to some things, and stays with Mom, or why he gets to do more interesting and awesome stuff we can bring to him, whereas they have less of that. Its not a conversation you want to have with a 6 year old.

Why does Bubba go to a different school? Why does Bubba go to the doctor so often? Dad, I wish Bubba was here.

Those are the moments that hit you, as a parent. Those, and the quiet moments late at night, when you can't sleep, and wonder what will become of your child in the years after you pass on, and aren't there to care for them anymore.

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It angers me this happens to children across the US every year.

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Some day very soon, you'll be able to make your baby like a pot of soup. Add whatever ingredients into the DNA helix you desire, mix well, and wait 36-40 weeks.