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Posted by
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Big Day for us (Family related and kinda long)
Posted by ShermanTxTiger on 9/7/16 at 7:17 pm1953
Well 15 years ago we found out our last daughter of 3 had cystic fibrosis and the disease had advanced to damage her lungs at the age of 3 months. We were devastated. The long term outlook was pretty grim. The average life expectancy was 35 35 years. Our case was not normal though. We fought the disease pretty hard the first year and then caught a break. Things went pretty well outside of meds and treatments. No hospitalizations until she hit 12. Then we started sinus infections due to CF. 3 sinus clean outs (outpatient)Last August we were told a drug we had been waiting on became available. After 1 year on the drug her sinus issues have stopped. Her lung function went from 72% of normal to 101%. (It has stayed that way for 9 months now) Our CF doctor told us today. "You have normal lung function, no health issues and nothing I can tell you"
Folks I know the game last Saturday was hard to swallow. We were all there. But today.... I am a happy happy man. Thank God for science, people who give to worthy causes and God answering prayers.....
No pics of said daughter will be shared....LOL
Folks I know the game last Saturday was hard to swallow. We were all there. But today.... I am a happy happy man. Thank God for science, people who give to worthy causes and God answering prayers.....
No pics of said daughter will be shared....LOL
re: Big Day for us (Family related and kinda long)Posted by OysterPoBoy on 9/7/16 at 7:21 pm to ShermanTxTiger
Awesome.
re: Big Day for us (Family related and kinda long)Posted by OWLFAN86 on 9/7/16 at 7:21 pm to ShermanTxTiger
quote:tempted to make a joke about your daughter and swallowing,, but frick that
Folks I know the game last Saturday was hard to swallow.
THIS IS GREAT NEWS
re: Big Day for us (Family related and kinda long)Posted by Stexas on 9/7/16 at 7:22 pm to ShermanTxTiger
quote:
today.... I am a happy happy man. Thank God for science, people who give to worthy causes and God answering prayers.....
Great story! and
re: Big Day for us (Family related and kinda long)Posted by MBclass83 on 9/7/16 at 7:22 pm to ShermanTxTiger
That's great news. Enjoy.
re: Big Day for us (Family related and kinda long)Posted by oVo on 9/7/16 at 7:23 pm to ShermanTxTiger
quote:
No pics of said daughter will be shared....LOL
Pics of mother will suffice.
re: Big Day for us (Family related and kinda long)Posted by OweO on 9/7/16 at 7:23 pm to ShermanTxTiger
Thats good to hear man..
re: Big Day for us (Family related and kinda long)Posted by Teddy Ruxpin on 9/7/16 at 7:23 pm to ShermanTxTiger
Great news
How are things progressing for CF? Are there updated life expectancies? I remember when Frankie from Real World died from it at 25 years old 10 years ago, so I'm curious where it stands now.
How are things progressing for CF? Are there updated life expectancies? I remember when Frankie from Real World died from it at 25 years old 10 years ago, so I'm curious where it stands now.
This post was edited on 9/7 at 7:24 pm
re: Big Day for us (Family related and kinda long)Posted by CajunSoldier225 on 9/7/16 at 7:24 pm to ShermanTxTiger
quote:
ShermanTxTiger
Very happy for you and your family and your daughter.
re: Big Day for us (Family related and kinda long)Posted by NewIberiaHaircut on 9/7/16 at 7:26 pm to ShermanTxTiger
Enjoy every second with her! That's an awesome story!
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re: Big Day for us (Family related and kinda long)Posted by VermilionTiger on 9/7/16 at 7:26 pm to ShermanTxTiger
Way to go and happy for your family
re: Big Day for us (Family related and kinda long)Posted by wickowick on 9/7/16 at 7:26 pm to ShermanTxTiger
re: Big Day for us (Family related and kinda long)Posted by HoustonChick86 on 9/7/16 at 7:27 pm to ShermanTxTiger
Great news!!!
re: Big Day for us (Family related and kinda long)Posted by UncleRuckus on 9/7/16 at 7:28 pm to ShermanTxTiger
That's awesome
re: Big Day for us (Family related and kinda long)Posted by Lsupimp on 9/7/16 at 7:29 pm to ShermanTxTiger
I got chills , man.
re: Big Day for us (Family related and kinda long)Posted by TypoKnig on 9/7/16 at 7:30 pm to ShermanTxTiger
re: Big Day for us (Family related and kinda long)Posted by ShermanTxTiger on 9/7/16 at 7:36 pm to Teddy Ruxpin
quote:
How are things progressing for CF? Are there updated life expectancies? I remember when Frankie from Real World died from it at 25 years old 10 years ago, so I'm curious where it stands now.
It was 35 when she was diagnosed. I haven't followed it since. The key is to stop the progression of the disease. It destroys the lungs, pancreas and any mucus dependent body part. If you stop the disease progression the person can "in theory" live as long as most people.
I just checked and the life expectancy moved up to 40. Thanks for asking.
re: Big Day for us (Family related and kinda long)Posted by GeauxColonels on 9/7/16 at 7:37 pm to ShermanTxTiger
Awesome news. Definitely puts things in perspective. Here's to many more years of good health for your little lady.
re: Big Day for us (Family related and kinda long)Posted by kywildcatfanone on 9/7/16 at 7:37 pm to ShermanTxTiger
quote:
Thank God for science, people who give to worthy causes and God answering prayers.....
Absolutely. God receives the glory for this, and congratulations to you and your family.
re: Big Day for us (Family related and kinda long)Posted by TIGER2 on 9/7/16 at 7:39 pm to ShermanTxTiger
Very nice.
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