Anyone have experience w Glioblastoma? Personal or professional?

This is usually a very bad diagnosis...however, I had a close friend who lasted 12 years with 2 major surgeries...her last year was very tough...but so was she. She was a big outlier, but it can happen.
God bless..

Had a coworker diagnosed with it. Went in with stroke symptoms. She lasted 14 months.

No personal experience, and sorry your loved one is going through it.

Watched a really interesting 60mins segment a while back where doctors at Duke Med Ctr inject a genetically modified version of the polio virus into the glioblastoma tumors and the polio essentially eats the tumor. Lengthens the survival times and some had remarkable results. Pretty amazing- there are numerous stories online but it might be a good resource worth checking into, if they’re even still doing it- here is a link-
Duke study

Really really sorry. My grandmother had it. Took her in two months. Tried surgery but the surgeon said once he got in there he regretted it. Didnt extend her life. The only good thing is it didn't seem to be painful. Never needed any pain meds There were some personality changes and she eventually lost her ability to speak, although she could understand what people were saying. She eventually fell into a coma and slipped away after a few days. This was several years ago so hopefully there have been some advances.

Say what you want to say and do what you want to do now while you still can. Don't wait. I wish peace and comfort for all of you.

I treat them frequently. Is there anything particular you want to know? Best thing you can do is help them through treatment and please don't let them drive

Father passed from glioblastoma on 27 Feb 2020. It was 2 weeks after the birth of his last grandchild, my daughter. He was 67 at diagnosis and made it 19 months. Tumor was in an inoperable location. Chemo, radiation, and anti-angiogenic infusions. It was brutal, and nearly killed my mother too. Do everything you can to take care of the principal caregiver, because they probably won’t take care of themselves. They had been together since age 15 and had been married since ‘72.

Luckily he never experienced pain or personality change. He had mass confusion and rapidly progressing paralysis. Honestly, I can’t imagine something much worse. Location of tumor (particularly whether or not resection is possible) seems key, but prognosis is nearly always quite poor. After watching what he went through, I would refuse all treatment if I was in his exact situation. Your loved one should listen to the docs, look for clinical studies, etc but please prepare for worst.

I’m still in a fog from it all and expect I will be for a long time. The worst part is the heartache for my mother and never knowing when the last time I truly talked to “him” was. I’ll never be the same, and I miss him so much. I can’t believe he went out like this, it wasn’t fair to watch such an accomplished smart-arse not be able to find the words. He was an Air Force pilot and seemed to only have nouns in his vocabulary that were related to the C-5 galaxy, and hurricane hunting in the C-130. I drive the long way home everyday with my 4 year old son so we can pass a billboard with a C-5 on it, and talk about Papa.

Sorry for the rambling. Please let me know if you want to get in touch and I will help however I can.

I don’t want to sound like there isn’t any hope but it is a very aggressive type. Enjoy your time with your loved one and do everything you can with them now.

My former boss’s wife was diagnosed and made it about 2 months. This was 12 years ago. It was pretty sad. But there are different types with different outcomes. Best of luck.

Seen less than a year to probably about 5 years it can be a mixed bag