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Bone marrow transplant w/chemo - anyone ever done this or know anyone who has?
Posted on 11/3/21 at 11:43 am
Posted on 11/3/21 at 11:43 am
Got the details of my 2nd regimen of chemo last week from my doc, basically mapped out a 2 week hospital stay in a sterile room locked away from the world - no visitors allowed at all. On the first day they remove bone marrow, then for five days they'll nuke my body with chemo drugs to completely destroy my immune system and the tumors, then inject clean bone marrow after it's over. Once the white blood cell counts come back up and to a decent level they'll discharge me from the hospital but I'll still have to stay at home away from the public for several more weeks, probably into 2022. Thanksgiving will likely be spent in the hospital which sucks because I spent my birthday in a chemo chair already.
I've made a few posts on other sites looking for people who can give me some pointers and what to expect physically and didn't get much in the way of recent experience. Friend of a friend did it 15 years ago and said it's pure misery - that's pretty much all I've gotten. He's still alive and said he's in good health, so that's a good sign. However he didn't know anything about advancements in the procedure or whatever.
Not gonna lie - I'm scared shitless. Yes I know they have medicine for that too. My one and only hospital stay was when this cancer bit first started at the beginning of the year and that was for 2 nights so they could draw blood and run tests. This is going to be waaaaay above that in terms of severity.
TIA for any info.
I've made a few posts on other sites looking for people who can give me some pointers and what to expect physically and didn't get much in the way of recent experience. Friend of a friend did it 15 years ago and said it's pure misery - that's pretty much all I've gotten. He's still alive and said he's in good health, so that's a good sign. However he didn't know anything about advancements in the procedure or whatever.
Not gonna lie - I'm scared shitless. Yes I know they have medicine for that too. My one and only hospital stay was when this cancer bit first started at the beginning of the year and that was for 2 nights so they could draw blood and run tests. This is going to be waaaaay above that in terms of severity.
TIA for any info.
Posted on 11/3/21 at 11:46 am to Horsemeat
I have no experience or advice to offer, but good luck and godspeed Horsemeat!
Posted on 11/3/21 at 11:46 am to Horsemeat
The one person I know who's had a bone marrow transplant took place 20 years ago. But, he's still cancer free now.
Posted on 11/3/21 at 11:47 am to Horsemeat
Man I don’t have any answers but your in my thoughts pretty regularly. Keep fighting
Posted on 11/3/21 at 11:49 am to Horsemeat
quote:I have a friend who had basically the same results on the same timeline. He has passed away now but from something completely unrelated to his cancer. They said the bone marrow saved his life and he got another 12 years before something else got him.
Friend of a friend did it 15 years ago and said it's pure misery - that's pretty much all I've gotten. He's still alive and said he's in good health, so that's a good sign.
Posted on 11/3/21 at 11:49 am to Horsemeat
They're trying therapy with me first. If that don't work, we will look at transplant
This shite sucks.
This shite sucks.
Posted on 11/3/21 at 11:52 am to Horsemeat
My dad has had a stem cell transplant twice for multiple myeloma. Once in his late 60s and again maybe 5-7 years later.
It was tough but he's tough as well. He'll be 79 in a few months.
It was tough but he's tough as well. He'll be 79 in a few months.
This post was edited on 11/3/21 at 11:56 am
Posted on 11/3/21 at 11:54 am to Horsemeat
Best of luck to you
My only experience was as the donor, we did stem cells first & as far as I have been told the recipient is doing well
My only experience was as the donor, we did stem cells first & as far as I have been told the recipient is doing well
Posted on 11/3/21 at 12:00 pm to Horsemeat
Sending you all the prayers, love and well wishes for a great outcome. May God bless you.
Posted on 11/3/21 at 12:03 pm to Horsemeat
no helpful experience or advice with this but sending you all the best vibes for healing and recovery
is there a PO Box we can send cards to for you? I know you said you were otherwise set, but I'd love to send you some snail mail if so!
is there a PO Box we can send cards to for you? I know you said you were otherwise set, but I'd love to send you some snail mail if so!
Posted on 11/3/21 at 12:07 pm to Horsemeat
did not work for my sis. hopefully you have better results.
Posted on 11/3/21 at 12:13 pm to Horsemeat
Chemo is ridiculous. Just staying positive is huge. If you are really bored I quite like reading the Vedas. I especially like Tat Tvam Asi. I can't believe medicine hasn't come up with anything better than the that happenstance from WWI that resulted in them coming up with chemo therapy.
Anyways there's some new theories coming out with cancer being caused by parasites. There was one lad that couldn't shake his cancer no matter what doctors he went to forever then he took his dog antiparasite and cured himself. The germ theory is getting holes knocked into it so you do what you want with this stuff.
Another thing is cancer is heavily fueled by glucose. If you switch to a ketosis diet that should help quite a bit. Fasting is also supposed to help with such things, which coincidentally you go into ketosis when fasting. So at the very least, stay away from sugar, grains, and the very sugary fruits.
Anyways there's some new theories coming out with cancer being caused by parasites. There was one lad that couldn't shake his cancer no matter what doctors he went to forever then he took his dog antiparasite and cured himself. The germ theory is getting holes knocked into it so you do what you want with this stuff.
Another thing is cancer is heavily fueled by glucose. If you switch to a ketosis diet that should help quite a bit. Fasting is also supposed to help with such things, which coincidentally you go into ketosis when fasting. So at the very least, stay away from sugar, grains, and the very sugary fruits.
Posted on 11/3/21 at 12:15 pm to Horsemeat
Godspeed baw.
Cancer sucks arse.
Cancer sucks arse.
Posted on 11/3/21 at 1:16 pm to Horsemeat
Please ask your doctors what you should expect.
Many years ago I defended a case of a woman who sought an autologous bone marrow transplant with high dose chemotherapy. I do not know whether this procedure is similar to the one you will undergo. While her oncologist was on the stand explaining the procedure and the aftermath/recovery, I looked over at the woman and she appeared to be in shock. She had clearly not heard all of the details of the treatment before.
Find out as much as possible up front from your doctors. My best to you and know you are in my prayers. God Bless and kick arse!
Many years ago I defended a case of a woman who sought an autologous bone marrow transplant with high dose chemotherapy. I do not know whether this procedure is similar to the one you will undergo. While her oncologist was on the stand explaining the procedure and the aftermath/recovery, I looked over at the woman and she appeared to be in shock. She had clearly not heard all of the details of the treatment before.
Find out as much as possible up front from your doctors. My best to you and know you are in my prayers. God Bless and kick arse!
Posted on 11/3/21 at 1:33 pm to Horsemeat
My mom’s brother and sister both went through chemo and bone marrow transplants. both had leukemia
My uncle went through it first back in the early 90s. One of my aunts was a perfect match. He took his initial chemo here in BR then went to MD Anderson for the transplant. Think he was in a sterile room (very small) for about a month. He still says it was the roughest period of his life. Had shingles all over his body. Does not go bad for check ups because he doesn’t want to make choice to go through it again. Says he wouldn’t. After bone marrow transplant he now has a different blood type
Aunt went though the same thing in mid 2000’s. But her body rejected the bone marrow and her organs shut down and she passed away.
My uncle went through it first back in the early 90s. One of my aunts was a perfect match. He took his initial chemo here in BR then went to MD Anderson for the transplant. Think he was in a sterile room (very small) for about a month. He still says it was the roughest period of his life. Had shingles all over his body. Does not go bad for check ups because he doesn’t want to make choice to go through it again. Says he wouldn’t. After bone marrow transplant he now has a different blood type
Aunt went though the same thing in mid 2000’s. But her body rejected the bone marrow and her organs shut down and she passed away.
Posted on 11/3/21 at 2:08 pm to Horsemeat
My niece was diagnosed with T-ALL in December 2019. She finally entered remission in July 2020 and went through chemo and radiation before receiving a bone marrow transplant from her sister in August 2020. She is doing well now and seems to be very healthy.
Posted on 11/3/21 at 2:29 pm to Horsemeat
My dad did at MD Anderson about 15 years ago. Did the sterile room for a month. He had a few hiccups but overall was a great success. Medicine has changed a lot since then. Ended up succumbing to cancer a few years ago - unrelated to the bone marrow transplant and the associated disease.
Posted on 11/3/21 at 2:32 pm to Horsemeat
My father was a leukemia candidate for bone marrow transplant in the infancy of the procedure 30 years ago, had a compatible donor, but would have had to go into remission and regain sufficient health in order to do it, and did not. So I am a registered donor, and give blood and donate to related causes.
The best I can offer is to remind yourself that if other people can do it, then you can too, and that the purpose of it is to save your life and give your loved ones more time to enjoy having you with them. My grandfather had a saying that I repeat when necessary: "You gotta do what you gotta do."
If you should start a GoFundMe or similar, see if the admins will allow notice here. Otherwise, post updates when you are able.
The best I can offer is to remind yourself that if other people can do it, then you can too, and that the purpose of it is to save your life and give your loved ones more time to enjoy having you with them. My grandfather had a saying that I repeat when necessary: "You gotta do what you gotta do."
If you should start a GoFundMe or similar, see if the admins will allow notice here. Otherwise, post updates when you are able.
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