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re: What to do for family member who is experiencing cognitive decline?

Posted on 10/28/22 at 3:15 pm to
Posted by bamadzl
Member since Nov 2010
27 posts
Posted on 10/28/22 at 3:15 pm to
quote:

Sorry OP but first off.. this^^^ has to stop


This is correct. My dad was diagnosed in 2016. He was a truck driver. The day we found out he couldn't remember directions/follow traffic rules we had to take his keys. One of the most difficult things I've ever done.

To the OP. Your MIL or someone else better get a handle on the finances as soon as possible. My mom ignored me early on when I brought this up, and we are paying for it now. This disease will get expensive. I strongly recommend finding an estate attorney or financial advisor familiar with these type situations.
Posted by GetmorewithLes
UK Basketball Fan
Member since Jan 2011
22112 posts
Posted on 10/28/22 at 3:17 pm to
quote:


I don’t think confronting the guy about his cognitive issues is going to go over well.

Anyone go through something like this? Any advice?


Yes, my dad.

Based on what you described you need to take his car keys away. He is going to kill somebody. He is goi g to run a stop sign or a red light because he forgot.

My dad didnt like it but he eventually accepted it. He eventually got bad enough he would get nervous when my mom was not nearby.
Posted by GetmorewithLes
UK Basketball Fan
Member since Jan 2011
22112 posts
Posted on 10/28/22 at 3:20 pm to
quote:

To the OP. Your MIL or someone else better get a handle on the finances as soon as possible. My mom ignored me early on when I brought this up, and we are paying for it now. This disease will get expensive. I strongly recommend finding an estate attorney or financial advisor familiar with these type situations.




Forgot about this one. My mom did take over the finances and got POA for everything. The worst thing was the telemarketers that called daily trying to sell him something he would never need or just outright swindle or scam him.
Posted by BigAppleTiger
New York City
Member since Dec 2008
10906 posts
Posted on 10/28/22 at 3:22 pm to
quote:

Anyone go through something like this? Any advice?



Your situation sounds almost exactly like mine. My father was at this same brink at 75 years old. We just buried him last year at 90. He was incredibly agile and physically resilient up until he got Covid.

The hardest part was taking him out of the driver's seat in life and putting him in the passenger seat willingly. It involved cajoling, artful deception, pleading, and begging him for his cooperation.

He was also used to do things "his way".

When he started to forget directions when driving I used to follow him in his car to go across town to play cards. And then I would go and follow him home (without him seeing me- mind you).

He then started to exhibit more alarming lack of awareness- such as saying he was locked inside the car and couldn't get out when my mother would leave him in the car for five minutes to stop into a shop or grocery store.

After years of losing the small abilities, such as even taking every mail offer, prize money, or investment strategy as a serious consideration, he began to wander on foot. We got an Apple Watch for him and made sure the charge was always full and kept watch over him. Eventually doors, windows, and the front gate had to be locked at night(with a padlock even-he was strong).

Eventually he was having conversations and seeing people and things that were not of this earth, they existed somewhere in his broken mind. Throughout the night he would walk, certain he had just seen someone, or looking for the "lady who runs this house" (my mother). I was just a friendly face who he met during these episodes.

He lived well beyond capability and retained his personality if not his acumen, but it was very hard, humbling, and ultimately a joy to help shepherd him as he shepherded me, to help him walk with dignity into the dusk. As hard and upsetting as it was, I'll never regret it, and treasure that time.
Posted by bamadzl
Member since Nov 2010
27 posts
Posted on 10/28/22 at 3:25 pm to
No only for monthly bills, etc. But if they have any real assets you need to talk to someone about planning for long term care needs.

It may seem like that's in the distant future, but it comes fast. Medicare rules are something to also look into.
Posted by bamadzl
Member since Nov 2010
27 posts
Posted on 10/28/22 at 3:32 pm to
quote:

BigAppleTiger


Your story sounds so familiar it's scary. I had to install double cylinder dead bolts at my parents' house last weekend. Dad has a gps tracker provided by the Sheriff's Office through a program for dementia patients. We've had to call them a few times in the last 6 months to find him.

The toll this takes on caregivers is unfathomable. Good luck to anyone dealing with this.
Posted by BigAppleTiger
New York City
Member since Dec 2008
10906 posts
Posted on 10/28/22 at 3:58 pm to
It's a hard club to be a part of.
Posted by Lisanders88
Member since Oct 2022
250 posts
Posted on 10/28/22 at 4:03 pm to
quote:

My mother has Alzheimer's and is in a similar situation. We told her that her driver's license expired and that the DMV won't let her renew. She sees a doc for the condition and he convinced her that she has a leakage in her brain, common among people her age, and so she needs additional help because the leakage makes her confused sometimes. So far it's been manageable and she seems happy enough.

In other words, pretty much all you can do is cope with it and adjust things to keep them under watch. Our goal is to keep her out of an Alzheimer's unit.

Good luck to you and your family.


Well she should have voted red. She'd be totally healthy if so.
Posted by jchamil
Member since Nov 2009
18747 posts
Posted on 10/28/22 at 4:04 pm to
quote:

but it was very hard, humbling, and ultimately a joy to help shepherd him as he shepherded me, to help him walk with dignity into the dusk. As hard and upsetting as it was, I'll never regret it, and treasure that time.



Damn man, that sounds gut wrenching and so sweet at the same time. My dad died within 6 weeks of being diagnosed with leukemia at 49 so I missed him getting old and depending on me...I can only hope my two boys will one day not only take care of me but also put it into words like you how much that time meant to you. Sorry for your loss, but that statement you made is extremely powerful to me coming from a son
Posted by TexasTiger33
United States of America
Member since Feb 2022
14413 posts
Posted on 10/28/22 at 4:06 pm to
quote:

What to do for family member who is experiencing cognitive decline?


Firstly, God bless you and yours.

My advice, BE THERE.
Posted by BMoney
Baton Rouge
Member since Jan 2005
16744 posts
Posted on 10/28/22 at 4:22 pm to
quote:

Your situation sounds almost exactly like mine. My father was at this same brink at 75 years old. We just buried him last year at 90. He was incredibly agile and physically resilient up until he got Covid.

The hardest part was taking him out of the driver's seat in life and putting him in the passenger seat willingly. It involved cajoling, artful deception, pleading, and begging him for his cooperation.

He was also used to do things "his way".

When he started to forget directions when driving I used to follow him in his car to go across town to play cards. And then I would go and follow him home (without him seeing me- mind you).

He then started to exhibit more alarming lack of awareness- such as saying he was locked inside the car and couldn't get out when my mother would leave him in the car for five minutes to stop into a shop or grocery store.

After years of losing the small abilities, such as even taking every mail offer, prize money, or investment strategy as a serious consideration, he began to wander on foot. We got an Apple Watch for him and made sure the charge was always full and kept watch over him. Eventually doors, windows, and the front gate had to be locked at night(with a padlock even-he was strong).

Eventually he was having conversations and seeing people and things that were not of this earth, they existed somewhere in his broken mind. Throughout the night he would walk, certain he had just seen someone, or looking for the "lady who runs this house" (my mother). I was just a friendly face who he met during these episodes.

He lived well beyond capability and retained his personality if not his acumen, but it was very hard, humbling, and ultimately a joy to help shepherd him as he shepherded me, to help him walk with dignity into the dusk. As hard and upsetting as it was, I'll never regret it, and treasure that time.


This sounds all too familiar. My dad will be 78 next weekend. He's all but gone. The decline over the past year has been hard to watch. He needs help with literally everything.

He got in a wreck several years ago where he swore he had a green arrow for a left turn. Looking back, I firmly believe he was confused and in the beginning stages of dementia. I'm very glad no one was hurt. He hasn't driven since.

A year ago, he wandered away from home. Police found him 5 blocks away on his way "home." He's always wanting to go home, despite living in his current house for 25+ years. We got an Apple tag that's attached to his shoelaces so my mom can track him if he ever gets away again. He wears the same shoes all day long unless he's sleeping. Had to hide the deadbolt keys, but I don't think it matters anymore. He doesn't have the dexterity to physically put a key in a lock and turn it.

He doesn't know who I am, or who his grandchildren are. He doesn't know my brother. He barely knows who my mom is, but he knows she is his wife. I don't know the last time he called her by name though. It's just "my wife."

He sees things that aren't there. He has sensory issues to the point he's constantly washing his hands because they are dirty. He gets agitated and downright angry. Xanax has helped control that to an extent.

He's just existing now, and my mom refuses to think about putting him in a memory care facility. My brother and I have tried and tried, and she won't let go.

I don't wish this disease upon anyone. Realize that this won't get easier. It just gets more and more difficult.

Best wishes.
Posted by thundercat_3
Member since May 2016
603 posts
Posted on 10/28/22 at 4:24 pm to
quote:

The toll this takes on caregivers is unfathomable.
This is very true too. I've never seen my grandmother age faster than when dealing with this. It was like watching the life leave two people. Obviously, she wouldn't trade it because they had been married 60 years.
Posted by Thracken13
Aft Cargo Hold of Serenity
Member since Feb 2010
18530 posts
Posted on 10/28/22 at 4:28 pm to
quote:

The toll this takes on caregivers is unfathomable. Good luck to anyone dealing with this.


my mom has solo cared for my dad for the last 5 years as the situation has deteriorated - but she has never waivered from caring for him - now they moved a mile from me, so i can share some of the honor to care for him.

he did get pissed off last night because i sold his pistol - he hallucinates and there was no way i was leaving him around a gun.

he got mad at my mom, and she said talk to me cause i felt it was the right then to do - but he doesn't take the attitude with me, and he will likely forget the situation - which is both a blessing and a sad thing
Posted by Metrybaw
Member since Apr 2022
221 posts
Posted on 10/28/22 at 4:29 pm to
UAB

It's probably not treatable, but they'll give you more information
Posted by VABuckeye
NOVA
Member since Dec 2007
38283 posts
Posted on 10/28/22 at 4:34 pm to
The car keys need to be taken away and sadly I think you know. It’s a dangerous situation for him and others.
Posted by Gris Gris
OTIS!NO RULES FOR SAUCES ON STEAK!!
Member since Feb 2008
49636 posts
Posted on 10/28/22 at 5:05 pm to
quote:

The biggest issue I see in my line of work is these people not having a power of attorney or designated representative to handle their affairs.

Once they have declined and no one has been named, it will be extremely difficult to access things for them due to various privacy and security issues. If he has any competency left he should name someone now.




This is wonderful advice. I know folks who did not have their legal affairs in order and their kids are having difficulties handling their financial and medical affairs now that it is too late to have them sign. It's a nightmare.
Posted by soccerfüt
Location: A Series of Tubes
Member since May 2013
72659 posts
Posted on 10/28/22 at 5:15 pm to
quote:

Introduce him to the Poli & OT boards
About 365 times per day.
Posted by Dawgfanman
Member since Jun 2015
25769 posts
Posted on 10/28/22 at 5:32 pm to
Take his keys from him sooner rather than later. If he gets lost like that he shouldn’t be driving or even leaving the house on his own. It’s hard but it is for his safety and the safety of others. Dig into how his caregiver is doing (MIL), they tend to hide things because they love the person so much. Ours eventually lets us know she couldn’t handle our FIL anymore and was scared for her safety. Dementia can make people unintentionally mean and can really take a huge toll on those caring for someone.

Posted by Tigers2010a
Member since Jul 2021
3627 posts
Posted on 10/28/22 at 5:33 pm to
Take him to the doctor and have them do a brain scan. Do not allow him to drive any longer. Is his wife capable of taking care of him?
Posted by Yeahright
On a big sphere out there.
Member since Sep 2018
2287 posts
Posted on 10/28/22 at 5:56 pm to
It's not going to be easy no matter what you do. I leaned on God for guidance and prayed a lot and in the end it all worked out for my dad who died of dimentia a little over 2 years ago. You will need to get those car keys away from him ASAP. This was the hardest thing for my dad to understand. Good luck and hang in there. This too shall pass.....
This post was edited on 10/28/22 at 5:57 pm
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