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Started By
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re: Scared to death of my likely diagnosis
Posted on 3/18/21 at 6:13 am to marinebioman
Posted on 3/18/21 at 6:13 am to marinebioman
quote:
marinebioman
The only thing i can think of that would be remotely helpful is if you ever feel like a burden, put yourself in the shoes of the others. Your would help with a smile on your face. You would jump at the chance to help make that person’s life just a bit easier.
They will do the very same for you. Accept the love. Know that you are fortunate to have that help. Not everyone has that support.
0
Posted on 3/18/21 at 6:14 am to marinebioman
Best of luck.
Posted on 3/18/21 at 7:11 am to marinebioman
Country singer Clay Walker has had MS for years. He takes the Teva Pharmaceuticals' drug Copaxone by injection, three times a week, and said it works great for him. He feels good, he's able to go on the road and tour with his band, he remains active, and he exercises three times a week. He’s probably had MS for 20 years now if not longer.
Posted on 3/18/21 at 7:14 am to BeachDude022
Funny, the first person I first thought of was Clay Walker
Dude was diagnosed in the 90s and I thought he was done.
Saw him live just before COVID and the dude looks 25 and had as much energy as ever.
Dude was diagnosed in the 90s and I thought he was done.
Saw him live just before COVID and the dude looks 25 and had as much energy as ever.
Posted on 3/18/21 at 8:00 am to Tempratt
quote:
So it went away? You got your eye sight back?
It sounds like the one that goes into remission, which is what my mom has
Until it was mentioned I forgot that that was one of her symptoms
I’m not sure how long she lost her vision in 1 eye but it came back
Posted on 3/18/21 at 8:02 am to marinebioman
Will prayer for you and your family. As I understand it, there have been great advances.
Posted on 3/18/21 at 8:11 am to zippyputt
my oldest daughter has MS, she's living a normal life with the new medications...she was actually part of a study at Johns Hopkins on early MS
Posted on 3/18/21 at 8:33 am to marinebioman
My stepmom has it.
Likely for years before realizing.
There are drugs which can greatly slow progression.
Lots of the treatment is just finding the right drugs for you.
Likely for years before realizing.
There are drugs which can greatly slow progression.
Lots of the treatment is just finding the right drugs for you.
Posted on 3/18/21 at 8:46 am to marinebioman
I read a book called the Wahls Protocol. I don't have MS but the doctor (primary care) that wrote it does. She was in a wheel chair and losing a lot of function but radically altered her diet and no longer is in the wheel chair. I know it sounds goofy, but it may have something to it. I have chronic inflammation from a stem cell transplant and the diet helped reduce my inflammation quite a bit.
Dr. Wahls Website
Dr. Wahls Website
This post was edited on 3/18/21 at 8:48 am
Posted on 3/18/21 at 9:24 am to marinebioman
It depends on your occupation. I know stress is a big trigger for MS. Had a coworker that had to go on disability because of it, couldn't perform her job. That's in the construction industry in a management role.
Posted on 3/18/21 at 9:52 am to lowhound
A girl i went to high school with has it and she's been doing fine for a few years now, aside from occasional symptoms. We're in our low 40s.
Posted on 3/18/21 at 12:51 pm to marinebioman
My wife was diagnosis a few years ago, its rare for someone to be diagnosis after the age of 20.
You will need to get MRIs twice a year, shop around to find out the best price. My wife goes to a place in LaPlace since it half the price of places in the city.
A big change happened a few years ago. There is a pill that you can take that will slow/stop the spread, but it cost over $25,000 a month. The national MS society will cover the cost for the first year, then the insurance company said my wife didn't qualify since her MS wasn't bad enough, so she had to take 3 shots a week. They weren't easy shots, had to spread out the injection site of 6 points, couldn't inject in the same spot for two weeks.
Just over two years ago the FDA revised the rules and now anyone with MS qualifies for the pills. The meds make her very heat sensitive.
You will need to get MRIs twice a year, shop around to find out the best price. My wife goes to a place in LaPlace since it half the price of places in the city.
A big change happened a few years ago. There is a pill that you can take that will slow/stop the spread, but it cost over $25,000 a month. The national MS society will cover the cost for the first year, then the insurance company said my wife didn't qualify since her MS wasn't bad enough, so she had to take 3 shots a week. They weren't easy shots, had to spread out the injection site of 6 points, couldn't inject in the same spot for two weeks.
Just over two years ago the FDA revised the rules and now anyone with MS qualifies for the pills. The meds make her very heat sensitive.
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