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re: Scared to death of my likely diagnosis

Posted on 3/17/21 at 8:07 am to
Posted by Bruco
Charlotte, NC
Member since Aug 2016
2796 posts
Posted on 3/17/21 at 8:07 am to
quote:

live with a very close family member who has this. The drugs they have now are great. She still gets fatigued but otherwise lives a normal, healthy life.


This is the case with my mom. She was diagnosed 10 years ago. So far, very little progression other than she gets fatigued more easily and can’t climb more than a couple please flights of stairs without a break.

And honestly some of that might just be normal aging as she’s now 67.

Good luck to you and hang in there.
Posted by Clark W Griswold
THE USA
Member since Sep 2012
10512 posts
Posted on 3/17/21 at 8:09 am to
I know a few people with it. All men between 40-70. None stopped living their life. Each of them have different symptoms but all have quality of life. One is about 65 now and had to retire early due to it but he still gets around ok.

One guy ended up in a wheelchair for a while but through therapy and medicine he is back walking again and hiking. Don’t ever give up.
Posted by kywildcatfanone
Wildcat Country!
Member since Oct 2012
119305 posts
Posted on 3/17/21 at 8:09 am to
I have a friend with it, he's in his early 60's and still doing pretty well, and active. Best of luck.
Posted by bcflash
bossier city
Member since Oct 2016
447 posts
Posted on 3/17/21 at 8:11 am to
I think they can “ slow” most of these diseases progression these days.best of luck
Posted by 24nights
Louisiana
Member since Apr 2012
4787 posts
Posted on 3/17/21 at 8:12 am to
Prayers up brother
Posted by LSUfanNkaty
LC, Louisiana
Member since Jan 2015
11110 posts
Posted on 3/17/21 at 8:14 am to
quote:

marinebioman



Well wishes your way. Stay strong for yourself, and especially, your family. Will say some prayers
Posted by Ham And Glass
Member since Nov 2016
1519 posts
Posted on 3/17/21 at 8:16 am to
I know this is an MS thread but you are right. ALS is the cruelest. If there was one disease to cure, this should be it.
Posted by jcaz
Laffy
Member since Aug 2014
15664 posts
Posted on 3/17/21 at 8:16 am to
It's not a death sentence chief. Some meds really help. Have a veteran/cop buddy who has it but meds have allowed him to maintain a somewhat normal life.
Posted by dallastiger55
Jennings, LA
Member since Jan 2010
27768 posts
Posted on 3/17/21 at 8:20 am to
I have a couple people I know that have MS. All under 50 and all have relatively the same life.

Main issue is fatigue and not able to push body like they use to

BTW have they ruled out shingles? Did you have a rash anywhere?

I had tingling on my leg and foot last year and just blew it off. Finally went and saw a doctor a month later and it was shingles. Because I waited so long I still have residual nerve damage. It’s a bitch
Posted by madamsquirrel
The Snarlington Estate
Member since Jul 2009
48709 posts
Posted on 3/17/21 at 8:23 am to
I initially thought the tingling/burning on my leg was shingles. But after it kept re-occurring with no rash I have determined that it is probably more to it.
Posted by Butch Baum
Member since Oct 2007
2829 posts
Posted on 3/17/21 at 8:23 am to
Wife was diagnosed a little more than a year ago. Like others say not the same as it was years ago, but will have to change some life behaviors. Getting a really good Neuro and finding the right meds is key. Seek out a specialist that almost exclusively handles MS. Not fun, not easy, to deal with or come to terms with but it is not what it once was. Best Wishes and there is a hell of a good community of help out there.
Posted by BPTiger
Atlanta
Member since Oct 2011
5313 posts
Posted on 3/17/21 at 8:41 am to
Have a former boss who was diagnosed. With some relatively simple diet and lifestyle changes you would never know it.

Wishing you the best and hope you have a highly manageable case.
Posted by DLauw
SWLA
Member since Sep 2011
6086 posts
Posted on 3/17/21 at 8:46 am to
My BIL was diagnosed while stationed in Spain. He was medically discharged from the AF. They just got back to the states in February.

He seems super excited to be back and with the birth of their third child, he’s not looking at their future with any kind of gloom. He just landed his first civilian job with John Deere.

Prayers for you OP
Posted by i am dan
NC
Member since Aug 2011
24793 posts
Posted on 3/17/21 at 8:46 am to
quote:

Constant Burning/tingling/numbness on my right leg for the past 3 weeks.


They rule out Gilliam Barre Syndrome?
Posted by DeltaTiger14
Shangri La
Member since Nov 2015
164 posts
Posted on 3/17/21 at 8:50 am to
I am waiting on an appointment with the Neurologist myself. I am thinking I have MS as well. I hope not but I am a PT and I am recognizing some of the signs. I have have some vision issues, tremor and I am unusually fatigued after activity that isn't that strenuous. It is what it is and treatments have come a long way. Prayers sent for you. Don't get to thinking that your life as you know it is over and you will be a burden to someone you love. That is overwhelmingly not the case.
Posted by FCP
Delta State Univ. - Fightin' Okra
Member since Sep 2010
4789 posts
Posted on 3/17/21 at 8:55 am to
Best wishes and prayers to you. FWIW, a family member of ours was diagnosed a decade ago, and he’s still rolling along. I do know that since testing has improved, they’re able to diagnose it earlier than in previous years.
Posted by blueboy
Member since Apr 2006
56396 posts
Posted on 3/17/21 at 8:57 am to
I've known 3 people with MS. Two were/are wheelchair bound (the older one recently died) and the third was diagnosed several years ago but shows no symptoms. She's about your age.

I don't know what to tell you. It seems to affect different people very differently.
Posted by Boudreaux35
BR
Member since Sep 2007
21535 posts
Posted on 3/17/21 at 9:00 am to
I know a guy who was diagnosed about 25 years ago. He's still looks as active as he was then minus the typical age factor and will still whip my arse on the golf course.
Posted by DeltaTiger14
Shangri La
Member since Nov 2015
164 posts
Posted on 3/17/21 at 9:00 am to
quote:

I've known 3 people with MS. Two were/are wheelchair bound (the older one recently died) and the third was diagnosed several years ago but shows no symptoms.


If whatever you are doing for a living doesn't pan out, you should think about a career in motivational speaking.

just messing with you man, it's all good
Posted by DeltaTiger14
Shangri La
Member since Nov 2015
164 posts
Posted on 3/17/21 at 9:03 am to
quote:

They rule out Gilliam Barre Syndrome?


GBS is also called ascending paralysis. He would have likely been on a ventilator by now and unable to move his legs if it were GBS. I have had patients with this and it's awful and takes a long time to get over if it isn't caught within the first week or so. Not being an arsehole, just sharing
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