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Message
Scared to death of my likely diagnosis
Posted on 3/17/21 at 7:43 am
Posted on 3/17/21 at 7:43 am
Just found out I likely have MS but am waiting on confirmation. I am 43. Beautiful wife and a 10 year old boy. I am filled with fear of the future for myself but more so filled with the guilt of being a burden to them. I can’t believe how in an instant all of how I saw my (our) future has changed.
Does anyone here have MS or live with someone who does and can give me some advice/encouragement?
Does anyone here have MS or live with someone who does and can give me some advice/encouragement?
48
Posted on 3/17/21 at 7:46 am to marinebioman
(no message)
This post was edited on 3/30/21 at 5:02 pm
Posted on 3/17/21 at 7:46 am to marinebioman
Best of luck friend, hopefully it comes back negative(the confirmation test)
This post was edited on 3/17/21 at 7:48 am
Posted on 3/17/21 at 7:47 am to marinebioman
I’m not gonna sit here and tell you to be “happy” but MS isn’t the life-altering diagnosis it was 20 years ago.
Like the above poster said, better than ALS.
You can still have a relatively normal life.
Like the above poster said, better than ALS.
You can still have a relatively normal life.
Posted on 3/17/21 at 7:48 am to marinebioman
What symptoms did you have? I think my neurologist is going to test me soon.
Posted on 3/17/21 at 7:49 am to marinebioman
Encouragement:
1) There are several types of MS. The most common types are the less severe types. Still not fun, but not instantly debilitating.
2) There have been some incredible treatments that have come out in just the past couple of years ad more on target to come out soon. They work better on the less severe types of MS, but can still help slow progression on something like Primary Progressive MS.
1) There are several types of MS. The most common types are the less severe types. Still not fun, but not instantly debilitating.
2) There have been some incredible treatments that have come out in just the past couple of years ad more on target to come out soon. They work better on the less severe types of MS, but can still help slow progression on something like Primary Progressive MS.
Posted on 3/17/21 at 7:49 am to marinebioman
Saying prayers for you. They are always discovering new treatments. Your family loves you. You will not be a burden.
Posted on 3/17/21 at 7:49 am to marinebioman
Prayers to and for you/your family. I know someone with it and they have had it for 20 years, still going strong and not too major of an impact. Prayers for healing and comfort to you.
Posted on 3/17/21 at 7:50 am to madamsquirrel
Constant Burning/tingling/numbness on my right leg for the past 3 weeks.
Posted on 3/17/21 at 7:50 am to marinebioman
I live with a very close family member who has this. The drugs they have now are great. She still gets fatigued but otherwise lives a normal, healthy life.
Look into tecfidera, but there are even newer drugs that are great too. MS is certainly a pain but this is not the dire diagnosis that it once was. We had the same thoughts you are having when diagnosed. Stay positive.
Look into tecfidera, but there are even newer drugs that are great too. MS is certainly a pain but this is not the dire diagnosis that it once was. We had the same thoughts you are having when diagnosed. Stay positive.
Posted on 3/17/21 at 7:51 am to marinebioman
What have your symptoms been? Thoughts and prayers, OP. At 43, even if you do have it, you can maintain a quality of life where you still have a bright future. And don't feel guilt about things you can't control. If your family has to help you with anything along the way, then that is what they are in your life for.
eta: you answered my question. Keep your head up OP!
eta: you answered my question. Keep your head up OP!
This post was edited on 3/17/21 at 7:52 am
Posted on 3/17/21 at 7:55 am to marinebioman
quote:
can give me some advice/encouragement?
It's so early, so I don't want to offer you false hope - however, treatment has advanced so far with it, there is a lot of reason to have some hope. Yes, there is no cure. Yes, the treatment can sometimes ravage the body and impact quality of life.
Complications - you're older and male (typically it presents in females from mid 20s to mid 30s).
However, being older, you obviously have a shorter window to have to deal with it likely (more like 40 years than 60). Also, the treatment options today have the potential to really hold it at bay for decades.
Assuming it is confirmed, best of luck with it and God bless you.
Posted on 3/17/21 at 7:57 am to marinebioman
Hopefully it will turn out to be something else minor. I have those symptoms in my leg intermittently but I also have arm drop and freezing in my left arm that progressed from just the tingling to this.
Posted on 3/17/21 at 7:58 am to marinebioman
I have relapse remitting MS. Diagnosed 23 years ago. Eat healthy and get your rest. You have a strong support group, use it. Don’t feel like a burden but I know how easy it is to feel that way. Be strong brother.
Posted on 3/17/21 at 8:00 am to marinebioman
Prayers of brotherhood and compassion to you, my friend. I have known someone who has lived a wonderfully productive and meaningful life for decades after diagnosis. So I know it can be done. I also know that some of the most brilliant people in the world are making annual advances on treatment . Be strong, set an example of courage and perseverance for your son and lean on this board when you need to.
Posted on 3/17/21 at 8:01 am to marinebioman
I have a former coworker/good friend who was diagnosed about 5 years ago (she’s in her 40s). She still works full-time and has a fully functional life. She did make some drastic changes in diet/lifestyle and takes medication to control symptoms.
Never feel like a burden to your family. For your wife, she said those vows of “in sickness and in health”. This is part of that.
Never feel like a burden to your family. For your wife, she said those vows of “in sickness and in health”. This is part of that.
Posted on 3/17/21 at 8:02 am to marinebioman
quote:
Constant Burning/tingling/numbness on my right leg for the past 3 weeks.
Bloody hell. I've had the same thing recently, except the burning sensation. I was thinking poor circulation and was going to schedule a doctor's visit to test for diabetes, but I might have to test for this as well.
Good luck to you, man.
Posted on 3/17/21 at 8:02 am to marinebioman
My Mom has it
There are different kinds from what I understand, she has the kind that goes in & out of remission
The biggest issues she has is forgetting things, not being able to focus, she gets tired easily especially during the summer
She’s been diagnosed for around 20 years
She gives herself a shot 3x a week
There are different kinds from what I understand, she has the kind that goes in & out of remission
The biggest issues she has is forgetting things, not being able to focus, she gets tired easily especially during the summer
She’s been diagnosed for around 20 years
She gives herself a shot 3x a week
Posted on 3/17/21 at 8:04 am to marinebioman
quote:
Does anyone here have MS or live with someone who does and can give me some advice/encouragement?
I had an aunt who had MS and she lived well into her 80’s. She had her family, us, to take care of her, and besides it being an obvious debilitating disease, she was able to have a relatively decent quality of life given the circumstances of MS. She passed in the early 80’s, and so I’m sure there’s been advancement since then. I think it always gets back to your support system, which it sounds like you have. I’ll pray for you and your family bro. Hang in there. There’s nothing you can do with worrying but add more stress to an already stressful situation. It won’t change anything.
Posted on 3/17/21 at 8:07 am to Tiguar
quote:
better than ALS.
I would say that any disease is better than ALS. ALS has to be the absolute worse. Having watched 2 of my friends fathers die from this. It's the absolute worst thing that could possibly happen to someone.
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