re: Rare but Scary Medical Conditions

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Guillen-Barre (sp?). Read a survivors account of it. Horrifying.

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My brother contracted GBS in 2019 out of nowhere. His condition presented differently than normal. He would wake up in the middle of the night and he said it felt like someone stabbed him in his lower back and was twisting the knife. Normally, GBS doesn't present that way.

He's in Arkansas. He went to the hospital in Little Rock. Here's the strange thing about GBS. If it is diagnosed and treatment started before like the 26th (?) day of symptoms, then there is a good chance of recovery.

He was in the hospital for weeks with them trying to figure out his diagnosis.. no doctors in the Little Rock group could diagnose him, so his case went out to other doctor groups for review and consult.

One doctor immediately diagnosed him correctly from the other group... but it was after that 26th day so he'll won't ever make much of a recovery.

His feet and other parts of his body usually feel severely hot and have that nerve sting like they're coming out from being asleep, among other issues.

He was temporarily paralyzed from the waste down for a few weeks. Almost had to go on a ventilator.

And he has to have a blood plasma exchange every month for the rest of his life.

Here's a documentary I just started watching on Fatal Familial Insomnia. Follows an Australian family going through it.

Reye syndrome

Reye syndrome is a rapidly worsening brain disease.[2] Symptoms of Reye syndrome may include vomiting, personality changes, confusion, seizures, and loss of consciousness.[1] While liver toxicity typically occurs in the syndrome, jaundice usually does not.[2] Death occurs in 20–40% of those affected with Reye syndrome, and about a third of those who survive are left with a significant degree of brain damage.[2][3]

The cause of Reye syndrome is unknown.[2] It usually begins shortly after recovery from a viral infection, such as influenza or chickenpox.[1] About 90% of cases in children are associated with aspirin (salicylate) use.[2] Inborn errors of metabolism are also a risk factor.[3] The syndrome is associated with changes on blood tests such as a high blood ammonia level, low blood sugar level, and prolonged prothrombin time.[2] Often, the liver is enlarged in those who have the syndrome.[2]

Prevention is typically by avoiding the use of aspirin in children.[1] When aspirin was withdrawn for use in children in the US and UK in the 1980s, a decrease of more than 90% in rates of Reye syndrome was observed.[2] Early diagnosis of the syndrome improves outcomes.[1] Treatment is supportive;[1] mannitol may be used to help with the brain swelling.[2]

The first detailed description of Reye syndrome was in 1963 by Australian pathologist Douglas Reye.[4] The syndrome most commonly affects children.[2] It affects fewer than one in a million children a year.[2] The general recommendation to use aspirin in children was withdrawn because of Reye syndrome, with use only recommended in Kawasaki disease.[3]

I had this. I was around 2, 1973. In Germany (my dad was stationed at Hahn AFB. Doctors told my mom I likely wasn't going to survive. I was basically in a coma, so either stage 3 or 4 (out of 5). I pulled through though! No long term side effects, no brain damage (although some might disagree).

Rabies is a common disease people know about because they get their pets rabies vaccinations but it is rare for a human.

Once you show symptoms, you are done. Some videos of people that have it can be found. Weird symptom is aversion to water.

Almost 100% fatal when symptoms show. I think maybe there are only 6 documented cases where the person survived. So if you get bit, get the shots.

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So basically the rest of your life you feel like someone is jabbing a needle in your eye or slashing your nuts...all the time. A lot of these people commit suicide.

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Seems like you could sever the nerves and stop it.

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Systemic scleroderma

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My mom had scleroderma and lupus. The pain that she had to endure was gut-wrenching.

The tick born allergy to beef. That’s a fricking death sentence.

Mesothelioma is a rare, malignant type of cancer in the lungs usually associated with exposure to asbestos. If you or a loved one have been diagnosed with mesothelioma, call the law offices of James Sokolove now.

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Not even drug induced sleep?

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Exactly. Hello Heroin addiction.

Fournier's gangrene


google at your peril