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re: Is fibromyalgia real?

Posted on 4/20/21 at 8:54 pm to
Posted by LSUfan20005
Member since Sep 2012
8814 posts
Posted on 4/20/21 at 8:54 pm to
Interesting theory is that it might be linked to the antibiotic Cipro.

I took Cipro in 2013 and it destroyed me. I went from a really healthy guy squatting over 400 to practically crippled. I had muscle spasms, weakness, nerve pain everywhere. I struggled to squat 65lbs just trying to stay flexible. It took me 8 months of a strict diet, mobility work, and grit to get anywhere close to "normal."

While researching the terrifying stories on the internet about Cipro, I saw that it's being linked to FM. Theory goes that Cipro is often prescribed for UTI's, especially repeat UTI's....which occur most commonly in the same demo of FM.
Posted by crazy4lsu
Member since May 2005
36311 posts
Posted on 4/20/21 at 9:03 pm to
quote:

Interesting theory is that it might be linked to the antibiotic Cipro.


There is work that suggest there could be a microbiota component to the disease, as well as other chronic inflammatory conditions. Your anecdote is very interesting.
Posted by BottomlandBrew
Member since Aug 2010
27096 posts
Posted on 4/20/21 at 9:09 pm to
quote:

as well as other chronic inflammatory conditions


I have psoriatic arthritis. Luckily it's mild now and not near as bad as some people. Mine was abnormal in that I had the arthritis symptoms a decade before I ever had the skin symptoms. In my research to learn more about PsA, I came across some theories that some people diagnosed with FM actually have other inflammatory things going on like PsA that have never been properly diagnosed because they don't show the typical skin symptoms.
Posted by crazy4lsu
Member since May 2005
36311 posts
Posted on 4/20/21 at 9:16 pm to
Hmm, again, that is very interesting. Did you read this on any specific forums I can reference?
Posted by Fletch1985
Member since Jun 2020
281 posts
Posted on 4/20/21 at 9:34 pm to
Pay attention to this post. Don’t take Cipro. It’s a very powerful drug that usually isn’t necessary. Many other antibiotics get the job done for typical conditions. Of course if you have typhoid take it.
Posted by BottomlandBrew
Member since Aug 2010
27096 posts
Posted on 4/20/21 at 9:41 pm to
I found a few journal articles mentioning it. I hate to be that guy, but just google "psoriatic arthritis fibromyalgia" and tons of articles will come up. Nothing was concluded in the articles I read, but it was basically a lot of correlation between having PsA and having FM. While we typically think of psoriasis as being an autoimmune disease that primarily affects the skin, it is though that PsAit is a much bigger system-wide inflammatory disease that goes undiagnosed because there isn't really a test you can do for it other than visual/experiential symptoms - and not all people show the visual symptoms.

Pain and fatigue are pretty common with PsA. I know even my mild PsA will tire the shite out of me when it flares. There isn't enough caffeine in the world to get me through a day when I have a flare up. Luckily, my pain is mild. More annoying than anything because my hands and arms don't work well. It also affects my chest, but again, more annoying than anything. Like muscle soreness that won't go away.
Posted by ItNeverRains
37069
Member since Oct 2007
25454 posts
Posted on 4/20/21 at 9:51 pm to
Yes it’s real. The fix is an eastern medicine (TCM) vs western medicine approach. The Asians figured this shite out 3000 years ago, but Big Pharma gotsta’ get paid.
Posted by LSUfan20005
Member since Sep 2012
8814 posts
Posted on 4/20/21 at 9:53 pm to
quote:

Pay attention to this post. Don’t take Cipro. It’s a very powerful drug that usually isn’t necessary


I seriously thought I was crippled for life. I was doing 3hrs of foam rolling type stuff every night just to fight the pain. Right or wrong, it ruined me for trusting normal doctors and medications.
Posted by crazy4lsu
Member since May 2005
36311 posts
Posted on 4/20/21 at 10:00 pm to
quote:

I found a few journal articles mentioning it. I hate to be that guy, but just google "psoriatic arthritis fibromyalgia" and tons of articles will come up.


Of course. For some reason, it didn't click that you meant theories in the relevant literature. I was thinking you were talking about one of those forums where people try to figure out their diagnosis together.
Posted by Landmass
Member since Jun 2013
18137 posts
Posted on 4/20/21 at 10:02 pm to
Fibromyalgia is the result of eating a terrible diet. It is VERY real but the medical industry has no will to point people in the right direction.
Posted by gthog61
Irving, TX
Member since Nov 2009
71001 posts
Posted on 4/20/21 at 10:04 pm to
whenever I hear about an unreal illness I think about J.R. Richard getting shite right before he had his stroke.

I think the question is do they believe it is real or are they faking?

If it isn't "real" but they feel it does that do them any good?
Posted by BayouBengalRubicon
Baton Rouge
Member since Dec 2019
377 posts
Posted on 4/20/21 at 10:33 pm to
I have a family member that is diagnosed with it. When she got diagnosed, her crazy arse read the symptoms and they all magically manifested in her. Then started to use the illness to control people and for constant attention. So i'm 1000% certain it's not real lol
Posted by MONROE
In the belly of the beast
Member since Sep 2015
2365 posts
Posted on 4/20/21 at 10:45 pm to
quote:

there are no blood markers to confirm the diagnosis


“ The new FMS test uses biomarkers found in the blood and appears to be able to distinguish FMS patients from other patients with Lupus, OA (Osteoarthritis) and RA (Rheumatoid Arthritis).”

LINK
Posted by nvcowboyfan
James Turner Street, Birmingham,UK
Member since Nov 2007
2954 posts
Posted on 4/20/21 at 11:52 pm to
If you wish to read some very well written essays that debunk fibro read Norton Hadler the chief of rheumatology at UNC
Posted by BluegrassBelle
RIP Hefty Lefty - 1981-2019
Member since Nov 2010
99035 posts
Posted on 4/21/21 at 10:35 am to
quote:

interstitial cystitis


My urologist is going to be horribly disappointed to know IC isn't real. Especially when you can have ulcers in your bladder from it that can be physically seen.
Posted by BluegrassBelle
RIP Hefty Lefty - 1981-2019
Member since Nov 2010
99035 posts
Posted on 4/21/21 at 10:36 am to
quote:

Interesting theory is that it might be linked to the antibiotic Cipro.

I took Cipro in 2013 and it destroyed me. I went from a really healthy guy squatting over 400 to practically crippled. I had muscle spasms, weakness, nerve pain everywhere. I struggled to squat 65lbs just trying to stay flexible. It took me 8 months of a strict diet, mobility work, and grit to get anywhere close to "normal."

While researching the terrifying stories on the internet about Cipro, I saw that it's being linked to FM. Theory goes that Cipro is often prescribed for UTI's, especially repeat UTI's....which occur most commonly in the same demo of FM.




FWIW I was diagnosed with Fibromyalgia after a reaction to Levofloxacin (same family) roughly a year and a half ago. My physician and OB/GYN believes the reaction to the Levofloxacin triggered it. For about a month after taking it (just took one pill), I had joint pain, muscle pain, severe fatigue. I got really lucky that it happened during a time when I was working from home. Like you, it took almost 6-8 months to get back to some kind of normalcy from it.

I've had panels run for lupus, RA, and a little bit of everything and they're all clear. It waxes and wanes for me. I'm getting ready to start CoQ10 since there's been some research it can help, particularly with the fatigue.

Study on link of Fibromyalgia like symptoms and Cipro family of antibiotics
This post was edited on 4/21/21 at 10:40 am
Posted by AlxTgr
Kyre Banorg
Member since Oct 2003
81627 posts
Posted on 4/21/21 at 11:15 am to
quote:

Nope. It’s a lazy woman’s disease
Crazy white woman's disease.
Posted by ChrisDawg
Colbert, GA
Member since Sep 2012
52 posts
Posted on 4/21/21 at 11:38 am to
My wife (No PICS) has this and it is a very real thing. Been suffering with it for a few years now. Changed our life dramatically.
Posted by el Gaucho
He/They
Member since Dec 2010
52977 posts
Posted on 4/21/21 at 11:58 am to
My cousin has fibromyalgia and it is such a terrible disease. When he’s on the medicine for it he’s healthy but when his medicine runs out he’s achy all over, has cold sweats, nausea and diarrhea and he has to beg doctors to refill his medicine

I’ve never heard of IBS before but it sounds like my cousin has that too
Posted by el Gaucho
He/They
Member since Dec 2010
52977 posts
Posted on 4/21/21 at 12:05 pm to
quote:

Changed our life dramatically.

It really is sad

My cousin had to get on disability from the plant because of the disease. They had already suspended him because he failed the “test”. It’s really sad they test people for diseases

The only work he can find now is as a charter captain because the disability investigators can’t follow him out there
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