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re: Is fibromyalgia real?

Posted on 4/20/21 at 7:15 pm to
Posted by Ric Flair
Charlotte
Member since Oct 2005
13657 posts
Posted on 4/20/21 at 7:15 pm to
The criteria for diagnosis should include >5 drug allergies. Much more specific than 12/18 FM tender points.

It’s funny how very few normal males have fibromyalgia or long term consequences of Lyme disease.
Posted by TigerDat
Member since Aug 2010
7629 posts
Posted on 4/20/21 at 7:18 pm to
quote:

Nope. It’s a lazy woman’s disease


My mom is anything but lazy, and is diagnosed.

Now is it something else and the drs can't figure it out maybe but to watch a woman who ran her own business since I'm born completely debilitated for days at a time, I'm fairly certain she has something.

I'm sure people take advantage of it but in her case, its very obvious when she is having bad days.
Posted by crazy4lsu
Member since May 2005
36311 posts
Posted on 4/20/21 at 7:18 pm to
quote:

It sounds like some BS and just a reason for women to complain



It is a real disease associated with a set of physiological abnormalities, including but not limited to increased Substance P and glutamate in the SC, decreased blood flow in the thalamus, HPA axis hypofunction, low serotonin levels, and possible cytokine abnormalities (with respect only to increased serum levels of IL-1 and IL-8, if I remember).

There are also numerous candidates for a possible genetic basis to the pathogenesis, with three genes, GARBRB3, TAAR1, and GBP1 showing altered allele frequencies between cohorts. There are other genetic possibilities too.

I think it is likely it is a spectrum of disorders related to pain processing, with some relationship between other rheumatological disorders like RA, some evidence of altered NT function, sleep disturbances, and cognitive sequelae.
Posted by OldmanBeasley
Charlotte
Member since Jun 2014
9696 posts
Posted on 4/20/21 at 7:19 pm to
quote:

Same as interstitial cystitis, chronic fatigue, IBS, many others.

Pretty sure this one is real
This post was edited on 4/20/21 at 7:20 pm
Posted by crazy4lsu
Member since May 2005
36311 posts
Posted on 4/20/21 at 7:22 pm to
quote:

No, when you are fat and unhappy things hurt... there are no blood markers to confirm the diagnosis...it is not a rheumatologist disease, it is a psychiatric illness. Same as interstitial cystitis, chronic fatigue, IBS, many others. We don’t always feel good but some people focus on that and think it can be fixed



Damn this is super dumb as frick. Even if it was a strictly psychiatric illness, those have a distinct pathophysiology. I think people like writing off psychiatric illness as though it is "only in the mind" rather than disorders with physiological manifestations like any other disease.
Posted by BornCritic
Member since Nov 2020
696 posts
Posted on 4/20/21 at 7:25 pm to
I'm less concerned with whether it's "real" than what could or should be done about it.

If a person feels pain, the pain is real, but if that person won't make lifestyle changes that could mitigate or eliminate the pain, then I don't want to hear about it all the time.

My mom constantly talks about her "fibro" acting up but won't change her lifestyle. It's frustrating.
Posted by DaBeerz
Member since Sep 2004
16929 posts
Posted on 4/20/21 at 7:26 pm to
quote:


Pretty sure this one is real



Nope diagnosis of exclusion saying we don’t know what’s wrong with you after we’ve run every test possible.... how could you have IBS-D (diarrhea) or IBS-C(constipation) but still called IBS but no physiological problem that you can find on tests or colonoscopy
This post was edited on 4/20/21 at 7:32 pm
Posted by Deaux boi
BFE
Member since Jun 2016
379 posts
Posted on 4/20/21 at 7:26 pm to
women that are addicted to pain pills and keep going to the dr for more pills seem to have fibromyalgia
Posted by BornCritic
Member since Nov 2020
696 posts
Posted on 4/20/21 at 7:28 pm to
quote:

Damn this is super dumb as frick. 


It's not that dumb. I don't know whether the blood markers part is factually accurate, but I would say that the overall point of his post, if taken to heart by an IBS (raises hand) or fibromyalgia sufferer, is more helpful than all those big words you used. No offense, and I'm not hating on science or big words, it's just that I don't think it's helpful where the rubber meets the road in this case.
Posted by DaBeerz
Member since Sep 2004
16929 posts
Posted on 4/20/21 at 7:29 pm to
quote:

Damn this is super dumb as frick. Even if it was a strictly psychiatric illness, those have a distinct pathophysiology. I think people like writing off psychiatric illness as though it is "only in the mind" rather than disorders with physiological manifestations like any other disease.


It’s a mental issue regardless... I’ve had anxiety/depression before, tried meds... dealing with your problems help, exercising and eating right helps... sorry don’t buy it, when I’m in shape and can exercise regularly, eat decent then I feel better... it’s not rocket science
This post was edited on 4/20/21 at 7:30 pm
Posted by sonoma8
Member since Oct 2006
7666 posts
Posted on 4/20/21 at 7:31 pm to
quote:

It’s a mental issue regardless...

This x100000000. Most are “allergic” to toradol too. Bitches be cray
Posted by Ric Flair
Charlotte
Member since Oct 2005
13657 posts
Posted on 4/20/21 at 7:36 pm to
Dr. John Sarno at NYU had a good book about FM before FM had an official name.
Posted by Bullfrog
Institutionalized but Unevaluated
Member since Jul 2010
56248 posts
Posted on 4/20/21 at 7:39 pm to
Posted by crazy4lsu
Member since May 2005
36311 posts
Posted on 4/20/21 at 7:40 pm to
quote:

It’s a mental issue regardless... I’ve had anxiety/depression before, tried meds... dealing with your problems help, exercising and eating right helps... sorry don’t buy it, when I’m in shape and can exercise regularly, eat decent then I feel better... it’s not rocket science



Well again, I'm saying that psychiatric and neurological diseases have specific pathophysiologies, and there is no evidence to class IBS as a strictly psychiatric disorder.
You are taking the absence of a specific, sensitive, pathognomonic biomarker at this literal present moment in time as evidence that this is nothing but a disorder of the mind, which is immensely silly. I could write a detailed summary of the evidence for why it is silly, but alas, I should trust you, since you have "had anxiety/depression before" and thus, are an expert on psychiatric disorders.
Posted by poppa1254
Moody, AL
Member since Jan 2019
434 posts
Posted on 4/20/21 at 7:41 pm to
My wife’s sister (she’s 75, dudes) was told for years she had it, but wouldn’t accept the diagnosis. Found out she actually had hyperparathyroidism. She had the bad one removed, and all the fibromyalgia symptoms disappeared.
Posted by BornCritic
Member since Nov 2020
696 posts
Posted on 4/20/21 at 7:43 pm to
I would love to see their data supporting the recommendation for "gentle exercise".

Fricking stretching and yoga.
Posted by crazy4lsu
Member since May 2005
36311 posts
Posted on 4/20/21 at 7:44 pm to
quote:

It's not that dumb. I don't know whether the blood markers part is factually accurate, but I would say that the overall point of his post, if taken to heart by an IBS (raises hand) or fibromyalgia sufferer, is more helpful than all those big words you used. No offense, and I'm not hating on science or big words, it's just that I don't think it's helpful where the rubber meets the road in this case.



What the frick are you talking about? I answered the question of whether fibromyalgia is a real disorder, summarizing quickly some of the evidence that there are physiological abnormalities present, as well as genetic evidence. It is a real disorder, just as IBS is, regardless of whether my description satisfies whatever criteria the idiom "the rubber meets the road" represents.

If I were to, you know, speak to a patient with IBS, I certainly wouldn't present the genetic or molecular evidence with any specificity, because regurgitating that information is obviously not where "the rubber meets the road."
This post was edited on 4/20/21 at 7:46 pm
Posted by Ric Flair
Charlotte
Member since Oct 2005
13657 posts
Posted on 4/20/21 at 7:45 pm to
quote:

Most are “allergic” to toradol too


Not to mention allergies to NSAIDS and Tylenol.
Posted by Ric Flair
Charlotte
Member since Oct 2005
13657 posts
Posted on 4/20/21 at 7:47 pm to
quote:

My wife’s sister (she’s 75, dudes) was told for years she had it, but wouldn’t accept the diagnosis. Found out she actually had hyperparathyroidism. She had the bad one removed, and all the fibromyalgia symptoms disappeared.


This is why it is a diagnosis of exclusion. They should have ruled this out prior to the initial diagnosis.
Posted by Bullfrog
Institutionalized but Unevaluated
Member since Jul 2010
56248 posts
Posted on 4/20/21 at 7:50 pm to
quote:

Fricking stretching and yoga.
Yo bro. Yoga pants make up for all the stretching.
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