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Started By
Message
re: EDS, chronic fatigue syndrome, fibromyalgia, POTS, etc.
Posted on 5/13/25 at 12:47 pm to BluegrassBelle
Posted on 5/13/25 at 12:47 pm to BluegrassBelle
quote:
Ehlers Danlos
EDS is connected to POTS. Connective tissue elasticity from EDS can cause the orthostatic disturbance in POTS.
Chronic fatigue, fibromyalgia, and 'long COVID' are basically the same disorder... ~90% mental 10% physiological.
0
Posted on 5/13/25 at 12:51 pm to The Scofflaw
I have EDS, and I assure you it is a very real condition. I also don't use the fatigue as an excuse to be a little bitch. The fragile skin and blood vessels are by far the most impactful part of the condition.
Posted on 5/13/25 at 12:55 pm to The Scofflaw
quote:
EDS
Ehlers-Danlos syndromes (EDS)?? This is a real one. Not sure what other you could be talking about.
quote:
fibromyalgia
It is a real thing, but there is usaally some other secondary cause, like anxiety or depression and the patients never want to treatment directed there so it is usually a mess. But Cymbalta, also known as Duloxetine, which is an SSRI, has some weak analgesia properties and as such is usually what is used for fibromyalgia.
Posted on 5/13/25 at 12:57 pm to The Scofflaw
If I remember correctly, there’s like 13 types of EDS. The most serious one is the vascular type. The most commonly diagnosed type is the hypermobile type.
I think for most, if not all, of the the subtypes (excluding hypermobile) has a genetic marker. Meaning if that test is positive, you almost certainly have it.
The hypermobile type doesn’t have a genetic marker and is a clinical diagnosis. I don’t think the criteria for the clinical diagnosis is without controversy.
In my opinion, the hypermobile EDS is probably over diagnosed.
I think for most, if not all, of the the subtypes (excluding hypermobile) has a genetic marker. Meaning if that test is positive, you almost certainly have it.
The hypermobile type doesn’t have a genetic marker and is a clinical diagnosis. I don’t think the criteria for the clinical diagnosis is without controversy.
In my opinion, the hypermobile EDS is probably over diagnosed.
Posted on 5/13/25 at 12:59 pm to Cryptococcus
quote:
13 types of EDS
Correct
quote:
most serious one is the vascular type.
Yes, average lifespan of 48 years. I did a genetic test a few years ago to rule this type out
Posted on 5/13/25 at 12:59 pm to The Scofflaw
quote:
Real diseases, or just excuses to stay home all day and bum around
They are real but they have been co-opted by the chronic illness fakers and sick-tok crowd and are miserable to deal with as a healthcare professional.
There are multiple types of Ehlers-Danlos for example, however the one chosen by the malingerers is conveniently the one for which there is no genetic testing available.
Posted on 5/13/25 at 1:00 pm to The Scofflaw
quote:
POTS
My sons smoke a ton of this. They don't feel like doing shite afterwards. So I say this one's real.
Posted on 5/13/25 at 1:01 pm to Ingeniero
quote:
Isn't this the one where your heart rate spikes and causes you to faint if you get up too fast?
I have this sometimes when I'm hungover....lol
Posted on 5/13/25 at 1:05 pm to mthorn2
quote:
I have this sometimes when I'm hungover....lol
Yeah, likely because you are dehydrated and don't have good blood flow. Now imagine feeling like that everyday.
Posted on 5/13/25 at 1:42 pm to The Scofflaw
I have EDS. Got a hip replacement at age 43 to prove it. My joints are loose and causes all kinds of issues. I still work full time and live an active lifestyle despite the condition
Posted on 5/13/25 at 1:51 pm to The Scofflaw
it's just Billing needed an ICD-10 code for crazy other than schizophrenia
Posted on 5/13/25 at 1:55 pm to The Scofflaw
I was diagnosed with CFS. It was later discovered I have about a 90% deficinecy in multiple vitamins including B6, B12 and D. I had to take supplements. I have always maintained multiple jobs to hustle and be ahead, but I definitely felt the difference on the supplements and energy levels.
Personally, I wonder if sometimes my tiredness is just boredom.
Personally, I wonder if sometimes my tiredness is just boredom.
Posted on 5/13/25 at 1:57 pm to The Scofflaw
Rocco Baldelli was one of baseballs best young OFs in the early 2000s before mitochondrial issue causing chronic fatigue ended his career. Dude never hit a big payday so no reason to think he was lying.
Posted on 5/13/25 at 2:02 pm to cwil177
quote:
They are real but they have been co-opted by the chronic illness fakers and sick-tok crowd and are miserable to deal with as a healthcare professional.
There are multiple types of Ehlers-Danlos for example, however the one chosen by the malingerers is conveniently the one for which there is no genetic testing available.
Yeah's for sure quite a bit of this around. Just like so many influencers or their followers will claim they are "neurodivergent". Some may actually believe their self-diagnosis. Some do it because they want to feel unique. Some just do it for internet clout. I doubt very many of these self-diagnosers actually have the conditions
Posted on 5/13/25 at 2:08 pm to The Scofflaw
quote:Crazy white woman's disease.
fibromyalgia
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