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re: Creutzfeldt-Jakob disease **updated pg 5

Posted on 11/20/23 at 7:35 am to
Posted by GREENHEAD22
Member since Nov 2009
19674 posts
Posted on 11/20/23 at 7:35 am to
Unless the understanding of the disease has advanced rapidly in the last 5 yrs or so I am not sure how they can definitively say that.

They know very little about transmission and it can stay dormant for decades. Symptoms starts at the very end of the disease life cycle.
This post was edited on 11/20/23 at 7:38 am
Posted by DeltaHog
Member since Sep 2009
632 posts
Posted on 11/20/23 at 8:08 am to
I’m shocked how many people eat squirrel brains. What the hell folks
Posted by KemoSabe65
70605
Member since Mar 2018
5284 posts
Posted on 11/20/23 at 8:16 am to
MIL’s husband had and went full blown bed ridden in 6 mos. Dr’s said he caught it from a poor transfusion while undergoing a hip replacement. His brain was sent to Cleveland clinic after his death and anything that was used got incinerated.
Posted by White Bear
Yonnygo
Member since Jul 2014
14242 posts
Posted on 11/20/23 at 8:26 am to
quote:

In the southeast could it be from eating a deer with CWD? Obviously not a pathologist here.
Research has not proven a link from deer to humans to date.
Posted by FearTheFish
Member since Dec 2007
3782 posts
Posted on 11/20/23 at 9:32 am to
quote:

Doctors said he got it from eating squirrel brains.
I'm sorry, what?
Posted by Quatrepot
Member since Jun 2023
4119 posts
Posted on 11/20/23 at 9:37 am to
quote:

I'm sorry, what?
Very common in South Louisiana to make a gravy and put squirrel heads in them and eat meat on jaws and brain.

Posted by jeffsdad
Member since Mar 2007
21632 posts
Posted on 11/20/23 at 9:50 am to
Well, with the advent of cjw that custom should just stop. Back in the good ole days, lab techs use to walk around with blood easily visible on their lab coats and on one thought anything about it. Then along came hiv …
Posted by Quatrepot
Member since Jun 2023
4119 posts
Posted on 11/20/23 at 9:55 am to
quote:

Well, with the advent of cjw that custom should just stop.
Agree, people shouldn’t do meth either.

I don’t eat them but my dad loved them.
Posted by STLDawg
The Lou
Member since Apr 2015
3775 posts
Posted on 11/20/23 at 9:58 am to
Absolutely one of the worst diseases out there. Nothing to be done for it at all.
Posted by JJ27
Member since Sep 2004
60739 posts
Posted on 11/20/23 at 9:59 am to
I had a good friend’s Dad pass away from it. First day I did an EEG on him and he was sitting up in the bed, talking away to his family. 2 days later he was in ICU, but sitting in chair. Next day he was nonverbal. Next day he forgot how to swallow. Couple days later he was gone.
Posted by Quatrepot
Member since Jun 2023
4119 posts
Posted on 11/20/23 at 10:28 am to
quote:

I had a good friend’s Dad pass away from it. First day I did an EEG on him and he was sitting up in the bed, talking away to his family. 2 days later he was in ICU, but sitting in chair. Next day he was nonverbal. Next day he forgot how to swallow. Couple days later he was gone.

My wife went from missing her mouth with a spoon to me feeding her then breaking up pop tarts to put in her mouth within a matter of weeks.
Posted by Volvagia
Fort Worth
Member since Mar 2006
51958 posts
Posted on 11/21/23 at 12:57 am to
As harsh and clinical many of my posts in this thread have been……I’m truly sorry you had to go through that, and I hope you found healing in whatever avenue that made sense to you.
This post was edited on 11/21/23 at 12:58 am
Posted by GeauxTigers123
Member since Feb 2007
1437 posts
Posted on 11/21/23 at 7:47 am to
There is a really good Joe Rogan podcast about prion diseases (particularly CWD).

They haven’t yet found any definite evidence of people catching CWD from deer meat, but it’s a big cause for concern.

CJD can be spontaneous, inherited, or from ingestion.

In New Guinea there was a tribe that ate their own dead and they ended up with a prion caused disease called Kuru. Daniel Carleton Gajdusek Won a noble prize for firing out its transmission. Then he got in trouble for child molestation (his journal was bizarre).
Posted by Bjorn Cyborg
Member since Sep 2016
27389 posts
Posted on 11/21/23 at 8:45 am to
quote:

I’m shocked how many people eat squirrel brains. What the hell folks



Was very common in the Cajun community. I haven’t seen it in 20-plus years. Not sure if it phased out due to generational reasons, or specifically because word got out about the health dangers.

People also used to eat hogs-head cheese, which was pig brain. All brain related food products are illegal now.

You will often see hogs-head cheese at the grocery store, but it’s not real and doesn’t contain brain.
Posted by GREENHEAD22
Member since Nov 2009
19674 posts
Posted on 11/21/23 at 8:58 am to
I will get doenvoted like crazy and some fellas on the OB are not going to like this. I think it is a matter of time before they prove a CWD CJD connection. If it can be passed from Mad Cow beef to humans it can be passed from CWD venison to humans.
Posted by DownshiftAndFloorIt
Here
Member since Jan 2011
66763 posts
Posted on 11/21/23 at 9:01 am to
quote:

I think it is a matter of time before they prove a CWD CJD connection


The concern is real for me. It stresses me out.
Posted by AUFANATL
Member since Dec 2007
3991 posts
Posted on 11/21/23 at 9:15 am to
quote:

m shocked how many people eat squirrel brains. What the hell folks


I'm also shocked at how many people here have personal experience with an extremely rare disease that is contracted by less than 1 in 1 million.

This place gets really weird sometimes.

Posted by phunkatron
Member since Jun 2019
1444 posts
Posted on 11/21/23 at 9:19 am to
quote:

They’ve ruled out any chance that he got it from an animal. Doing another spinal tap tomorrow is what I was told.


If he didn't get the prion from an animal, it was either a de novo production of the prion (which I guess has to be possible to some extent for prions to exist in the first place), or he ate human nervous tissue.
This post was edited on 11/21/23 at 9:21 am
Posted by KemoSabe65
70605
Member since Mar 2018
5284 posts
Posted on 11/21/23 at 9:22 am to
Read an article about three military guys in A-Stan that were invited to eat with a family. Goat brain was served and only one consumed, that guy eventually died from cjd.
Posted by F1y0n7h3W4LL
Below I-10
Member since Jul 2019
1639 posts
Posted on 11/21/23 at 9:30 am to
quote:

I'm also shocked at how many people here have personal experience with an extremely rare disease that is contracted by less than 1 in 1 million.

This place gets really weird sometimes.


Honestly, I knew nothing about it until this thread. Sounds rare. Creutzfeld-Jakob Link
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