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re: Creutzfeldt-Jakob disease **updated pg 5
Posted on 11/19/23 at 10:53 pm to HerkFlyer
Posted on 11/19/23 at 10:53 pm to HerkFlyer
They have prion tested humans who have eaten CWD infected deer and never found a transmission. Squirrel brains are the only transmission they have been able to link in recent times.
2
Posted on 11/19/23 at 10:54 pm to Quatrepot
quote:
Our situation was inherited.
Did someone in her family tree have it?
Posted on 11/19/23 at 10:55 pm to JoseVargasTX
So sorry if he has this.
I knew someone who was mid-60s, recently retired, and suspected of having this disease 20 years ago. This man was recently retired from an outdoors physical job, who suddenly needed the support of a cane, to needing total care within 2 months time, and died shortly thereafter.
I hope ya'll aren't dealing with this.
I knew someone who was mid-60s, recently retired, and suspected of having this disease 20 years ago. This man was recently retired from an outdoors physical job, who suddenly needed the support of a cane, to needing total care within 2 months time, and died shortly thereafter.
I hope ya'll aren't dealing with this.
Posted on 11/19/23 at 10:58 pm to Volvagia
quote:
The American beef supply is safe, commercially. Mostly because if there is any chance of mad cow disease, they kill the cow, the herd, and any cow that might have even looked at anything the original cow might have touched. That doesn’t preclude hunted meat though. And given the time frame I doubt they would make such a definitive statement. Hell I’m not a hunter, nor is my family, but I’ve had a few meals made with hunted meat. All it takes is one to say there is no longer any chance. Over 40 years.
CJD is a genetic disease, you don’t get it from eating meat. OP was saying they were trying to rule out mad cow disease by doing medical tests.
Posted on 11/19/23 at 10:59 pm to lsupride87
quote:
They have prion tested humans who have eaten CWD infected deer and never found a transmission
I thought this was the case, but wasn't positive.
quote:
Squirrel brains are the only transmission they have been able to link in recent times.
Also, I know some pretty old timey recipes involving a lot of different animals passed down over multiple generations, but squirrel brains aren't an ingredient in any of them. Are people eating that?
Slight de-rail but my Great Grandad had a joke possum recipe in our family cookbook. It was an elaborate preparation of a possum that culminated in a finished possum on a cutting board. The last step was to toss the possum in the woods and eat the cutting board.
This post was edited on 11/19/23 at 11:10 pm
Posted on 11/19/23 at 10:59 pm to tunechi
quote:The gene, apparently.
Did someone in her family tree have it?
Posted on 11/19/23 at 11:05 pm to JoseVargasTX
One more thing and I’ll shut up.
You said he had kids. Family members can be genetically tested for the prion disease mutation.
You said he had kids. Family members can be genetically tested for the prion disease mutation.
Posted on 11/19/23 at 11:12 pm to JoseVargasTX
A good friend of many decades died of it last year. He knew something was wrong, but most doctors didn't agree with his self diagnosis of KJ.
He then went to Barnes Jewish Hospital in St. Louis. Several of his doctors there couldn't figure out where he got it, and ended up calling me for long conversations about his history. They did confirm that he had KJ and he was already trying to get his estate in order.
His going to Barnes Jewish was important because they have experience with it as it's inherited din some Jewish family lines.
Do you want to talk symptoms? Can I help by talking to your friend?
He then went to Barnes Jewish Hospital in St. Louis. Several of his doctors there couldn't figure out where he got it, and ended up calling me for long conversations about his history. They did confirm that he had KJ and he was already trying to get his estate in order.
His going to Barnes Jewish was important because they have experience with it as it's inherited din some Jewish family lines.
Do you want to talk symptoms? Can I help by talking to your friend?
Posted on 11/19/23 at 11:15 pm to JasonDBlaha
quote:
CJD is a genetic disease, you don’t get it from eating meat
Wrong.
Fewer than 10% come from a genetic cause.
(For the purposes of informal conversation I’m combining CJD and vCJD from this point forward)
Over 80% comes from unidentified causes, which is the source of my saying BS earlier. Potential sources include eating contaminated animal protein, blood transfusion/organ transplant, or spontaneous.
It’s estimated 4 out of 5 cases are from eating a contaminated source though.
This post was edited on 11/20/23 at 12:39 am
Posted on 11/19/23 at 11:18 pm to Quatrepot
quote:
Family members can be genetically tested for the prion disease mutation.
Yes. If they said it was zero chance because they had already definitively confirmed it as genetic, the kids theoretically should be tested, as it’s a 50% chance they have it too.
On a personal level, I’d not want it. Imagine living life not knowing when a switch will be flipped and then you’d die within a year.
Posted on 11/19/23 at 11:20 pm to JoseVargasTX
Father of someone I went to school with had it. They think he got it from eating squirrel brains. Not s good way to go for sure.
Posted on 11/19/23 at 11:21 pm to lsupride87
quote:
They have prion tested humans who have eaten CWD infected deer and never found a transmission.
Not calling BS yet, but how on earth could they know it was CJD infected definitively? They test the carcass immediately after they ate from it by coincidence?
Either way I doubt the sample size is large enough to be definitive either way.
This post was edited on 11/19/23 at 11:22 pm
Posted on 11/19/23 at 11:24 pm to Volvagia
I’m shocked at the number of people who know of someone with it.
Only 300 or so in the US get diagnosed with it each year.
Only 300 or so in the US get diagnosed with it each year.
Posted on 11/19/23 at 11:29 pm to JasonDBlaha
quote:
Sounds very similar to Mad Cow Disease in how it causes infection in the CNS.
…….
They are literally the same prion.
Just one is pathology in cows and the other in humans.
Posted on 11/19/23 at 11:32 pm to Volvagia
quote:Yes. Hunting club finds cwd through testing. They then test other deer in herd and find contamination. Then it’s assumed other deer killed earlier and eaten had CWD. They then test members of club.
Not calling BS yet, but how on earth could they know it was CJD infected definitively? They test the carcass immediately after they ate from it by coincidence?
Not a ton of sample size though obviously
This post was edited on 11/19/23 at 11:34 pm
Posted on 11/19/23 at 11:53 pm to lsupride87
So still a question of risk. They tested an individual from the same herd, not nesscessarily the same as the consumed individual
Posted on 11/20/23 at 12:05 am to JoseVargasTX
My FIL died of it. It is not a pretty way to go. He was in there, but towards the end couldn't communicate. They didnt' figure out what he had until he was about gone. Very sad, and destroyed a once vibrant and active 76 yo.
Posted on 11/20/23 at 3:04 am to JoseVargasTX
I won't elaborate this much here, but it would be, but hopefully not being, one terrible biological weapon.
Posted on 11/20/23 at 5:32 am to Volvagia
quote:
I’m shocked at the number of people who know of someone with it.
This. Scary to think about.
Posted on 11/20/23 at 5:50 am to JoseVargasTX
There are about 350 cases per year in the U.S
Damn, that is rough. Prayers for your friend and his family
Damn, that is rough. Prayers for your friend and his family
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