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re: autoimmune gastritis what do you know
Posted on 3/10/25 at 7:23 pm to Gee Grenouille
Posted on 3/10/25 at 7:23 pm to Gee Grenouille
In no way is this definitive medical advise but I suffered with gastritis when younger, I didnt take care of myself in terms of diet and alcohol consumption until it lead to much worse conditions in my early 40s with some still unknown auto immune issues. I take essentially a super charged antacid that keeps the irritation to nothing.. but I no longer drink because of it and the damage done to my liver in coordination..
Posted on 3/10/25 at 7:38 pm to Gee Grenouille
Best of luck, you're seeing good people.
Lactose intolerant?
Lactose intolerant?
Posted on 3/10/25 at 7:54 pm to Gee Grenouille
Best of luck with your son. I’ve said a prayer for him.
Posted on 3/10/25 at 8:04 pm to TROLA
quote:
I take essentially a super charged antacid that keeps the irritation to nothing
Can you share the name?
Posted on 3/10/25 at 8:23 pm to Gee Grenouille
Eosinophil levels high?
Posted on 3/10/25 at 8:30 pm to WW
quote:
Can you share the name?
Pantoprazole
Protonic is the brand I believe.
I had gastritis , ulcers as well, suffered severe heartburn and gerd.
Posted on 3/10/25 at 8:45 pm to PerplenGold
Even if not the case here, this is true. A lot of issues start bc the gut is off. No experience with human med., but in the pet world, a holistic vet will look into gut health for certain issues. Even as something such as bad itching vs just injecting meds and sending on.
OP, I hope things settle for your son quickly. And the docs can help him. In addition to any discomfort for him, as a parent, we feel hopeless when our kids suffer.
OP, I hope things settle for your son quickly. And the docs can help him. In addition to any discomfort for him, as a parent, we feel hopeless when our kids suffer.
Posted on 3/10/25 at 8:50 pm to Zakatak
quote:
Eosinophil
I will check his test results to see if they did that one
Posted on 3/11/25 at 12:52 am to Gee Grenouille
Could it be a possible gluten allergy? Reading all of this sounded really familiar. A friend of mine spent several years going to all sorts of doctors trying to figure out why her stomach was always hurting. Turns out it was a 2 fold issue. She can not eat gluten which is very difficult in itself, but also her pylorus wasn’t allowing her food to drain right. Basically breakfast was sitting all day long causing the gastritis. Ultimately had to cut all gluten out and about every year or so has to go in and have Botox injected into her pylorus to allow it to relax and allow her food to drain properly. I feel for you because this issue is very difficult to figure out. I never would have believed someone needed Botox injected into their stomach, but it works. Doesn’t cure everything, but does help with the gastritis. Good luck.
Posted on 3/11/25 at 6:17 am to damonster
We are going to try gluten free to see.
Posted on 3/11/25 at 6:46 am to Gee Grenouille
He needs to try some sort of elimination diet. Specific carbohydrate or something similar to get rid of a whole bunch of potential foods or food additives that are causing issues. See if that improves anything. Stop eating almost anything processed especially if he’s eating it now while having issues.
Assuming crohns etc was ruled out.
Assuming crohns etc was ruled out.
Posted on 3/11/25 at 7:01 am to Gee Grenouille
He is likely in a "flare" state currently and his immune system is targeting the stomach cells. Prednisone is a steroid commonly used to get things settled temporarily (not a long term solution). Getting him into a maintenance stage of managing they symptoms will be critical. The iron and B12 are treating the symptoms of vitamin deficiency but a long term solution could be through immunosuppressants or H2 blockers. Diet, exercise, and daily vitamin consumption will be a major factor in the overall well being of this fella.
-not a DR
-not a DR
Posted on 3/11/25 at 7:30 am to sig2608
Not a fan of that circus act.
Posted on 3/11/25 at 7:35 am to Gee Grenouille
quote:
We are going to try gluten free to see.
Highly recommend good celiac testing such as antibodies plus genetics that are done at labs like Prometheus. They are expensive but worth it IMO.
Going gluten free is really hard to do correctly especially if you are dealing with true celiac disease which may not be the case.
This post was edited on 3/11/25 at 7:40 am
Posted on 3/11/25 at 9:55 am to RebelSquared
quote:
celiac disease
Gastro said no signs of this during scope.
Posted on 3/11/25 at 12:25 pm to Gee Grenouille
There's some good leads regarding diet/lifestyle and while you should obviously listen to doctors, you should be careful to assess if the doctor is just trying to put your son on a medication vs trying to understand the cause.
CoachChappy's post about inflammation is largely true... the current damage to the stomach lining is a function of chronic inflammation damaging the tissue due to the chronic underlying condition (whether genetic, dietary, environmental, or otherwise). The condition needs to be identified, but it is likely that something in the diet is exacerbating the inflammation and furthering the damage.
I suspect if you study "anti-inflammatory diet", you will find some overlap with other advice in this thread. But it might run counter to other advice. Until you do figure out what is either causing it or aggravating it, you and your son may have to carefully test different things. Typical anti-inflammatory diets recommend staying away from red meat. Anecdotally, some people claim going on a carnivore diet cured them of similar conditions. Each of us has a unique body chemistry which makes it difficult to point to a one size fits all solution in modern diets.
I'd also consider having him try intermittent fasting to give his stomach a rest, as well as adding probiotics/prebiotics and fermented food.
CoachChappy's post about inflammation is largely true... the current damage to the stomach lining is a function of chronic inflammation damaging the tissue due to the chronic underlying condition (whether genetic, dietary, environmental, or otherwise). The condition needs to be identified, but it is likely that something in the diet is exacerbating the inflammation and furthering the damage.
I suspect if you study "anti-inflammatory diet", you will find some overlap with other advice in this thread. But it might run counter to other advice. Until you do figure out what is either causing it or aggravating it, you and your son may have to carefully test different things. Typical anti-inflammatory diets recommend staying away from red meat. Anecdotally, some people claim going on a carnivore diet cured them of similar conditions. Each of us has a unique body chemistry which makes it difficult to point to a one size fits all solution in modern diets.
I'd also consider having him try intermittent fasting to give his stomach a rest, as well as adding probiotics/prebiotics and fermented food.
Posted on 3/11/25 at 9:30 pm to Gee Grenouille
quote:
Eosinophil
I will check his test results to see if they did that one
The Eosinophil count will be in the CBC but that won't be diagnostic of eosinophilic gastritis. That test would involve counting eosinophils in the gastric lining, also the symptoms are much more acute than autoimmune gastritis. Really, the antibody tests will be your best bet if they haven't been done.
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