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re: autoimmune gastritis what do you know

Posted on 3/10/25 at 7:23 pm to
Posted by TROLA
BATON ROUGE
Member since Apr 2004
13939 posts
Posted on 3/10/25 at 7:23 pm to
In no way is this definitive medical advise but I suffered with gastritis when younger, I didnt take care of myself in terms of diet and alcohol consumption until it lead to much worse conditions in my early 40s with some still unknown auto immune issues. I take essentially a super charged antacid that keeps the irritation to nothing.. but I no longer drink because of it and the damage done to my liver in coordination..
Posted by N2cars
Member since Feb 2008
34776 posts
Posted on 3/10/25 at 7:38 pm to
Best of luck, you're seeing good people.


Lactose intolerant?
Posted by zippyputt
Member since Jul 2005
6543 posts
Posted on 3/10/25 at 7:54 pm to
Best of luck with your son. I’ve said a prayer for him.
Posted by WW
Member since Dec 2013
2588 posts
Posted on 3/10/25 at 8:04 pm to
quote:

I take essentially a super charged antacid that keeps the irritation to nothing

Can you share the name?
Posted by Zakatak
Member since Nov 2011
372 posts
Posted on 3/10/25 at 8:23 pm to
Eosinophil levels high?
Posted by TROLA
BATON ROUGE
Member since Apr 2004
13939 posts
Posted on 3/10/25 at 8:30 pm to
quote:

Can you share the name?


Pantoprazole


Protonic is the brand I believe.

I had gastritis , ulcers as well, suffered severe heartburn and gerd.
Posted by Dixie2023
Member since Mar 2023
3602 posts
Posted on 3/10/25 at 8:45 pm to
Even if not the case here, this is true. A lot of issues start bc the gut is off. No experience with human med., but in the pet world, a holistic vet will look into gut health for certain issues. Even as something such as bad itching vs just injecting meds and sending on.

OP, I hope things settle for your son quickly. And the docs can help him. In addition to any discomfort for him, as a parent, we feel hopeless when our kids suffer.
Posted by Gee Grenouille
Bogalusa
Member since Jul 2018
6835 posts
Posted on 3/10/25 at 8:50 pm to
quote:

Eosinophil


I will check his test results to see if they did that one
Posted by damonster
Member since Sep 2010
2400 posts
Posted on 3/11/25 at 12:52 am to
Could it be a possible gluten allergy? Reading all of this sounded really familiar. A friend of mine spent several years going to all sorts of doctors trying to figure out why her stomach was always hurting. Turns out it was a 2 fold issue. She can not eat gluten which is very difficult in itself, but also her pylorus wasn’t allowing her food to drain right. Basically breakfast was sitting all day long causing the gastritis. Ultimately had to cut all gluten out and about every year or so has to go in and have Botox injected into her pylorus to allow it to relax and allow her food to drain properly. I feel for you because this issue is very difficult to figure out. I never would have believed someone needed Botox injected into their stomach, but it works. Doesn’t cure everything, but does help with the gastritis. Good luck.
Posted by Gee Grenouille
Bogalusa
Member since Jul 2018
6835 posts
Posted on 3/11/25 at 6:17 am to
We are going to try gluten free to see.
Posted by Tigerstark
Parts unknown
Member since Aug 2011
6554 posts
Posted on 3/11/25 at 6:46 am to
He needs to try some sort of elimination diet. Specific carbohydrate or something similar to get rid of a whole bunch of potential foods or food additives that are causing issues. See if that improves anything. Stop eating almost anything processed especially if he’s eating it now while having issues.

Assuming crohns etc was ruled out.

Posted by lsutiger251
BR
Member since Oct 2022
200 posts
Posted on 3/11/25 at 7:01 am to
He is likely in a "flare" state currently and his immune system is targeting the stomach cells. Prednisone is a steroid commonly used to get things settled temporarily (not a long term solution). Getting him into a maintenance stage of managing they symptoms will be critical. The iron and B12 are treating the symptoms of vitamin deficiency but a long term solution could be through immunosuppressants or H2 blockers. Diet, exercise, and daily vitamin consumption will be a major factor in the overall well being of this fella.


-not a DR
Posted by WylieTiger
Member since Nov 2006
13974 posts
Posted on 3/11/25 at 7:30 am to
Not a fan of that circus act.
Posted by RebelSquared
Member since Oct 2024
116 posts
Posted on 3/11/25 at 7:35 am to
quote:

We are going to try gluten free to see.


Highly recommend good celiac testing such as antibodies plus genetics that are done at labs like Prometheus. They are expensive but worth it IMO.
Going gluten free is really hard to do correctly especially if you are dealing with true celiac disease which may not be the case.

This post was edited on 3/11/25 at 7:40 am
Posted by Gee Grenouille
Bogalusa
Member since Jul 2018
6835 posts
Posted on 3/11/25 at 9:55 am to
quote:

celiac disease


Gastro said no signs of this during scope.
Posted by epbart
new york city
Member since Mar 2005
3104 posts
Posted on 3/11/25 at 12:25 pm to
There's some good leads regarding diet/lifestyle and while you should obviously listen to doctors, you should be careful to assess if the doctor is just trying to put your son on a medication vs trying to understand the cause.

CoachChappy's post about inflammation is largely true... the current damage to the stomach lining is a function of chronic inflammation damaging the tissue due to the chronic underlying condition (whether genetic, dietary, environmental, or otherwise). The condition needs to be identified, but it is likely that something in the diet is exacerbating the inflammation and furthering the damage.

I suspect if you study "anti-inflammatory diet", you will find some overlap with other advice in this thread. But it might run counter to other advice. Until you do figure out what is either causing it or aggravating it, you and your son may have to carefully test different things. Typical anti-inflammatory diets recommend staying away from red meat. Anecdotally, some people claim going on a carnivore diet cured them of similar conditions. Each of us has a unique body chemistry which makes it difficult to point to a one size fits all solution in modern diets.

I'd also consider having him try intermittent fasting to give his stomach a rest, as well as adding probiotics/prebiotics and fermented food.
Posted by armsdealer
Member since Feb 2016
12018 posts
Posted on 3/11/25 at 9:30 pm to
quote:


Eosinophil


I will check his test results to see if they did that one


The Eosinophil count will be in the CBC but that won't be diagnostic of eosinophilic gastritis. That test would involve counting eosinophils in the gastric lining, also the symptoms are much more acute than autoimmune gastritis. Really, the antibody tests will be your best bet if they haven't been done.
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