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re: Any cpap machine users here?

Posted on 8/4/16 at 8:11 am to
Posted by terd ferguson
Darren Wilson Fan Club President
Member since Aug 2007
114938 posts
Posted on 8/4/16 at 8:11 am to
quote:

Ive had it 3 nights and still am not sleeping well. Should I call my doctor or the sleep center?


Yes. You should notice a difference almost immediately. I think most people I've talked to have said they could tell the first morning they woke up.

quote:

I dont know but I hate calling my doctor his nurse really makes me feel like im bothering her when I talk to her.


frick that bitch. It's your health at play here. Tell her to cut her fricking attitude and put a man on the phone.
Posted by LSUChamps03
S. Louisiana
Member since Feb 2006
3300 posts
Posted on 8/4/16 at 8:12 am to
quote:

also while on the subject is it 100% necessary to use distilled water?


The nurse told me it is ok to use tap water on occasion, but that using it too often will result in build-up in the container. For .79/gallon I just go with the distilled.
Posted by terd ferguson
Darren Wilson Fan Club President
Member since Aug 2007
114938 posts
Posted on 8/4/16 at 8:13 am to
quote:

also while on the subject is it 100% necessary to use distilled water?


I buy a gallon of distilled water for $1 and it lasts me a while. I used filtered water at first but it ends up leaving residue even if you clean the chamber every day. Since I've been using only distilled water I haven't had any problems.
Posted by dabigfella
Member since Mar 2016
6687 posts
Posted on 8/4/16 at 8:19 am to
thanks for the tip, i just got it on amazon now, I think my issue with waking up is I sleep on my stomach and the tube gets in the way, I like how that one you posted has the tube on the head it should help alot!
Posted by ConfusedHawgInMO
Member since Apr 2014
3578 posts
Posted on 8/4/16 at 8:21 am to
quote:

The nurse told me it is ok to use tap water on occasion, but that using it too often will result in build-up in the container


I always use distilled. I guess I'm afraid I'll get some brain eating amoeba if I use tap and well I just don't have any extra brain to spare.
Posted by eitek1
Member since Jun 2011
2907 posts
Posted on 8/4/16 at 8:22 am to
What kind of CPAP do you have? Maybe we can find the settings mode and you can tune it yourself. That's what most people end up doing anyway. In this day and age, folks are technically competent enough to manage these things themselves. Honestly is the nurse that's going to work on this thing more technically able than you are?

Also, if you use water that isn't distilled, over time the minerals will drop out and will coat the inside of the water container. If you feel the metal part right now it'll probably feel a little rough due to that.

I use a full face mask. It might take some trial and error but if you get a mask that fits you won't really notice it. If you get one that doesn't fit, you WON'T get any sleep AT ALL. I just changed masks and am having some trouble myself.
Posted by LSUChamps03
S. Louisiana
Member since Feb 2006
3300 posts
Posted on 8/4/16 at 8:23 am to
quote:

I like how that one you posted has the tube on the head it should help alot


Yes, that is a great feature. It allows for more movement without disrupting the mask's placement. Good luck with it.
Posted by terd ferguson
Darren Wilson Fan Club President
Member since Aug 2007
114938 posts
Posted on 8/4/16 at 8:25 am to
quote:

Maybe we can find the settings mode and you can tune it yourself.


That's what I did after talking to some people on Apnea Board. You can learn more by reading through threads there than you ever will from some nurse. I played around with the settings until I found something that works for me (I'm at 9-13 right now).

Here's some info on changing your pressure: LINK
Posted by terd ferguson
Darren Wilson Fan Club President
Member since Aug 2007
114938 posts
Posted on 8/4/16 at 8:29 am to
quote:

I use a full face mask. It might take some trial and error but if you get a mask that fits you won't really notice it. If you get one that doesn't fit, you WON'T get any sleep AT ALL.


I was using the PR ComfortGel Nasal Mask and tried switching to a nasal pillow. I couldn't get used to it and ended up going back to the ComfortGel.

I will say it's entirely dependent on the person. I sleep mostly on my back or slightly on my side so a nasal mask works best for me. Someone who wakes up with a dry mouth is probably opening their mouth causing air to go out and drying them out. Someone like that would probably do best with full face or using a chin strap to keep the mouth closed. There are a lot of variables depending on the person.

Where do you get your supplies? I've been using CPAP.com bc it seems like they have better prices than most places on masks and filters.
This post was edited on 8/4/16 at 8:32 am
Posted by PepaSpray
Adamantium Membership
Member since Aug 2012
11080 posts
Posted on 8/4/16 at 8:53 am to
My Dr ordered it, but because I'm only in my early 30s, insurance wouldn't pay for it.

I did a take home test thing and haven't heard back.
Posted by dabigfella
Member since Mar 2016
6687 posts
Posted on 8/4/16 at 9:02 am to
I'm early 30s as well and I did 2 sleep tests. I know I have a very high deductible bc I want low monthly payments but I ended up paying $975 each time myself at apnix to do the sleep studies. They have a little store next door to the sleep center where you get all the equipment after. I just paid $375 on Saturday and got my machine finally. So those were the only costs I incurred but insurance def paid the balance of whatever those studies were for me and were probably the same age give or take
Posted by greygoose
Member since Aug 2013
15162 posts
Posted on 8/4/16 at 9:03 am to
quote:

I realize these things are improving tens of thousands of lives, but I also feel like there may be some scam to the industry at this point. You hardly ever hear of anyone who gets the study and doesn't have one recommended.


That's because doctor's don't usually recommend a sleep study for someone that they are not fairly certain, has sleep apnea.
Posted by Murtown
OT Ballerville
Member since Sep 2014
1801 posts
Posted on 8/4/16 at 9:04 am to
My Dad uses one and he said it changed his life. When the electricity goes out he will go and hook up the generator and run it all night just to have his machine. Can't sleep without it. He even has a travel one so he doesn't have to pack up the one at home every time he goes somewhere.
Posted by Bmath
LA
Member since Aug 2010
18919 posts
Posted on 8/4/16 at 9:07 am to
quote:

I realize these things are improving tens of thousands of lives, but I also feel like there may be some scam to the industry at this point. You hardly ever hear of anyone who gets the study and doesn't have one recommended.


Because most people that get tested for it are having symptoms of sleep apnea. If everyone was getting tested as part of a routine exam, then of course the diagnosis rate from people getting sleep studies would go down.
Posted by AgentUtah
Member since Jul 2011
1798 posts
Posted on 8/4/16 at 9:30 am to
i just scheduled my sleep study. I can't wait to wake up with out my heart beating like i just ran a marathon
Posted by tigersandsaints
Member since Dec 2005
10675 posts
Posted on 8/4/16 at 9:35 am to
How has it helped you sleep? it has helped me by actually getting a good nights sleep

Do you feel better the next day after using it? I feel great when I get up


What led you to getting one? I had always snored and I guess it just kept getting worse and worse over time. One night I woke up and my wife was starting at me and she looked scared as hell and she had her hand on my chest. I had stopped breathing for roughly 20 sec.
Posted by TheOcean
#honeyfriedchicken
Member since Aug 2004
46677 posts
Posted on 8/4/16 at 9:40 am to
You seem to know your shite.

How much would I have to pay to get a decent machine? Is it hard to adjust the settings on your own?
Posted by TheOcean
#honeyfriedchicken
Member since Aug 2004
46677 posts
Posted on 8/4/16 at 9:49 am to
How much did you pay for your machine? How tough is it to set up on your own?
Posted by terd ferguson
Darren Wilson Fan Club President
Member since Aug 2007
114938 posts
Posted on 8/4/16 at 9:50 am to
quote:

You seem to know your shite.


I did a lot of research AFTER I got my first POS machine. I recommend reading the Apnea Board forums... lots of people with knowledge there.

quote:

How much would I have to pay to get a decent machine?


Depends on if you want new or used and what features (auto, data collection, heated, humidifier, etc). You can get really good deals on used machines.

quote:

Is it hard to adjust the settings on your own?


Not at all. I talked to some people about tweeking my pressure and once I figured out the range I wanted I was able to find all the info online.
Posted by Kingpenm3
Xanadu
Member since Aug 2011
9975 posts
Posted on 8/4/16 at 9:53 am to
quote:

Ive had mine for 3 days now and im still waking up at night


It's a process, not an instant change. Just give it a little time.

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