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re: OT Med Folks--My Docs are Stumped

Posted on 5/20/16 at 5:41 pm to
Posted by IonaTiger
The Commonwealth Of Virginia
Member since Mar 2006
33053 posts
Posted on 5/20/16 at 5:41 pm to
I'm not a doctor so my only advice is don't buy any:

green bananas
long term bonds
long playing records

Good luck.
Posted by tigerpimpbot
Chairman of the Pool Board
Member since Nov 2011
67141 posts
Posted on 5/20/16 at 5:45 pm to
quote:

Started with my GP then got referred to a vascular surgeon. On the lookout for the right specialist to see right now.


Whoever said to find the best rheumatologist earlier in this thread was spot on IMO. That's what I would do.
Posted by Carson123987
Middle Court at the Rec
Member since Jul 2011
66523 posts
Posted on 5/20/16 at 5:47 pm to
cosmo is the man to answer this
Posted by MrSpock
Member since Sep 2015
4384 posts
Posted on 5/20/16 at 5:50 pm to
quote:

None of those would be an issue with this particuar condition. Get off Google, son. A little information can be a dangerous thing.



What's your specialty and where did you train?
Posted by CrimsonTideMD
Member since Dec 2010
6925 posts
Posted on 5/20/16 at 5:54 pm to
Sorry to hear that, bud.

Where do you live?

If it were me, I'd go to Dr Michael Silva. He's a vascular surgeon in the Houston/Galveston area. Wrote the book on carotid endarterectomies and general endovascular treatments. Also a good dude.
Posted by CrimsonTideMD
Member since Dec 2010
6925 posts
Posted on 5/20/16 at 5:55 pm to
And also see a rheumatologist
Posted by fishfighter
RIP
Member since Apr 2008
40026 posts
Posted on 5/20/16 at 5:55 pm to
I'm not a doctor so my only advice is don't buy any: green bananas long term bonds long playing records Good luck.

Holy shite. But I did

Posted by IonaTiger
The Commonwealth Of Virginia
Member since Mar 2006
33053 posts
Posted on 5/20/16 at 6:02 pm to
Fish, you're gonna bury us all.
Posted by BamaScoop
Panama City Beach, Florida
Member since May 2007
53967 posts
Posted on 5/20/16 at 6:08 pm to
quote:

However, if that doc misdiagnosed you, you may have grounds for a lawsuit. If you want to discuss options and potential settlements, let me know.


If you are an attorney it is against the rules of professional conduct for you to solicit clients. What the frick is wrong with people. If you are soliciting for an attorney it is also in violation.
Posted by BamaScoop
Panama City Beach, Florida
Member since May 2007
53967 posts
Posted on 5/20/16 at 6:10 pm to
my question for you is this because it wasn't clear to me. Was the left side and the vertebral arteries clear during the first exam that showed 75% occlusion of the right carotid?

I find it hard to believe the right side became totally occluded with 6 weeks.
Posted by game blouses
Member since May 2016
7 posts
Posted on 5/20/16 at 8:47 pm to
All clear on other 3 blood highways. The evidence kind of points to it not being a plaque (cholesterol) problem as evidenced by surgeon's remarks post-op and by the swiftness of blockage after surgery.
Labs showing no big indicators for vasculitis
Want to say big thanks to everybody. Lots of helpful posts and and even the unhelpful ones were OT gold which I appreciate as well
Will keep seeking answers and treatment
Posted by ljhog
Lake Jackson, Tx.
Member since Apr 2009
19127 posts
Posted on 5/20/16 at 9:08 pm to
Have your doctor make an appointment for you at the Mayo Clinic in Rochester, MN. Or if need be do it yourself. Have a copy of all your records, clinical notes, lab results, surgical notes, all of it sent to the doctor there who will handle your case.
DO NOT SCREW AROUND ANY LONGER.
This post was edited on 5/22/16 at 6:33 pm
Posted by KillTheGophers
Member since Jan 2016
6268 posts
Posted on 5/20/16 at 9:15 pm to
I concur with Mayo Clinic recommendation by ljhog - you need to get your doctor to get you in ASAP - and ensure ALL your medical records get up there.

You will receive a couple packets from Mayo once you are in - do everyting the packets require you to do and fill out the information requests as detailed as possible.

Prayers sent your way - good luck.
This post was edited on 5/20/16 at 9:19 pm
Posted by KillTheGophers
Member since Jan 2016
6268 posts
Posted on 5/20/16 at 9:18 pm to
If you can get an appointment, let me know -if I have any Marriott points, you can have some to offset hotel expense while up there.

Rochester Marriott

Posted by Parallax
Member since Feb 2016
1451 posts
Posted on 5/20/16 at 9:20 pm to
There are a lot of great hospitals in this country, not sure why there's a knee jerk reaction for so many people to go to Mayo or MD Anderson.
Posted by LSUTigerDoc
Baton Rouge
Member since Oct 2008
583 posts
Posted on 5/20/16 at 9:22 pm to
Both conditions have been discussed here, but vasculitis and hypercoagulable states need to be considered. My problem with vasculitis as the diagnosis is that vasculitis of a large artery is rarely an incidental finding. An underlying hypercoagulable state remains in the differential especially with a quick recurrence of a blockage of an artery after the endothelial injury caused by the surgery. I would ensure that anyone working up a potential hypercoagulable state has a very keen understanding of the lupus anticoagulants and how they are tested.

Please don't sit on this. You have a problem that needs to be addressed quickly.
Posted by KillTheGophers
Member since Jan 2016
6268 posts
Posted on 5/20/16 at 9:24 pm to
I have personal experience with some of the staff at Mayo - my reaction is not knee jerk.

That said, the OP may need a quicker response than Mayo can give.



This post was edited on 5/20/16 at 9:27 pm
Posted by Parallax
Member since Feb 2016
1451 posts
Posted on 5/20/16 at 9:25 pm to
I promise you could get as good or better care much closer than Rochester, MN.
Posted by KillTheGophers
Member since Jan 2016
6268 posts
Posted on 5/20/16 at 9:28 pm to
Give the OP some recs and counsel instead of us getting into a dick measuring contest.

Posted by LSU Wayne
Walker
Member since Apr 2005
4365 posts
Posted on 5/20/16 at 9:29 pm to
Get someone to check you out for Ehlers Danlos Syndrome Vascular type. It can be tested for by genetic test unlike normal hyper mobile type EDS.
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