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Registered on:5/20/2016
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My carotids were blocked really bad on both sides after it happened from the false lumen clotting off,


Did you have an injury? My GP said dissection would have been seen on CT scans.
Have been through all the labs for vasculitis. The markers are "un-impressive". Hopefully 2-6th opinions will be helpful.
Laffy.
Going to a local Cardiologist Tuesday
Awaiting appointment call back on Mayo Clinic
Will search a Rheum on Monday
All clear on other 3 blood highways. The evidence kind of points to it not being a plaque (cholesterol) problem as evidenced by surgeon's remarks post-op and by the swiftness of blockage after surgery.
Labs showing no big indicators for vasculitis
Want to say big thanks to everybody. Lots of helpful posts and and even the unhelpful ones were OT gold which I appreciate as well
Will keep seeking answers and treatment
Just fumbling around with unsuccessful labs and not saying or doing much other than putting me on Plavix.
Started with my GP then got referred to a vascular surgeon. On the lookout for the right specialist to see right now.
No singing for me but who knows....seems like the million labs would have found infection by now. I've done tons of research on Carotid problems and it's always a plaque(cholesterol) problem or dissection from injury. So I don't fit either of these and Docs are scratching heads. Surely SURELY I'm not the first person to ever have blocked carotid that's not from plaque or injury. Anyways thanks for prayers and if any Docs or med workers have advice it's certainly welcome...

OT Med Folks--My Docs are Stumped

Posted by game blouses on 5/20/16 at 3:09 pm
8 year lurker. Feel so familiar with most of you had to start new account just to post...anyways

36 year old male , maybe 5lbs overweight
March 2016 Annual wellness check discovers a bruit on right side neck
Ultrasound and CT dye scan shows 75% blockage. Docs recommend endarterectomy Procedure performed April 2016
Now here's the trouble--after surgery Doc sais "You looked different in there then what I always see" (He does about 6 of these a week). He sais "you're muscle and fat was very stuck together , a sign of inflammation , then inside you're artery where I Expected lots of plaque, you had some plaque and lots of inflamed tissue , but oh well you are 0% blocked now and good to go. See you in 6 weeks"
Six weeks later new ultrasound and CT dye scan show 100% blockage. Only the left side carotid along with vertebral veins are supplying blood/oxygen to brain
Multiple labs , no high inflammation markers noted
So what now? Hate to start over with more Docs just to see them scratch their heads like my current docs are. Need a Doc who has seen this before

I know "Why the OT?" But I am going EVERYWHERE with this as I sure anyone would
Any advice from the med folks out there?