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Message
Posted on 12/2/21 at 7:12 pm to jeffsdad
quote:
Wait, what? Why?
My dad just had the giant robot spider prostatectomy. From what we understood, radiation causes changes to the prostate that make surgery very hard to successfully complete later. It's like the texture and how it attaches to stuff in the area changes and makes it hard to peel the prostate cleanly off the surroundings successfully if the cancer returns. If surgery after radiation makes sure to take the cancer, the risk of bad damage to the rectum, nerves, etc. Is relatively high. If you try to spare the surrounding structures, you run a very real risk of leaving cancer behind.
At least that's how I understood what the urologist said.
Discuss with your doc.
This post was edited on 12/2/21 at 7:38 pm
Posted on 12/2/21 at 7:24 pm to jeffsdad
Sorry to hear it, JD. I have experience with a lot of medical issues, but this is not one I know much aboot.
All I can do is offer encouragement and try to send good thoughts and vibes your way.
All I can do is offer encouragement and try to send good thoughts and vibes your way.
Posted on 12/2/21 at 7:25 pm to jeffsdad
There is a genome test they can run on the biopsy core samples that will give a score used in the same manner as Gleason. They examine the genetic make up of the cells to see what type of cells are there (aggressive /nonaggressive). It can give the patient another data point that can help uncover additional risk not seen with the Gleason. It’s not cheap but should be covered by insurance.
Posted on 12/2/21 at 7:42 pm to CajunTiger92
I had mine removed in 2014, family history of prostate cancer and was advised that if I had radiation first, I wouldn't be able to have surgery...but if I had the surgery, I could have radiation if necessary...
it was a rough operation as I was under for about 8 hours due to the size of my prostate...
recovery took about a year to return to something resembling normal...
it was a rough operation as I was under for about 8 hours due to the size of my prostate...
recovery took about a year to return to something resembling normal...
Posted on 12/2/21 at 8:26 pm to vl100butch
My urologist and radiologist both told me the same thing : if you have radiation first, surgery is not a safe second option if cancer returns. The detailed explanation above matches what I was told, too. If you have surgery first, then radiation is an option.
Posted on 12/2/21 at 8:33 pm to jeffsdad
quote:
Gleason 6
Wait
Thats not real cancer
Posted on 12/2/21 at 8:35 pm to vl100butch
Dang Butch.
Where did you have surgery?
Where did you have surgery?
Posted on 12/2/21 at 8:40 pm to CajunTiger92
quote:
There is a genome test they can run on the biopsy core samples that will give a score used in the same manner as Gleason. They examine the genetic make up of the cells to see what type of cells are there (aggressive /nonaggressive). It can give the patient another data point that can help uncover additional risk not seen with the Gleason. It’s not cheap but should be covered by insurance.
That was done from the first biopsy from a year ago. the percentages from that those 3 suspicious places were deemed 27% likely nonagressive, 39% agressive, and 34% not likely to be cancerous. Then they did this recent biopsy which came back as said.
And yes some say Gleason of 6 is non-cancerous, but most docs consider it cancer since it can invade surrounding areas and causes cell anomalies.
Posted on 12/2/21 at 9:00 pm to ItzMe1972
I had my surgery at River Oaks in Flowood...
Posted on 12/2/21 at 9:13 pm to jeffsdad
About 2 years ago, I did some blood work and got a call from a nurse a couple days later. She says, “Your PSA is 12.4.”
I’m like, “Okay. Is that not normal?” She says, “No, it’s high and you should see a doctor soon.” I tell her thanks and hang up and forget about it. I didn’t even know what a PSA was.
A couple days later, I’m at work in Houston between flights and my wife calls me. She had opened my test results and saw the PSA. (She was bringing the results to our insurance to get a $100 refund). She asked if I was concerned and I said no. She says, “Look up a PSA test on your phone and what your numbers should be and call me back.”
So I look up PSA scores. It says that a PSA over 10 means you have a 50% of prostate cancer. My heart dropped. I called my wife back and told her I was coming home. Called out sick and flew home. Next day I got an emergency appointment with a doctor and he gave me a prostate exam and found nothing. Did the blood work again and the PSA came back normal.
Don’t know how that happened, but it scared the shite out of me.
I’m like, “Okay. Is that not normal?” She says, “No, it’s high and you should see a doctor soon.” I tell her thanks and hang up and forget about it. I didn’t even know what a PSA was.
A couple days later, I’m at work in Houston between flights and my wife calls me. She had opened my test results and saw the PSA. (She was bringing the results to our insurance to get a $100 refund). She asked if I was concerned and I said no. She says, “Look up a PSA test on your phone and what your numbers should be and call me back.”
So I look up PSA scores. It says that a PSA over 10 means you have a 50% of prostate cancer. My heart dropped. I called my wife back and told her I was coming home. Called out sick and flew home. Next day I got an emergency appointment with a doctor and he gave me a prostate exam and found nothing. Did the blood work again and the PSA came back normal.
Don’t know how that happened, but it scared the shite out of me.
Posted on 12/2/21 at 9:20 pm to bhtigerfan
As a med tech, I hate to hear stories like that. Mis-identified specimen probably.
Posted on 12/2/21 at 9:36 pm to bhtigerfan
quote:
Don’t know how that happened, but it scared the shite out of me.
Enlarged prostate will give a higher rating PSA and so will sex the night before a blood test. Happened to me, I had a biopsy ran and all 12 samples came back negative. Turns out I have a very enlarged prostate.
Posted on 12/2/21 at 9:45 pm to PBD4BAMA
Dad had a Gleason of 8, went to MD Anderson and they refused to treat him( years ago, protocols there cut off at 7, then, I know, was shocked), so called a friend that was a Urologist, up in Tulsa, and he agreed to see him, and they did Radiation implants and Lupron. Dad lived another 10 years and never had any prostate issues….
Posted on 12/2/21 at 9:48 pm to jeffsdad
At 6 I would wait. It could be years before you have to make a decision. I went two years before I elected to surgery. Relax. You will beat this.
Posted on 12/2/21 at 9:56 pm to metallica81788
Even if it’s the Mayo Clinic. Hifu vs radiation or vs complete removal?
Posted on 12/2/21 at 9:57 pm to jeffsdad
This post was edited on 11/7/22 at 1:33 pm
Posted on 12/2/21 at 9:57 pm to aTmTexas Dillo
What meds did you take to lower your PSA aRmTexasDillo? I have an enlarged prostate with a PSA of 9.7. I've had 2 biopsies with no cancer.
Posted on 12/2/21 at 10:03 pm to jivy26
I’ll have three opinions when I’m done. I was trying to figure out what’s the desk with HIfU vs radiation or complete removal
Posted on 12/2/21 at 10:23 pm to patmacff
quote:
I've had 2 biopsies
Wow. Prayers sent.
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