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Started By
Message
re: Rare but Scary Medical Conditions
Posted on 4/24/25 at 2:24 pm to SaintlyTiger88
Posted on 4/24/25 at 2:24 pm to SaintlyTiger88
Stevens-Johnson Syndrome
0
Posted on 4/24/25 at 2:31 pm to sledgehammer
quote:
When a botfly lays eggs on your skin and the larvae grows inside you. They have some videos but here is a picture showing the extraction.
It's really not all that rare in central america/tropical south america. A friend who is a bird guide and lives in Costa Rica has had 3 botflies. When we were in Guyana we watched as a local guide had 3 of them cut out by his buddies, I think he's had at least a dozen. They were not anywhere as large as the one in your photo, but the idea is creepy. My Costa Rica friend nearly died from dengue fever last year (his second time). And an Australian guide friend nearly died from Malaria after a trip to New Guinea. There are a lot of nasty diseases outside the US. None of them scare me as much as some of the ones mentioned in this thread.
Posted on 4/26/25 at 11:59 am to SaintlyTiger88
quote:
Harlequin ichthyosis (HI) is a rare, life-threatening genetic disorder that affects an infant's skin. It's the most severe form of ichthyosis, an autosomal recessive disorder, and occurs in 1 in 300,000 births. Babies with HI are born prematurely with thick, diamond-shaped skin plates separated by deep cracks. The tightness of the skin can cause the eyelids and lips to turn inside out, and make it difficult to breathe and eat.
Pictures and videos of this condition in newborns are disturbing.
Posted on 4/26/25 at 12:03 pm to Downburst
Baldness is both terrible and debilitating
Posted on 4/26/25 at 12:29 pm to Jizzy08
quote:
Creutzfeldt-Jakob prion disease. Basically you ingest a malformed protein and your brain replicates it which is terminal. Same as mad cow disease.
And that’s why people are scared of the congenital wasting disease in deer.
But aren’t most cases of CJD spontaneous (which is even more terrifying).
This post was edited on 4/26/25 at 12:30 pm
Posted on 4/26/25 at 12:48 pm to SaintlyTiger88
True story: a lady came into the ER about 15 years ago, maybe longer, with an infection. We see infections all the time so I didn’t think much about it when I read her admission file. However, when she took her towel off of the wound I had never seen anything like it in books or clinical’s up to that point or since. It was a form of resistant staph but much more aggressive and advanced. It had already eaten its way to the bone in less than 48 hours, assuming the original wound wasn’t deeper than she described but it was difficult to discern the origin. They immediately prepped her for amputation but it was too late. She became septic and died a few days later. All from slipping and cutting her leg at work, she had two young kids. I will never forget the look on her face. She knew and it was a look of defeat
Posted on 4/26/25 at 1:33 pm to prplhze2000
I had this when I was nine years old 36 years ago. From what I have read, mine seems very mild compared to some other cases.
Posted on 4/26/25 at 1:46 pm to Auburn80
quote:
Wish they could do that for ALS and Cancer.
They have for some cancers too
Posted on 4/26/25 at 1:52 pm to Artificial Ignorance
quote:
Anesthesia…Michael Jackson drug?
Good old "Propofol", guaranteed to knock you out faster than a hard right from Mike Tyson.
Posted on 4/26/25 at 2:09 pm to SaintlyTiger88
I just saw a Tik Tok or an Instagram story about a woman who had an ovarian teratoma. I had never heard of it before but it’s disgusting and terrifying. They are also found in testicles and those are often malignant. In some kind of cellular misfire, they are made up of bone, teeth, muscle, hair and even eyeball material.
I can’t do it justice for a description so here’s a WebMD link. Photo link failed so you’re on your own. Not for the squeamish.
WebMD - teratoma
I can’t do it justice for a description so here’s a WebMD link. Photo link failed so you’re on your own. Not for the squeamish.
WebMD - teratoma
Posted on 4/26/25 at 2:16 pm to gumbo2176
quote:
Anesthesia…Michael Jackson drug?
Good old "Propofol", guaranteed to knock you out faster than a hard right from Mike Tyson.
The irony here is that propofol puts you under. But it's not sleep. There's no rest. No REM sleep. It does not rejuvenate you or make you refreshed.
That idiot Dr was giving MJ propofol and couldn't figure out why he was still exhausted and craving sleep
Posted on 4/26/25 at 3:37 pm to SmelvinRat
quote:
My mom had scleroderma and lupus.
My wife has had lupus like symptoms since 2014. It all started with a random really bad allergic reaction that came out of nowhere. Face swole up, huge hives all over.
Stupid Dr's in Alaska wouldn't diagnosed her, she just got officially diagnosed with lupus a couple weeks ago by the Dr down here. We are glad they caught her during a really bad flare as she finally popped positive for all the big lupus bloodwork signals.
I wouldn't wish Lupus on anybody. The flares can be brutal when they aren't controlled.
Posted on 4/26/25 at 10:53 pm to SaintlyTiger88
Posted on 4/26/25 at 11:02 pm to SaintlyTiger88
If it's any consolation you'll probably die of something common like millions of others do.
This post was edited on 4/26/25 at 11:07 pm
Posted on 4/26/25 at 11:06 pm to TideSaint
“ALS”
Quadriplegia just as bad.
I had a friend die from ALS.
I’d 10 times rather get dementia or any other brain disease.Dying but don’t know it.
I saw lots of awful things in ICU, some that stood out were Stevens- Johnson Syndrome -rare drug reaction in which the entire body would break out in severe blisters,similar to having 2nd degree burns over entire body.
Another was necrotizing fasciitis (flesh eating bacteria),saw a really bad case of that where pt died.
Guiiian-Barre is scary,most people recover but not all.
Quadriplegia just as bad.
I had a friend die from ALS.
I’d 10 times rather get dementia or any other brain disease.Dying but don’t know it.
I saw lots of awful things in ICU, some that stood out were Stevens- Johnson Syndrome -rare drug reaction in which the entire body would break out in severe blisters,similar to having 2nd degree burns over entire body.
Another was necrotizing fasciitis (flesh eating bacteria),saw a really bad case of that where pt died.
Guiiian-Barre is scary,most people recover but not all.
Posted on 4/26/25 at 11:19 pm to prplhze2000
quote:
Guillen-Barre (sp?). Read a survivors account of it. Horrifying.
My grandfather had it in the seventies. Now there are treatments for it. Back then all they had to offer was supportive care. He was paralyzed for weeks and on a ventilator for a while. Finally he started getting better, although he had a long rehab ahead of him. Then he threw a blood clot to his lung, probably from being bedridden so long, and died. Twelve year old me had been praying earnestly for his recovery, and I took it as a giant FU from God.
I still think there's probably some force or entity behind the universe. I no longer can believe it's benevolent. At best it's indifferent. Sometimes it seems malevolent.
This post was edited on 4/26/25 at 11:23 pm
Posted on 4/27/25 at 8:41 am to madamsquirrel
quote:
My pawpaw died from mesothelioma. You basically suffocate at the end. It was brutal.
Eta- it was caused by a plant that went bankrupt so an attorney would not have helped
You don't sue the plant; you sue the asbestos manufacturers. They have set aside billions to settle these suits and that is why lawyers are all lined up to get a piece of it. A little for you and more for them.
Posted on 4/27/25 at 8:48 am to SaintlyTiger88
quote:
To me, this is extremely disturbing because when a person is diagnosed with this disease, all they can do is wait to die and never fall asleep again.
Thanks. Now I’ll lay in bed at night thinking about this and never be able to fall asleep again.
This post was edited on 4/27/25 at 8:49 am
Posted on 4/27/25 at 8:51 am to Jizzy08
quote:
Huntingtons disease also
My wife had an aunt by marriage who died from this. Terrible disease.
Posted on 4/27/25 at 9:14 am to SaintlyTiger88
ALS ain’t no picnic.
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