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Started By
Message
re: I start chemo and radiation this week
Posted on 3/21/22 at 1:23 pm to RogerTheShrubber
Posted on 3/21/22 at 1:23 pm to RogerTheShrubber
Prayers Rog
0
Posted on 3/21/22 at 1:37 pm to RogerTheShrubber
God bless all you guys and your families. I couldn't imagine having to face all of that. Your bravery, toughness, and resolve is truly inspiring.
Posted on 3/21/22 at 1:42 pm to doublecutter
Wishing you the best of luck in treatment and recovery.
Posted on 3/21/22 at 1:46 pm to doublecutter
I wish you nothing but the best.
They have gotten so much better at what you are about to go thru.
They have gotten so much better at what you are about to go thru.
Posted on 3/21/22 at 1:51 pm to doublecutter
Remember that with a cancer diagnosis, that does not ever mean it is over. Rather it means the fight is just beginning. You always have a chance, no matter what the odds!
Posted on 3/21/22 at 1:58 pm to doublecutter
quote:in my prayers brother
doublecutter
Posted on 3/21/22 at 2:10 pm to doublecutter
Rog, keep pushing.
Good luck.
Good luck.
Posted on 3/21/22 at 2:16 pm to doublecutter
Good Luck Buddy
Wish you all the best in this fight!
Wish you all the best in this fight!
Posted on 3/21/22 at 2:23 pm to doublecutter
Couple more tips
Cold sensations from chemo:
- shelf stable orange juice and milk can be taken in at room temperature
-fabric gloves allow you to touch some metallic things
-hand sanitizer so you don't wait forever for water to warmup enough to tolerate washing hands.
-moisturize hands and feet with extreme vigor
- If tall, wear bright colored tennis shoes when getting chemo, my feet stuck and and people bumping was painful
Subclavian injection port was very helpful so they did not have to put in catheter every 2 weeks
Chemo brain is real, accept it and don't flip out. It goes away. I also would get angry at times and know I said stuff to wife and kids I would never say. They took in stride and loved and supported me
Make sure Doc's are aggressive. I had a substitute one day who put off chemo session because I was void of white blood cells, my Doc returned next day and had me come in for chemo that day. She knew I was a fighter and did not want to back down and I am blessed to be free the last 5 years because of her aggressiveness
Only had brief radiation to control rectal bleeding while in ICU after a fall (anemia and dehydration after 2nd Chemo), can't remember any side effects
Keep moving and active
Eat !! esp protein, room temp "shakes" w stuff like carnation instant breakfast, ensure, peanut butter powder, beet powder and esp electrolyte drinks ( used electrolyte powder in water)
Find a " fighting phrase", I used geaux tigers said to myself when in a lot of pain or depression and repeated it with vigor
Cold sensations from chemo:
- shelf stable orange juice and milk can be taken in at room temperature
-fabric gloves allow you to touch some metallic things
-hand sanitizer so you don't wait forever for water to warmup enough to tolerate washing hands.
-moisturize hands and feet with extreme vigor
- If tall, wear bright colored tennis shoes when getting chemo, my feet stuck and and people bumping was painful
Subclavian injection port was very helpful so they did not have to put in catheter every 2 weeks
Chemo brain is real, accept it and don't flip out. It goes away. I also would get angry at times and know I said stuff to wife and kids I would never say. They took in stride and loved and supported me
Make sure Doc's are aggressive. I had a substitute one day who put off chemo session because I was void of white blood cells, my Doc returned next day and had me come in for chemo that day. She knew I was a fighter and did not want to back down and I am blessed to be free the last 5 years because of her aggressiveness
Only had brief radiation to control rectal bleeding while in ICU after a fall (anemia and dehydration after 2nd Chemo), can't remember any side effects
Keep moving and active
Eat !! esp protein, room temp "shakes" w stuff like carnation instant breakfast, ensure, peanut butter powder, beet powder and esp electrolyte drinks ( used electrolyte powder in water)
Find a " fighting phrase", I used geaux tigers said to myself when in a lot of pain or depression and repeated it with vigor
Posted on 3/21/22 at 2:25 pm to doublecutter
I don’t have personal experience with this but, I wish you only the best and I hope to see you posting to this site well into your 100’s. You can beat this.
Posted on 3/21/22 at 2:35 pm to Macfly
I have bladder cancer and just finished a round of chemo last Wednesday. Bladder chemo is a bit different so I don't know if my experiences will be helpful to you but here they are:
For bladder chemo they inject the chemo directly into the bladder and keep it in there for 90 minutes while you are there. Then they drain it and put in another kind of chemo and let you go home and you hold that for 2 hours (or as long as you can) and void it.
It doesn't have any of the traditional chemo side effects like losing hair and I only had a very slight wave on nausea on my first one and none after that. The side effects for bladder chemo are all with the urinary system and they can be pretty significant and troublesome to deal with but they are limited to that area.
Best of luck to you and keep up your spirits. I try to live by the words of St. Paul - "I have fought the good fight, I have finished the race, I have kept the faith." So keep fighting.
For bladder chemo they inject the chemo directly into the bladder and keep it in there for 90 minutes while you are there. Then they drain it and put in another kind of chemo and let you go home and you hold that for 2 hours (or as long as you can) and void it.
It doesn't have any of the traditional chemo side effects like losing hair and I only had a very slight wave on nausea on my first one and none after that. The side effects for bladder chemo are all with the urinary system and they can be pretty significant and troublesome to deal with but they are limited to that area.
Best of luck to you and keep up your spirits. I try to live by the words of St. Paul - "I have fought the good fight, I have finished the race, I have kept the faith." So keep fighting.
Posted on 3/21/22 at 8:38 pm to 5 Deep
Your stage 4 must have been Mets to the liver. That’s basically the only stage 4 that is considered curable. You can resect the liver and it regenerates. Prayers for your continued health. I’ll be around as long as my current chemo works to keep it confined to my lymph nodes. Eventually the chemo will stop working but that might be a while and the great Joe Biden said he would cure cancer so I’m waiting.
Posted on 3/21/22 at 8:52 pm to doublecutter
Prayers sent
Posted on 3/21/22 at 8:56 pm to doublecutter
God bless you. Prayers for your complete recovery.
Posted on 3/21/22 at 9:08 pm to 5 Deep
quote:
This was my exact experience
My wife is also given FOLFOX. Same exact symptoms and she too has the pump for 46 hours (as we speak to be exact).
Posted on 3/21/22 at 9:16 pm to doublecutter
Stay positive bro! I went through chemo for 15 years and came back 5 times. Keep you head up! Know that you can beat this! Have faith! Believe! Pray! God and prayer is powerful! The not knowing is the worst part! Be strong. If you need to talk about it more or just want to someone to talk too about it what to expect. Hit me up
Hicks.John.r@gmail.com
Hicks.John.r@gmail.com
Posted on 3/21/22 at 9:22 pm to doublecutter
I had Lymphoma Burketts.
Surgery which they opened my stomach and took 3 huge tumors out.
No one would tell me about the chemo part when I was recovering in the hospital.
Bone Marrow transplant.
Not as bad as it seems it just you have to stay quarantine for some time.
Then I had 4 rounds of inpatient chemo over 3 months.
1 and 3 were the same.
2 and 4 were the same.
They hit me hard which I had side effects at first.
Have all those steroids, cannot see well everything is a blury, and it is hard to sleep.
Yes, you get agitated more.
The biggest thing is regulating or reducing the side effects.
After I went though that part the rest was not that bad.
Always let your PA, Nurse, or doctor know you have issues.
Mine was I did not understand that when chemo kills stuff it kills the bacteria around your buttocks and mouth.
Every time I used the bathroom it felt like my buttocks was on fire.
Went through that pain until I asked a nurse and they gave me some cream.
Problem solved.
Pretty much started chemo on Monday around Midnight.
Go though the week.
End Chemo around Sat or Sunday.
Go home usually Sunday or Monday.
Counts would go down toward the next weekend.
Hips would vibrate in pain as the bone marrow produced white blood cells.
Then by the following Monday everything was good back to the hospital for inpatient chemo.
Some days are good and some are bad.
After the first month I may have had two or three bad days the rest of the time.
It just adjusting to a new life.
Ports where in my chest which I hated having to cover it to take a shower.
Eventually you will learn to clean it and put a new bandage on it.
Then when it is over it is adjusting back to a normal life.
FYI, if they want to do the spinal tap or the thing in your head to get the spinal fluid to test it. GO WITH THAT VERSUS THE SPINAL TAP!!!!! SPINAL TAP SUCKS!!!!!!!
Surgery which they opened my stomach and took 3 huge tumors out.
No one would tell me about the chemo part when I was recovering in the hospital.
Bone Marrow transplant.
Not as bad as it seems it just you have to stay quarantine for some time.
Then I had 4 rounds of inpatient chemo over 3 months.
1 and 3 were the same.
2 and 4 were the same.
They hit me hard which I had side effects at first.
Have all those steroids, cannot see well everything is a blury, and it is hard to sleep.
Yes, you get agitated more.
The biggest thing is regulating or reducing the side effects.
After I went though that part the rest was not that bad.
Always let your PA, Nurse, or doctor know you have issues.
Mine was I did not understand that when chemo kills stuff it kills the bacteria around your buttocks and mouth.
Every time I used the bathroom it felt like my buttocks was on fire.
Went through that pain until I asked a nurse and they gave me some cream.
Problem solved.
Pretty much started chemo on Monday around Midnight.
Go though the week.
End Chemo around Sat or Sunday.
Go home usually Sunday or Monday.
Counts would go down toward the next weekend.
Hips would vibrate in pain as the bone marrow produced white blood cells.
Then by the following Monday everything was good back to the hospital for inpatient chemo.
Some days are good and some are bad.
After the first month I may have had two or three bad days the rest of the time.
It just adjusting to a new life.
Ports where in my chest which I hated having to cover it to take a shower.
Eventually you will learn to clean it and put a new bandage on it.
Then when it is over it is adjusting back to a normal life.
FYI, if they want to do the spinal tap or the thing in your head to get the spinal fluid to test it. GO WITH THAT VERSUS THE SPINAL TAP!!!!! SPINAL TAP SUCKS!!!!!!!
This post was edited on 3/21/22 at 9:31 pm
Posted on 3/21/22 at 9:23 pm to doublecutter
In June I will be 5 years out from my coloectal cancer diagnosis. My treatment was also chemo (5FU) and 28 radition treatments. The chemo and radiation comletely shrunk my tumor. (My tumor was T3, No).
I tolerated both chemo and radiation well until the last couple of weeks when fatigue and some diarahia set in. With my tumor gone, both oncologist and radition oncologist recommended I have the lower anterior resection, which I had on 11-27-2017.
Doing great now. Prayers sent for you and your family.
I tolerated both chemo and radiation well until the last couple of weeks when fatigue and some diarahia set in. With my tumor gone, both oncologist and radition oncologist recommended I have the lower anterior resection, which I had on 11-27-2017.
Doing great now. Prayers sent for you and your family.
Posted on 3/21/22 at 9:28 pm to doublecutter
What day and how long? So we can post up a thread to give you some funny content to read look laugh at?
Posted on 3/21/22 at 9:31 pm to api1957
Prayers up to all battling the illness in this thread.
Testicular cancer survivor here still under surveillance with next oncology appointment next Thursday.
Testicular cancer survivor here still under surveillance with next oncology appointment next Thursday.
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