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re: Did you screen for Down syndrome?
Posted on 9/9/23 at 4:20 pm to LemmyLives
Posted on 9/9/23 at 4:20 pm to LemmyLives
The link you posted was from 2013. I’m sure the technology has improved since then.
0
Posted on 9/9/23 at 4:20 pm to GeauxZone90
Now I’m amused. NIPP is a paternity test, apparently. Other concerns going on there?
Posted on 9/9/23 at 4:22 pm to Cosmo
quote:
What would you have done if something positive?
We had an amniocentesis after the results of a high probability which is almost 100% accurate in determining if the child has down syndrome.
Posted on 9/9/23 at 4:23 pm to GeauxZone90
quote:
Did you screen for Down syndrome?
Iceland has used this test to “eliminate” Down Syndrome.
quote:
Since prenatal screening tests were introduced in Iceland in the early 2000s, the vast majority of women -- close to 100 percent -- who received a positive test for Down syndrome terminated their pregnancy.
LINK
Not only is this barbaric and eugenics run amok, oftentimes the test is just wrong.
quote:
Sometimes NIPT gives a high chance result when the fetus does not actually have the condition. If you receive a high chance result for Down's syndrome, there is a 1 in 5 (20%) chance that the result is wrong and your fetus does not have the condition.
LINK
Posted on 9/9/23 at 4:27 pm to Darth_Vader
I don’t know where your site is getting its data or how old it is. Most sources show a false positive rate of 1 in 500, or 0.2%.
LINK .
LINK .
Posted on 9/9/23 at 4:37 pm to Evil Little Thing
It would be worth doing in case there was a medical issue you would need to know about
With Down syndrome a heart condition is very common
With Down syndrome a heart condition is very common
Posted on 9/9/23 at 4:38 pm to Evil Little Thing
quote:
Ok? Some people still want to mentally prepare. That’s a perfectly acceptable reason to have it done.
Seriously. Surprised by those who are adamant that there's not a need to test and that mentally preparing isn't needed. I'd much rather know there's a high chance of my child having downs versus going in hoping everything would be normal then getting the news. Again, neither outcome would affect my love for the child but the mental preparation would be nice.
It's been stated before. It's a personal decision that the parent must make. Really no wrong answer either way.
This post was edited on 9/9/23 at 4:41 pm
Posted on 9/9/23 at 4:44 pm to GeauxZone90
No because we wouldn’t kill out child just because he or she may be developmentally challenged.
Posted on 9/9/23 at 5:02 pm to GeauxZone90
Before signing up here?
Posted on 9/9/23 at 5:04 pm to GeauxZone90
No, i was 24 back in 1984, there was really no reason to check for that. My child has Down Syndrome but was not diagnosed until 3 weeks later, the dr that delivered him didn’t even know. Luckily he is very healthy and happy, can function in many different ways but will never be able to live on his own. He loves family and plays basketball. Peop;le with Down Syndrome are very loving. Too bad most people can’t see love the way they do.
Edit to say my son is 38 years old an healthy as an ox. He’s like a child in some ways but like a pre teen in other ways, can do some things and can’t do others, I wouldn’t change a thing with him. And back when he was born the dr actually said something about putt5ing him in a home. That was never a consideration.
Edit to say my son is 38 years old an healthy as an ox. He’s like a child in some ways but like a pre teen in other ways, can do some things and can’t do others, I wouldn’t change a thing with him. And back when he was born the dr actually said something about putt5ing him in a home. That was never a consideration.
This post was edited on 9/9/23 at 5:14 pm
Posted on 9/9/23 at 5:23 pm to GeauxZone90
No. I wasn’t going to do anything anyway.
Friend of mine did — they told her baby had downs .. baby was perfectly healthy without any issues when born and grew healthy.
Friend of mine did — they told her baby had downs .. baby was perfectly healthy without any issues when born and grew healthy.
Posted on 9/9/23 at 5:25 pm to Cosmo
quote:
What would you have done if something positive?
My sister and brother in law were told their child was going to have downs. Before he was born, they had him accepted into a high demand school for special needs children and had applied for and been granted almost 100% tuition assistance. The baby ended up being still born which was a really hard time for them and all of us, but we all still donate regularly to the school because of how awesome it is.
They also learned a lot about Downs that they previously didn't know after they got the results back.
Posted on 9/9/23 at 5:25 pm to tigerbaby17
quote:
Yes! Absolutely. And when my dr called and told me vile of blood broke and the test couldn’t be done I insisted they did a 4-D ultrasound.
Never seen a blood vial break... they are plastic... even if it "broke" that is not what the doctor is getting told. It will be put as "lab incident" or "Quantity not sufficient". I have also witnessed doctors lie about lab tests and how they are done... so you could have been told that.
I didn't do the testing, I didn't need to know ahead of time, knowing or not knowing wouldn't change any course of action our our part.
Posted on 9/9/23 at 5:29 pm to GeauxZone90
Everybody always talks about people with Down being super friendly and happy and loving etc. but maybe that's due to how they're treated. Maybe if we treated everyone that way then everybody would be that friendly and loving too.
Posted on 9/9/23 at 5:40 pm to Evil Little Thing
quote:
don’t know where your site is getting its data or how old it is. Most sources show a false positive rate of 1 in 500, or 0.2%.
Maybe you should try reading the link I provided instead of trying to find one that fits your narrative. It said….
quote:
The websites of most private providers state that NIPT is ‘99% accurate’ or has ‘99% sensitivity’. I think most people would assume that this means their result will tell them pretty much for sure whether their fetus has one of the conditions or not. But as the conditions affect less than 1% of all children born, a dummy test that gave everybody a low chance result would be 99% accurate.
A more helpful statistic is the positive predictive value. Sometimes NIPT gives a high chance result when the fetus does not actually have the condition. If you receive a high chance result for Down’s syndrome, there is a 1 in 5 (20%) chance that the result is wrong and your fetus does not have the condition. For Patau’s syndrome, there is a 1 in 2 (50%) chance the result is wrong, and for Edwards’ syndrome, it’s a 3 in 5 (60%) chance.[2] So, if you want to know for sure, you will also need to have a diagnostic test such as amniocentesis. Some companies give people’s results as being ‘positive’ or ‘negative’, which as you can see is highly misleading or, at best, confusing.
Posted on 9/9/23 at 5:41 pm to GeauxZone90
Downs isn't common. I don't know why you would screen unless you are in your 40s or something else going against you.
Posted on 9/9/23 at 5:51 pm to Darth_Vader
quote:
Maybe you should try reading the link I provided instead of trying to find one that fits your narrative
Take it easy baw. Nobody has a "narrative" on this topic.
Posted on 9/9/23 at 5:52 pm to GeauxZone90
I did on all of mine. We would have aborted if positive
Posted on 9/9/23 at 5:57 pm to AUCE05
quote:
I did on all of mine. We would have aborted if positive
Oof
Posted on 9/9/23 at 5:58 pm to armsdealer
I don’t care what you did or didn’t see. My test was botched and I wanted to know the outcome of the test. My baby, my decision.
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