Anyone here (or someone you know) get a liver transplant?

Wife's uncle.

Non alcoholic cirrhosis.

Columbia Presbyterian.

12 years.

He's frail but still going.

Lived a straight arrow bankers life and barely touched alcohol.

Seems ashame to get cirrhosis that way.

There's a dude in my town that took some Hep C meds that destroyed his liver. The hospital didn't check to see if he was susceptible to the meds causing liver damage (there's a test that they can do apparently) and now he only has a little while to live as a result if he can't get a transplant.

He's Hep C free though so there's that.

Yes, a fella I use to work with he doing fine now.

I wish you the best of luck, my dad is currently suffering from pulmonary fibrosis and once he gets bad enough will be undergoing a lung transplant. The process is fascinating we met with the doctors who would fly within a certain radius to procure one when its time, truly incredible stuff. Best of luck. If you dont mind me asking, when is a liver transplant required bc my mother had some liver issues years back and I remember the doctor saying the part he removed was no biggie bc the liver can regenerate. Im not a science guy so thats why I ask.

Is life expectancy normal after it? I know with lungs, they told my dad 5 years is the average so thats why theyre trying so hard to delay it currently

I know quite a few.

Some are doing great, some are dead.

Follow doctors orders strictly and that increases your quality of life 100 fold

quote:

---

no experience sorry. But if you dont mind me asking, whats wrong? And how ole are u

---

They call mine NASH (non alcoholic something or other). Diagnosed in '12 and numbers as they tend to do rise - sometimes steadily sometimes more rapidly. Kind of scary 'cause I've had a brother, uncle and cousin die from it.

54 yo

My wife was a liver transplant coordinator for 8-9 years. still does general hepatology.

It's a stressful grind, man. Once your MELD is high enough they may dry hump you several times (i.e. bring you to the hospital for transplant only to send you back home) before the donor organ actually comes through.

My only real advice for you is stay in compliance and get listed at every facility you have the financial means to reach within the 3-4 hour window. Some markets are more active, and have more patients listed, than others. For example, Houston patients can be listed both at Galveston, who shares a donor market with Dallas, and Houston who has it's own donor market.

I have both good and tragic stories, so I don't want to relay all of those. But if you seriously need some advice, I can give you my contact info and am glad to help in any way I can.

I did HCV research, she is a hepatologist, Dad died of liver disease, we are far too familiar with the liver in my family.

quote:

---

NASH (non alcoholic something or other). Diagnosed in '12 and numbers as they tend to do rise - sometimes steadily sometimes more rapidly. Kind of scary 'cause I've had a brother, uncle and cousin die from it.

54 yo

---

Dang man 54 is young. But medical field and science today are amazing. Prayers with you man. Keep your head up, im sure it will all work out

quote:

---

That's where I'm going also. They have been excellent thus far through the process and seems like that carries through all the way through.

---

I go down once a month to the heart transplant unit. They will answer any and all questions that you have.

Best thing is to write the questions down as you think of them. You can call the head nurse of your team to get some answers almost at any time.

Do you still work?

My best friend had one which extended her life another 13 years. She ended up passing away b/c the tumors were so advanced that to try and remove any would be removing the liver.

She was great people too :sadface: