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Anyone on here ever been diagnosed with leukemia?
Posted on 10/13/20 at 7:34 pm
Posted on 10/13/20 at 7:34 pm
What was it like? I haven't been diagnosed yet, still have some tests to go through. Possible though.
Posted on 10/13/20 at 7:36 pm to Hornet Swarm
I had a cousin who had it as a kid. I can't remember which form, though. He spent alot of time at St. Jude. He's in his early 50s now.
Posted on 10/13/20 at 7:37 pm to Hornet Swarm
I have no experience or advice
Just want to wish you well & will pray for your health
Just want to wish you well & will pray for your health
Posted on 10/13/20 at 7:40 pm to Hornet Swarm
Hopefully it comes out you don’t have it, obviously. Am I wrong in thinking this is much better treated nowadays? Seems I’ve heard or maybe it’s childhood leukemia that survival rate has gone up drastically
ETA: From reading below replies sounds like there are many different forms of it
ETA: From reading below replies sounds like there are many different forms of it
This post was edited on 10/13/20 at 7:41 pm
Posted on 10/13/20 at 7:40 pm to Hornet Swarm
There’s many different types, so be careful about what exactly your particular diagnosis is and where you search for information. Good luck, and of course hopefully your tests come back negative.
Posted on 10/13/20 at 7:40 pm to Hornet Swarm
Ive got Chronic Lymphocytic Leukemia. Going strong on 6 years since diagnosis.
Have to have regular bloodwork.
Have to have regular bloodwork.
Posted on 10/13/20 at 7:41 pm to Hornet Swarm
My dad was diagnosed with AML in 2017. It was a very scary time. He had a bone marrow transplant and everything. In three days we will find out if he's officially cancer free or not. If you are diagnosed just maintain a positive attitude. That was half the battle for my dad.
This post was edited on 10/13/20 at 7:43 pm
Posted on 10/13/20 at 7:43 pm to Hornet Swarm
A close friend of mine has a little 6 year old boy that was diagnosed last year. The fear of him getting sick with this underlying condition is scary. This little guy is a champ in my book.
Kick it’s arse.
Kick it’s arse.
Posted on 10/13/20 at 7:43 pm to Hornet Swarm
My mom had acute myeloid leukemia. Pray that isn't your diagnosis.
Posted on 10/13/20 at 7:46 pm to Hornet Swarm
The fact that you’re likely posting this from home and not from an inpatient facility implies to me that blood analysis has revealed an elevated white blood cell count but without evidence of blasts, the prototypical cell of the acute leukemias. Therefore, if you do indeed have leukemia, you more likely have a chronic leukemia.
There are two main types of chronic leukemia: chronic myeloid leukemia (cml) and chronic lymphocytic leukemia (cll). Chronic myeloid leukemia is a very well understood disease whose therapy consists of oral chemotherapy given indefinitely as it is a very treatable disease but not considered to be curable. Chronic lymphocytic leukemia is a disease that is more common than cml, and it can often be monitored until there is an indication for therapy. That can actually be years after diagnosis.
The more likely explanation for your elevated white blood cell count is temporary inflammatory response that will self resolve.
There are two main types of chronic leukemia: chronic myeloid leukemia (cml) and chronic lymphocytic leukemia (cll). Chronic myeloid leukemia is a very well understood disease whose therapy consists of oral chemotherapy given indefinitely as it is a very treatable disease but not considered to be curable. Chronic lymphocytic leukemia is a disease that is more common than cml, and it can often be monitored until there is an indication for therapy. That can actually be years after diagnosis.
The more likely explanation for your elevated white blood cell count is temporary inflammatory response that will self resolve.
This post was edited on 10/13/20 at 7:52 pm
Posted on 10/13/20 at 8:20 pm to Hornet Swarm
Young brother, long time ago -60s-. Not much they could do back then.
Posted on 10/13/20 at 8:29 pm to Hornet Swarm
My uncle had leukemia in the 90s. Had chemo then a bone marrrow transplant (my aunt was a perfect match)
I remember him going to MD Anderson. And was in isolation room for a month. He got shingles and was miserable. After kittens my moms other sister was also diagnosed. She went through the same process. But the body rejected the marrow transplant and he organs shut down.
I remember him going to MD Anderson. And was in isolation room for a month. He got shingles and was miserable. After kittens my moms other sister was also diagnosed. She went through the same process. But the body rejected the marrow transplant and he organs shut down.
Posted on 10/13/20 at 8:48 pm to Hornet Swarm
quote:
Hornet Swarm
Prayers for you my friend.
I have a family member whom the doctors suspect has some type of leukemia.
He is in his mid-20s and is strong as a horse.
He passed out while at work and fell on his back(he was just standing up).
Several of his vertebrae were broken.
This threw up some red-flags to the doctors as a strong healthy young man should not have sustained several broken vertebrae.
Fortunately he able to walk and but is now in pain.
They think he has some sort of spongy-bones.
IDK, he and his mother are super-stressed about this.
They have run a few test but there is nothing conclusive yet.
Prayers for you my friend. Praying for a good diagnosis.
Posted on 10/13/20 at 8:55 pm to Hornet Swarm
I’ll probably give myself away with this story but my dad died of Leukemia a little over 3 years ago. It was misdiagnosed as a B12 deficiency. After months of B12 shots and blood transfusions, I took him to the Dr on a Friday and the dr said “we missed it. You have leukemia.” Got him to MD Anderson on Monday and he died Friday. He was 63. My advice is if you are in Louisiana, don’t screw around with the bottom of the barrel Drs here. Go to MD Anderson and your chances of beating it go up 99.9%
Posted on 10/13/20 at 9:14 pm to Hornet Swarm
Had hairy cell leukemia 10 years ago. Did 7 days of a 24 hour drip chemotherapy. Been clear for over 10 years now. It really puts everything into perspective. Good luck and God speed.
Posted on 10/13/20 at 9:29 pm to Hornet Swarm
Had it.
My doctor was Andre Goy.
LINK
surgery
bone marrow transplant
chemo
Is it easy to fight? No.
I wish I could say it was.
You will have good days and a few bad days during treatment.
All the things that are scary about the treatment will become normal.
Will you lose your hair?
Yes, body hair, hair on your head in spots, eye lashes, and will not need to shave.
You will get adjusted to the change in lifestyle including diet, medications, doctor appointments, etc.
Hey, I am here today and it has been between 20 to 30 yrs.
My doctor was Andre Goy.
LINK
surgery
bone marrow transplant
chemo
Is it easy to fight? No.
I wish I could say it was.
You will have good days and a few bad days during treatment.
All the things that are scary about the treatment will become normal.
Will you lose your hair?
Yes, body hair, hair on your head in spots, eye lashes, and will not need to shave.
You will get adjusted to the change in lifestyle including diet, medications, doctor appointments, etc.
Hey, I am here today and it has been between 20 to 30 yrs.
This post was edited on 10/13/20 at 9:31 pm
Posted on 10/13/20 at 10:22 pm to Hornet Swarm
I had a drinking buddy that had a nosebleed one day at the bar. It didn't stop until he died. Turns out he had an aggressive acute leukemia that showed up out of nowhere.
Posted on 10/14/20 at 2:42 am to Hornet Swarm
Grandfather had it and died from it in the late 80s. They’ve come so far though the last 30 yrs.
Posted on 10/14/20 at 7:52 am to Hornet Swarm
I was dx with chronic myeloid leukemia (CML) in 2011.
I've been on a chemo drug called Sprycel ever since then. Side effects have been minimal but they do exist. The drug is expensive, but insurance covers most of it so far.
After being on the "suggested dose" for a year, it was my goal to back down as low as I could and still maintain a safe margin. Some people are even able to get off the drug eventually, although that didn't work for me.
There are many facebook groups where people share their experiences, which might be helpful, but honestly, some people seem to waller in their diagnosis. I do my best to take my little pill every day and forget about it.
It does remind one of their mortality and helps one appreciate life perhaps a little more than others.
Best of luck on your dx and treatment.
I've been on a chemo drug called Sprycel ever since then. Side effects have been minimal but they do exist. The drug is expensive, but insurance covers most of it so far.
After being on the "suggested dose" for a year, it was my goal to back down as low as I could and still maintain a safe margin. Some people are even able to get off the drug eventually, although that didn't work for me.
There are many facebook groups where people share their experiences, which might be helpful, but honestly, some people seem to waller in their diagnosis. I do my best to take my little pill every day and forget about it.
It does remind one of their mortality and helps one appreciate life perhaps a little more than others.
Best of luck on your dx and treatment.
Posted on 10/14/20 at 8:03 am to Hornet Swarm
(no message)
This post was edited on 1/9/21 at 8:59 am
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