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Anyone on here ever been diagnosed with leukemia?

Posted on 10/13/20 at 7:34 pm
Posted by Hornet Swarm
Member since Nov 2017
14 posts
Posted on 10/13/20 at 7:34 pm
What was it like? I haven't been diagnosed yet, still have some tests to go through. Possible though.
Posted by LegendInMyMind
Member since Apr 2019
55499 posts
Posted on 10/13/20 at 7:36 pm to
I had a cousin who had it as a kid. I can't remember which form, though. He spent alot of time at St. Jude. He's in his early 50s now.
Posted by LSUJML
Central
Member since May 2008
46987 posts
Posted on 10/13/20 at 7:37 pm to
I have no experience or advice
Just want to wish you well & will pray for your health
Posted by windshieldman
Member since Nov 2012
12818 posts
Posted on 10/13/20 at 7:40 pm to
Hopefully it comes out you don’t have it, obviously. Am I wrong in thinking this is much better treated nowadays? Seems I’ve heard or maybe it’s childhood leukemia that survival rate has gone up drastically

ETA: From reading below replies sounds like there are many different forms of it
This post was edited on 10/13/20 at 7:41 pm
Posted by Yellerhammer5
Member since Oct 2012
10854 posts
Posted on 10/13/20 at 7:40 pm to
There’s many different types, so be careful about what exactly your particular diagnosis is and where you search for information. Good luck, and of course hopefully your tests come back negative.
Posted by RogerTheShrubber
Juneau, AK
Member since Jan 2009
263331 posts
Posted on 10/13/20 at 7:40 pm to
Ive got Chronic Lymphocytic Leukemia. Going strong on 6 years since diagnosis.

Have to have regular bloodwork.
Posted by RollTide1987
Augusta, GA
Member since Nov 2009
65147 posts
Posted on 10/13/20 at 7:41 pm to
My dad was diagnosed with AML in 2017. It was a very scary time. He had a bone marrow transplant and everything. In three days we will find out if he's officially cancer free or not. If you are diagnosed just maintain a positive attitude. That was half the battle for my dad.
This post was edited on 10/13/20 at 7:43 pm
Posted by RibsandWhiskey
Metry
Member since Aug 2011
657 posts
Posted on 10/13/20 at 7:43 pm to
A close friend of mine has a little 6 year old boy that was diagnosed last year. The fear of him getting sick with this underlying condition is scary. This little guy is a champ in my book.

Kick it’s arse.
Posted by Iron Lion
Sipsey
Member since Nov 2014
11884 posts
Posted on 10/13/20 at 7:43 pm to
My mom had acute myeloid leukemia. Pray that isn't your diagnosis.
Posted by LSUTigerDoc
Baton Rouge
Member since Oct 2008
583 posts
Posted on 10/13/20 at 7:46 pm to
The fact that you’re likely posting this from home and not from an inpatient facility implies to me that blood analysis has revealed an elevated white blood cell count but without evidence of blasts, the prototypical cell of the acute leukemias. Therefore, if you do indeed have leukemia, you more likely have a chronic leukemia.

There are two main types of chronic leukemia: chronic myeloid leukemia (cml) and chronic lymphocytic leukemia (cll). Chronic myeloid leukemia is a very well understood disease whose therapy consists of oral chemotherapy given indefinitely as it is a very treatable disease but not considered to be curable. Chronic lymphocytic leukemia is a disease that is more common than cml, and it can often be monitored until there is an indication for therapy. That can actually be years after diagnosis.

The more likely explanation for your elevated white blood cell count is temporary inflammatory response that will self resolve.
This post was edited on 10/13/20 at 7:52 pm
Posted by wfallstiger
Wichita Falls, Texas
Member since Jun 2006
11713 posts
Posted on 10/13/20 at 8:20 pm to
Young brother, long time ago -60s-. Not much they could do back then.
Posted by tigeraddict
Baton Rouge
Member since Mar 2007
11883 posts
Posted on 10/13/20 at 8:29 pm to
My uncle had leukemia in the 90s. Had chemo then a bone marrrow transplant (my aunt was a perfect match)

I remember him going to MD Anderson. And was in isolation room for a month. He got shingles and was miserable. After kittens my moms other sister was also diagnosed. She went through the same process. But the body rejected the marrow transplant and he organs shut down.
Posted by Reubaltaich
A nation under duress
Member since Jun 2006
4986 posts
Posted on 10/13/20 at 8:48 pm to
quote:

Hornet Swarm


Prayers for you my friend.

I have a family member whom the doctors suspect has some type of leukemia.
He is in his mid-20s and is strong as a horse.

He passed out while at work and fell on his back(he was just standing up).
Several of his vertebrae were broken.

This threw up some red-flags to the doctors as a strong healthy young man should not have sustained several broken vertebrae.

Fortunately he able to walk and but is now in pain.

They think he has some sort of spongy-bones.

IDK, he and his mother are super-stressed about this.

They have run a few test but there is nothing conclusive yet.

Prayers for you my friend. Praying for a good diagnosis.
Posted by FishinTygah84
LA
Member since Dec 2013
1993 posts
Posted on 10/13/20 at 8:55 pm to
I’ll probably give myself away with this story but my dad died of Leukemia a little over 3 years ago. It was misdiagnosed as a B12 deficiency. After months of B12 shots and blood transfusions, I took him to the Dr on a Friday and the dr said “we missed it. You have leukemia.” Got him to MD Anderson on Monday and he died Friday. He was 63. My advice is if you are in Louisiana, don’t screw around with the bottom of the barrel Drs here. Go to MD Anderson and your chances of beating it go up 99.9%
Posted by Nawlinsboyinbossier
Bossier City
Member since Feb 2014
665 posts
Posted on 10/13/20 at 9:14 pm to
Had hairy cell leukemia 10 years ago. Did 7 days of a 24 hour drip chemotherapy. Been clear for over 10 years now. It really puts everything into perspective. Good luck and God speed.
Posted by johnnyrocket
Ghetto once known as Baton Rouge
Member since Apr 2013
9790 posts
Posted on 10/13/20 at 9:29 pm to
Had it.
My doctor was Andre Goy.
LINK
surgery
bone marrow transplant
chemo

Is it easy to fight? No.
I wish I could say it was.
You will have good days and a few bad days during treatment.
All the things that are scary about the treatment will become normal.
Will you lose your hair?
Yes, body hair, hair on your head in spots, eye lashes, and will not need to shave.

You will get adjusted to the change in lifestyle including diet, medications, doctor appointments, etc.

Hey, I am here today and it has been between 20 to 30 yrs.
This post was edited on 10/13/20 at 9:31 pm
Posted by Flashback
reading the chicken bones
Member since Apr 2008
8356 posts
Posted on 10/13/20 at 10:22 pm to
I had a drinking buddy that had a nosebleed one day at the bar. It didn't stop until he died. Turns out he had an aggressive acute leukemia that showed up out of nowhere.
Posted by Walt OReilly
Poplarville, MS
Member since Oct 2005
124694 posts
Posted on 10/14/20 at 2:42 am to
Grandfather had it and died from it in the late 80s. They’ve come so far though the last 30 yrs.
Posted by Grassy1
Member since Oct 2009
6277 posts
Posted on 10/14/20 at 7:52 am to
I was dx with chronic myeloid leukemia (CML) in 2011.

I've been on a chemo drug called Sprycel ever since then. Side effects have been minimal but they do exist. The drug is expensive, but insurance covers most of it so far.

After being on the "suggested dose" for a year, it was my goal to back down as low as I could and still maintain a safe margin. Some people are even able to get off the drug eventually, although that didn't work for me.

There are many facebook groups where people share their experiences, which might be helpful, but honestly, some people seem to waller in their diagnosis. I do my best to take my little pill every day and forget about it.

It does remind one of their mortality and helps one appreciate life perhaps a little more than others.

Best of luck on your dx and treatment.
Posted by swolverine
Member since Jun 2020
1966 posts
Posted on 10/14/20 at 8:03 am to
(no message)
This post was edited on 1/9/21 at 8:59 am
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