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re: Anyone Have Experience with Ovarian Cancer - UPDATE - 3/13
Posted on 2/27/17 at 7:13 am to shawnlsu
Posted on 2/27/17 at 7:13 am to shawnlsu
Ultrasound today....she is dreading just due to the pain. I wonder if they will let her see the screen?...I can't be with her for this one...work and all...plus she wants to do this alone..
3
Posted on 2/27/17 at 7:17 am to SthGADawg
Good luck baw. Your wife needs you more than ever. Be strong as frick
Posted on 2/27/17 at 7:27 am to Pettifogger
quote:
In general, I understand younger is better.
I was diagnosed with testicular cancer a little over 10 years ago. i was 31 at the time. after chemo started, and i was getting m cycles in the open room and looked around, i was one, if not the youngest in the room. most were in there late fifties or older. And most seemed to have other heath issues as well. Playing for good news, just try to stay strong either way. all you can do as the patient is Pray, stay positive, and try to eat right to keep the body strong during the process.
EDIT: for those going through chemo, as odd as it sounds, Coke Icee's helped me with the nausea. The cold helped with the stomach/sweats and the coke flavoring help get the metallic/chemical taste out of my mouth. i got one on the way in every morning and had family bring me one in after lunch on cycle days
This post was edited on 2/27/17 at 7:35 am
Posted on 2/27/17 at 7:32 am to SthGADawg
Hoping all good new from the U/S.
Posted on 2/27/17 at 7:32 am to djangochained
quote:
djangochained
thanks man...
one of my favorite posters btw.
Posted on 2/27/17 at 7:44 am to SthGADawg
The wife and I also just had a scare last year. we had a couple of irregular mammograms early last year, went through a number of scans, all clear. Then a couple of months ago,we found o lump on her breast. after a week of stress/no sleep/seeing her regular doctor and a specialist, and lots of prayer, it came back as a cyst and not a tumor. they just want to seen her again in 6 months.
Praying that the results come back as benign
Praying that the results come back as benign
Posted on 2/27/17 at 7:46 am to tigeraddict
I am hoping and praying for good news from today and the blood work...If it is a cyst she has..its a biggun...
hope your wife is good...thanks for jumping in the thread and sharing...
hope your wife is good...thanks for jumping in the thread and sharing...
Posted on 2/27/17 at 7:51 am to SthGADawg
My Mom was diagnosed with Ovarian Cancer in January 2015. No signs or symptoms and she was already Stage 3C.
First step was a major exploratory abdominal surgery to remove any signs of disease they could.They achieved what is called "optimal debulking", meaning the only tumors left were very very small, having removed her ovaries, uterus, fallopian tubes, cervix, appendix, 12 cm of small intestine, and ommentum.
A few weeks later she started chemo. Tried to keep working but due to side effects she was only able to work a few hours a week. Lost her hair, had to receive blood transfusions, shots to improve her white cell count...But in July was found NED (in remission.)
She took a turn for the worse late last year and I'm not sure how much more time I will have with her. This disease sucks. :(
A few things I've learned:
- BE THERE for the oncologist appointments and take notes, or ask for a nurse navigator to be there with you. It is hard to process everything in the moment
- enjoy the good days. OVCA patients average 3 birthdays after diagnosis, and that time flies
- see if there is a women's cancer support group convenient to you. My mom finds going to her monthly meeting very inspirational and helpful.
- check out Inspire.org ovarian cancer message board. It is an active board of survivors and care givers that I've found helpful during this journey.
Happy to talk further...Like I said I'm living this now and don't wish it on anyone
First step was a major exploratory abdominal surgery to remove any signs of disease they could.They achieved what is called "optimal debulking", meaning the only tumors left were very very small, having removed her ovaries, uterus, fallopian tubes, cervix, appendix, 12 cm of small intestine, and ommentum.
A few weeks later she started chemo. Tried to keep working but due to side effects she was only able to work a few hours a week. Lost her hair, had to receive blood transfusions, shots to improve her white cell count...But in July was found NED (in remission.)
She took a turn for the worse late last year and I'm not sure how much more time I will have with her. This disease sucks. :(
A few things I've learned:
- BE THERE for the oncologist appointments and take notes, or ask for a nurse navigator to be there with you. It is hard to process everything in the moment
- enjoy the good days. OVCA patients average 3 birthdays after diagnosis, and that time flies
- see if there is a women's cancer support group convenient to you. My mom finds going to her monthly meeting very inspirational and helpful.
- check out Inspire.org ovarian cancer message board. It is an active board of survivors and care givers that I've found helpful during this journey.
Happy to talk further...Like I said I'm living this now and don't wish it on anyone
Posted on 2/27/17 at 7:55 am to SthGADawg
You mention your wife had a hysterectomy years ago. Were her ovaries removed? After my oldest sister had ovarian cancer over 30 years ago, I asked a doctor about havin hysterectomy and oopherectomy. Doctor said it wasn't a surgery that is done just in case you might get the cancer also. I though this was stupid, because it does run in families. My sister's outcome was not good.
I believe there is a blood test that can detect ovarian cancer, but I don't think it's done much. Gilda Radner's husband pushed for this test to prevent others from dying from this cancer, but to no avail. Just sickening. So very sorry.
I believe there is a blood test that can detect ovarian cancer, but I don't think it's done much. Gilda Radner's husband pushed for this test to prevent others from dying from this cancer, but to no avail. Just sickening. So very sorry.
Posted on 2/27/17 at 8:01 am to SthGADawg
When you say the doctor, "wouldn't look her in the eye". Is very concerning. This is often seen as one who may be deceitful. As an RN of over 30 years, I really don't trust the medical community.
Posted on 2/27/17 at 8:04 am to Isabelle81
quote:
You mention your wife had a hysterectomy years ago. Were her ovaries removed?
she has still has ovaries...they took her uterus/cervix...she was in her late twenties so doc did not want her to have menopause and then be on hormones so early in life...
thanks for commenting
Posted on 2/27/17 at 8:05 am to shell01
quote:
First step was a major exploratory abdominal surgery to remove any signs of disease they could.They achieved what is called "optimal debulking", meaning the only tumors left were very very small, having removed her ovaries, uterus, fallopian tubes, cervix, appendix, 12 cm of small intestine, and ommentum.
quote:
Lost her hair, had to receive blood transfusions, shots to improve her white cell count...But in July was found NED (in remission.)
this is my worst nightmare
Posted on 2/27/17 at 8:07 am to Isabelle81
what shitty is that her OB/GYN of many years (delivered two of our boys...did her hysterectomy) is now retired...
we had to start with a new doc for all this.
we had to start with a new doc for all this.
Posted on 2/27/17 at 8:22 am to SthGADawg
I don't have anything to contribute other than to say I'm hoping the best for your wife.
Posted on 2/27/17 at 8:52 am to Jorts R Us
If she is having pain on that side of the Ovarian mass, its hopeful its just a Corpus Luteal cyst. I take these out all the time, with large ones being quite painful(blood in the cyst hurts), and sometimes they rupture and bleed, which is quite painful. Cancer localized only hurts rarely in that area, which is why its discovered late. I sometimes find it when I tap lung effusions, when its mets to the lung pleura, which tells you its been in the body a long time. So, no sign in 2013 during Hysterectomy, and now localized ovarian mass sounds favorable with localized pain....Hope for the best, good luck, and know this is going to surgery, and wish you the best of luck...
Posted on 2/27/17 at 10:12 am to SthGADawg
quote:
SthGADawg
Try not to worry too much until you have a confirmed diagnosis. Worrying will not help at all. Try to act as strong as you can for her.
If it is confirmed as cancer, I would do whatever you can to get to a cancer center. MD Anderson is now attempting to get a first appointment for anyone who calls within 1 week. I work in the Gynecologic Oncology Department there, and if you want to come here, I can try to get you an appointment sooner than that.
Also, we have started a new paradigm in treating ovarian cancer, and it is called the Anderson Algorithm which can improve the chances of survival.
Further, there are some ongoing clinical trials which combine new immune therapies with standard of care for ovarian cancers. So, your wife could get the benefit of the standard treatments (including the anderson algorithm) along with new immune therapies (most of which are already FDA-approved for other cancers).
If you would like to touch base with me, feel free to email me at my screenname at gmail.
Disclaimer: I am not a real doctor, but I stayed at a holiday inn express and I have a PhD; however, I work with the best gynecologic oncologists in the world.
This post was edited on 2/27/17 at 10:13 am
Posted on 2/27/17 at 10:28 am to SthGADawg
My wife had terrible pain in her lower abdomen last year at this time. The doc did ultrasound and scans. They operated the next week and it was a baseball sized cyst on her ovary. It had attached its self to other things in that area. They removed the cyst and one ovary. No issues since. I pray this outcome for you and your wife. Keep your head up when you are with her.
Posted on 2/27/17 at 11:15 am to guedeaux
Make sure and wave. I'll be in the mays clinic on Thursday. First quarterly follow up for the next 3 years. My gyn/onc is a godsend.
Hugs OP! Praying for you guys. Any word on her ca-125?? That's bloodwork that can help with diagnosis.
Hugs OP! Praying for you guys. Any word on her ca-125?? That's bloodwork that can help with diagnosis.
This post was edited on 2/27/17 at 11:30 am
Posted on 2/27/17 at 11:27 am to guedeaux
quote:
MD Anderson is now attempting to get a first appointment for anyone who calls within 1 week. I work in the Gynecologic Oncology Department there, and if you want to come here, I can try to get you an appointment sooner than that.
MD Anderson is where you need to go. My dad was basically told to make peace with the world. That he wouldn't make it a few more years. 5 years later he got the all clear signal with a super rare (<1%) chance it comes back. Fight like hell and never give up. frick cancer
Posted on 2/27/17 at 11:31 am to SthGADawg
They should have the CA-125 results in by now. Just a word of warning, it CAN be a good marker but it is non-specific and non-diagnostic. CA-125 can be elevated due to other reasons than just OVCA, and in some people with advanced disease it doesn't really go up. That's why it's not done regularly as a screening test.
Hoping for the best...
Hoping for the best...
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