Big Day for us (Family related and kinda long)

Well 15 years ago we found out our last daughter of 3 had cystic fibrosis and the disease had advanced to damage her lungs at the age of 3 months. We were devastated. The long term outlook was pretty grim. The average life expectancy was 35 35 years. Our case was not normal though. We fought the disease pretty hard the first year and then caught a break. Things went pretty well outside of meds and treatments. No hospitalizations until she hit 12. Then we started sinus infections due to CF. 3 sinus clean outs (outpatient)Last August we were told a drug we had been waiting on became available. After 1 year on the drug her sinus issues have stopped. Her lung function went from 72% of normal to 101%. (It has stayed that way for 9 months now) Our CF doctor told us today. "You have normal lung function, no health issues and nothing I can tell you"

Folks I know the game last Saturday was hard to swallow. We were all there. But today.... I am a happy happy man. Thank God for science, people who give to worthy causes and God answering prayers.....


No pics of said daughter will be shared....LOL