Anyone here experience Cluster Headaches?

Had them in my late teens to late 20s.

Worst pain imaginable, makes you totally incapacitated. I had to miss Nolan Ryans 5th no hitter because of one..

Lasted about three days, I could feel it pop or break when it ended. Behind the left eye.

I've had them for about 12 years. Started psilocybin therapy about 4 years ago and it has all but eliminated my cluster and migraine headaches. It's been life changing.

I can’t remember the last time I got a normal headache… but I’ve heard those compared to taking an ice pick to the eyeball so that’s a hard no thanks from me.

I have on 2 different occasions. Same time everyday for a week or little more. Everytime I just upped my water intake and they stopped. Pretty miserable.

Felt like someone stabbing me with a soldering iron

There was a two or three year period when I was a kid (probably 9-12 years) where I would get them once or twice a month. Basically all I could do was curl up in a cool, dark room and try to sleep. I remember a handful of times of being in so much pain I'd puke. I don't recall ever going to the doctor for them; I guess I just outgrew them.

Just had one end yesterday. Can feel the remnants of it today but I'll take this over that extreme pain any day. It's almost incapacitating.

I was originally diagnosed with them but now think I was misdiagnosed and actually have occipital neuralgia. Mine start severe in the left base of my head and wrap around to the left eye. Some of the worse ones will make it near impossible to see out that left eye. They are worse at night and can get so bad I can't function. I may have them everyday for a week and then not again for months, or just one random day every week. Nothing has been able to truly give any relief when they come on, although my wife thinks I did better while seeing the chiropractor.

I had a four day headache last week and have them frequently. My pain is behind my left eye, vision gets blurry, and some dizziness. I just want everyone to leave me alone and curl up in bed with a pillow vice gripped around my head. I bought some new thera ice wrap to try. I called my doctor but since I’m new to the practice they just said go to urgent care. I will next time it happens. I’ve had some type of nose spray in the past that did not help. Tylenol and Advil are as good as eating a few skittles so I don’t take them because there is no point other than damaging my liver and GI systems.

Much sympathies if you are getting cluster headaches...

42 yrs old. Started getting them in mid 20's. Worst pain ever...not called the suicide headache for nothing. Would get them seasonally, usually around winter time. Have skipped a year on occasion. Alcohol and nicotine usually triggered the onset. The cycle would usually last a few weeks getting them nightly. The onset of a headache would wake me up in the middle of the night. After immediately taking BC powder, I would pace around the house rubbing my eye for about an hour or so until the monster finally would go away. The headache wouldn't allow me to sit still or lie in bed. In early 2015, neurologist prescribed a steroid pack to break the cycle and it worked within a week. Also prescribe the Imitrex injections. The Imitrex injection worked like a magic eraser on the cluster headache (freaking amazing how fast it worked), but the rebound headache is something to be concerned about. After lots of research, stumbled across posts on an online health forum that made mention of use of melatonin to keep them at bay. Started taking 5 to 10mg of melatonin nightly until flood of 2016 rearranged life habits and got off the melatonin.

Late fall/early winter of 2016, the monster came back and went through another steroid pack and injections to end the cycle. Soon realized the melatonin might have been helping and got back on it. Have been taking melatonin nightly and, knock on wood, have not had a cluster headache since. Scared to go a night without taking melatonin out of fear it will return.

just my $.02. Good luck baw...feel for you.