re: Rare but Scary Medical Conditions

Watched my uncle die of ALS and my dad battle Guillain-Barre syndrome. From an awful way to go standpoint, ALS scares me to know end. If I ever got it, I may tap out early. From an in the moment scary view, Guillain-Barre was damn scary. You are watching paralysis take over the body starting in feet and quickly moving up with no idea if it is going to stop prior to ending you. We were fortunate there was a doctor at the hospital familiar with it and got treatments going immediately but even so my dad still did 3 months in the Shepherd Center in Atlanta rehabbing constantly to be able to walk again.

ALS

This just shows us where society is these days. Got to make sure the sexual deviants still can play.

I've heard of people who are incapable of feeling pain. It is called CIP, or Congenital Insensitivity to Pain.

To me, that would be a serious issue since pain is one of those things that let us know things aren't going right for us. Imagine having an appendix getting ready to burst and set your body in toxic infection and you have no clue it's about to happen.

Or like someone already mentioned, kidney stones. It's not rare but I deal with them and have had a few so large they completely blocked my urinary tract and had to be blasted and removed before they caused permanent kidney damage. They are some of the worst pain I've ever experienced and to not feel that to know something is seriously wrong would be terrifying to me.

A very good friend died of Creutzfeldt-Jacob. He knew something was wrong, but the doctor's wouldn't admit that possibility. He finally got to Barnes-Jewish Hospital in St. Louis and they doubted that a nice protestant boy would die of it. Finally they opened their eyes and agreed with him. He died within a year of his own diagnosis. I still miss his phone calls and I remember when he told me about it and that was one of his good days and the rest he didn't remember.

quote:

---

I don’t know what I’ve done but I just got diagnosed with a 23mm kidney stone. It ain’t looking good right now.

---

I've had a couple that big a few years ago and was prescribed potassium citrate to try to help break it up a bit but wound up having it removed with the little claw machine looking gizmo that broke it up and took the pieces out.

You can take a guess where they make the entry and removal of the pieces parts, but don't think about it too long

The urologist gave me 2 scenarios with the large stones still in my kidney. First was the drugs to help break them up so they traveled the urinary tract and second was to cut me open to access the kidney and physically remove them. The first option worked well.

Oh, and make sure they analyze the stones to see what is causing them. Mine were from Uric Acid, the same thing that causes gout in some people.

I've had about 20 of them over the years and have had to get 4 of them removed in the hospital under anesthesia.

quote:

---

Harlequin Ichthyosis

---

I looked this up thinking, hoping, it was not real. No words.