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re: Parents with Alzheimers? Anyone here dealing with this?

Posted on 4/12/16 at 3:05 pm to
Posted by fishfighter
RIP
Member since Apr 2008
40026 posts
Posted on 4/12/16 at 3:05 pm to
quote:

I have her in a nursing home while we build a small house for her next to ours. her house will be "handi-cabable" with ramps, large shower, etc.


First problem.

quote:

Obviously this will not be easy as mom has always been independent and lived her life her own way.


Second problem.

Yes, I had to deal with my Mom in advance stages. What my Mom's doctor told us was to keep her in a nursing home. I did have POA. So, the nursing home we used had the general public and then they had a section that was private that cost more each month. She had her own private room/bathroom, with all comforted of home, phone, cable any extras she needed.

Of course we were there every day to see her and made sure all her needs were taking care of.

We tried our best to get her to move in with me and the wife. She wouldn't move in. Nor with my little sister. That is when her doctor stepped in and told us that it was best for her to be in the nursing home. Besides that, she had childhood friends there which worked out good.

The hardest thing I had to do was sign the ending papers. Mom had 4th stage cancer and it came back hard on her. OLOL death panel(end of life doctor panel) called us in to explain what was what and what we needed to do which was to withhold cancer treatments and make her comfortable as she could be.

Oh, Mom was 85 when she passed away.
This post was edited on 4/12/16 at 3:26 pm
Posted by BooDreaux
Orlandeaux
Member since Sep 2011
3300 posts
Posted on 4/12/16 at 3:18 pm to
My mom developed Alzheimer's......luckily it never progressed to where she had behavior problems and she lived till 92.5

Dr Richard Gold, neurologist, in Baton Rouge was a godsend. Not sure if he is still practicing.......If so I'd try him
Posted by Red Stick Tigress
Tiger Stadium
Member since Nov 2005
21680 posts
Posted on 4/12/16 at 3:26 pm to
Round the clock care.

Someone needs to be vigilant and know where she is and what she is doing at all times.

My aunt and uncle both had AZ. They lived on family property in Metairie where my uncle's sister-in-law had a house (one huge lot, 2 addresses.) The houses were close to Metairie Road where the St. Patrick's parade rides.

The nephew holds an annual party for the parade and other gatherings.

He would often wander off outside without the caretaker knowing where he went but for Steve's parties, he usually just went in the house with the guests.

It was a tricky situation because my uncle used to keep to himself and watch AMC classic movies all day long. Caretakers always assumed he was in the den when he wasn't even there.
Posted by Willie Stroker
Member since Sep 2008
17170 posts
Posted on 4/12/16 at 4:04 pm to
My mother has it. We initially moved her to an independent living facility but she never got used to it. She wandered out routinely, so her stay was short lived. We tried having her live with us but that didn't last either. She became incontinent and would resolve it by stripping naked. It was not a good fit in a house with three teenage boys to see their grandmother like that. She would wake up not knowing where she was. There was no way we could leave her alone knowing she might not be there when we returned.

Accept the inevitable. You will have to talk her into staying at a memory care facility that limits the ability of residents to leave. Solicit the help of her doctor. Get her to sign an agreement with you where she agrees with her doctor's diagnosis and care plan. That agreement will be for you. It will be for you to look at whenever you feel guilty for doing what must be done.

Take her to an attorney if you haven't already for power of attorney, both legal and medical.

Just keep reminding yourself that you are doing the most rational thing for the right reasons. When you know you are doing the right thing for the right reasons, there is no reason to feel guilty.

Her experience will be unique to her personality and health. Your experience will be unique too. You will appreciate your life's blessings in so many ways and no hardship will seem insurmountable.

Also start accepting that this is a gift. So many people lose their loved ones tragically and unexpectedly. In my opinion, those circumstances are much more difficult to accept. You get the gift of a long goodbye.
Posted by Poodlebrain
Way Right of Rex
Member since Jan 2004
19860 posts
Posted on 4/12/16 at 6:06 pm to
You have my deepest sympathies. My mother has advanced Alzheimers. All Alzheimers patients are different, and the disease progresses differently for all of them.

My mother was first diagnosed in 2007. In 2010 we put her into assisted living at St. James Place, and she was doing well there for about a year. In June of 2011, Mom fell. She broke her collar bone and dislocated her shoulder. She lost ability to control her dominant right arm while it was immobilized. This affected her balance, and made her a serious fall risk so she could no longer live assisted living. She ultimately lost the ability to walk without assistance. She required nursing care.

Nursing care sucked for Mom. There were inadequate social activities. The nursing personnel followed a very regimented schedule to manage all of the patients under their care. She was not getting the human interaction that she still enjoyed. Her unhappiness led my father and me to build a house where we could take care of Mom with the assistance of personal care attendants.

Building the house and having Mom live with us was the best decision for our family. Our house is a single story home with good wheel chair accessibility. Mom has been happy for the 4+ years we have lived in the house. It hasn't been easy to take care of her, but I would do it again in a heartbeat.
Posted by N2cars
Member since Feb 2008
40325 posts
Posted on 4/12/16 at 6:12 pm to
Posted by mjax57
Vinings, GA
Member since Mar 2012
5137 posts
Posted on 4/12/16 at 6:14 pm to
Father takes care of my mom. My suggestion would be, like others have said, to try and find a caretaker or facility. It's been a real grind on my family and it's truly sad. My mother had multiple degrees and can't tell you how old I am now. Plus, the mood swings and wandering can be super stressful on my father. If you can swing it, get help. God Bless and I wish you the best.
Posted by The Cow Goes Moo Moo
Bucktown
Member since Nov 2012
4394 posts
Posted on 4/12/16 at 6:34 pm to
My grandmother had it and deteriorated over a span of 10 until she couldn't speak much less recognize anyone in our family. fricking terrible disease that took the most amazing woman I've ever known from me way too early.

The only solice that I had was that when she finally passed it wasn't quite as difficult.

I will always remember her as the incredibly loving person that she was, and not the empty shell she became in her final years.

frick Alzheimer's.
This post was edited on 4/12/16 at 6:43 pm
Posted by TigerTatorTots
The Safeshore
Member since Jul 2009
82337 posts
Posted on 4/12/16 at 10:52 pm to
Building a house and taking care of her is a bad idea. You will certainly come to regret it as the disease continues to progress. Definitely recommend a nursing home that specializes in alzheimers. It will make your life and hers so much better.
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