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re: Anyone on here ever been diagnosed with leukemia?
Posted on 10/13/20 at 9:52 pm to Hornet Swarm
Posted on 10/13/20 at 9:52 pm to Hornet Swarm
How old are you?
Posted on 10/13/20 at 9:54 pm to LSUTigerDoc
It happens. I’m a sales guy and I get lumped in with all the bad ones too. It is what it is. My dads Dr was spoken of as “one of the best oncologist in BR” I disagree
Posted on 10/13/20 at 9:54 pm to Hornet Swarm
I was diagnosed with ALL at 6 years old. I became easily winded and had severe headaches along with swollen glands. Diagnosed and did my treatments at Children’s in Bham. Bone marrows and spinal taps once a quarter for almost 5 years along with Chemo treatments. It was hell to deal with especially at that age but I’ve been clear for 35 years. I wish you good luck and hope everything turns out ok.
Posted on 10/13/20 at 9:59 pm to Hornet Swarm
quote:
He mentioned blasts. Honestly, I'm not sure if he saw it in the CBC or was saying that would be concerning. It was a phone call visit. The bruising all developed this past week. I had 2 units of platelets transfused over the weekend. Its been a long week.
Well, keep us informed if you choose to. Praying for peace of mind for you as you await your results and for good news to come to you really soon.
Posted on 10/13/20 at 10:22 pm to Hornet Swarm
I had a drinking buddy that had a nosebleed one day at the bar. It didn't stop until he died. Turns out he had an aggressive acute leukemia that showed up out of nowhere.
Posted on 10/13/20 at 10:26 pm to FishinTygah84
Prior advice about getting out of town because of bottom of the barrel docs is just plain bad advice. There are many highly trained oncologists in Baton Rouge.
If you have AML or ALL, would be seen at a transplant center for an opinion.
You can have some peripheral blood blasts with CML especially if not in chronic phase.
Best of luck. Listen to your doctors and stay positive. Molecular studies (FISH, cytogenetics, NGS) matter a lot in all of these diseases.
If you have AML or ALL, would be seen at a transplant center for an opinion.
You can have some peripheral blood blasts with CML especially if not in chronic phase.
Best of luck. Listen to your doctors and stay positive. Molecular studies (FISH, cytogenetics, NGS) matter a lot in all of these diseases.
Posted on 10/13/20 at 10:55 pm to Lickitty Split
quote:
Roger, do you live in Louisiana?
No
Posted on 10/14/20 at 2:42 am to Hornet Swarm
Grandfather had it and died from it in the late 80s. They’ve come so far though the last 30 yrs.
Posted on 10/14/20 at 7:22 am to LSUTigerDoc
I think LSUTigerDoc is 100% right.
Most the treatments been around along time.
My doctor came from France Dr Andre Goy.
It was something to watch him chew those fellows a new one. He talked extremely fast to them. When he would talk to patients he slowed down and explained things well.
At the time he took a 95% common treatment at the time used in the US and tweaked it with one drug used in France.
At the time in the US you went through 1 yr 6 months of just chemo treatments.
Similar treatment just 1 drug was different plus he did it faster.
After surgery and BMT recovery the chemo started the 1st week in June and done the last day in August. Then was back at work Oct 15th on desk duty until Jan.
Some doctors hated the man as he was bucking the system and a lot younger doctor among older doctors. Going as fast as he went did a pounding was hard on my body.
They will give you drugs to offset side effects which the drugs take time to kick in.
Do not hold anything back like pain.
I was having trouble in the bathroom area when I used it as my buttocks felt like they were on fire. Went on for two weeks until I told them. They gave me a cream for that and it helped a lot.
The whole process surgery, BMT, and chemo was 8 months compared to 1 yr 6 months of chemo plus BMT recovery time, surgery.
You wear your mask to reduce you getting viruses etc that was normal prior to Covid.
Just limit interaction with people to reduce your chance of getting viruses etc.
Once you get into things will become your normal routine.
Most the treatments been around along time.
My doctor came from France Dr Andre Goy.
It was something to watch him chew those fellows a new one. He talked extremely fast to them. When he would talk to patients he slowed down and explained things well.
At the time he took a 95% common treatment at the time used in the US and tweaked it with one drug used in France.
At the time in the US you went through 1 yr 6 months of just chemo treatments.
Similar treatment just 1 drug was different plus he did it faster.
After surgery and BMT recovery the chemo started the 1st week in June and done the last day in August. Then was back at work Oct 15th on desk duty until Jan.
Some doctors hated the man as he was bucking the system and a lot younger doctor among older doctors. Going as fast as he went did a pounding was hard on my body.
They will give you drugs to offset side effects which the drugs take time to kick in.
Do not hold anything back like pain.
I was having trouble in the bathroom area when I used it as my buttocks felt like they were on fire. Went on for two weeks until I told them. They gave me a cream for that and it helped a lot.
The whole process surgery, BMT, and chemo was 8 months compared to 1 yr 6 months of chemo plus BMT recovery time, surgery.
You wear your mask to reduce you getting viruses etc that was normal prior to Covid.
Just limit interaction with people to reduce your chance of getting viruses etc.
Once you get into things will become your normal routine.
Posted on 10/14/20 at 7:52 am to Hornet Swarm
I was dx with chronic myeloid leukemia (CML) in 2011.
I've been on a chemo drug called Sprycel ever since then. Side effects have been minimal but they do exist. The drug is expensive, but insurance covers most of it so far.
After being on the "suggested dose" for a year, it was my goal to back down as low as I could and still maintain a safe margin. Some people are even able to get off the drug eventually, although that didn't work for me.
There are many facebook groups where people share their experiences, which might be helpful, but honestly, some people seem to waller in their diagnosis. I do my best to take my little pill every day and forget about it.
It does remind one of their mortality and helps one appreciate life perhaps a little more than others.
Best of luck on your dx and treatment.
I've been on a chemo drug called Sprycel ever since then. Side effects have been minimal but they do exist. The drug is expensive, but insurance covers most of it so far.
After being on the "suggested dose" for a year, it was my goal to back down as low as I could and still maintain a safe margin. Some people are even able to get off the drug eventually, although that didn't work for me.
There are many facebook groups where people share their experiences, which might be helpful, but honestly, some people seem to waller in their diagnosis. I do my best to take my little pill every day and forget about it.
It does remind one of their mortality and helps one appreciate life perhaps a little more than others.
Best of luck on your dx and treatment.
Posted on 10/14/20 at 8:03 am to Hornet Swarm
(no message)
This post was edited on 1/9/21 at 8:59 am
Posted on 10/14/20 at 8:31 am to Hornet Swarm
I said a prayer for you for a positive outcome and for peace.
Posted on 10/14/20 at 11:37 am to Hornet Swarm
My wife has a chronic form of leukemia. She went through chemo and has been a little better for a few years. It will come back but we are trying to get to some desired travel locations before it comes back,
The chemo is brutal but she has a good doctor that had a great treatment strategy. That diagnosis was a huge wake up call for both of us. Prayers do work, my friend!
The chemo is brutal but she has a good doctor that had a great treatment strategy. That diagnosis was a huge wake up call for both of us. Prayers do work, my friend!
Posted on 10/26/20 at 11:32 pm to Hornet Swarm
Hornet, give me a call. I might be able to help you.
Posted on 10/26/20 at 11:42 pm to Hornet Swarm
My brother in law was dizzy and so he took a few days off work. Continued to feel dizzy and went to see the doc. Was told he had leukemia and then died 10 days later at age 41.
Posted on 10/26/20 at 11:44 pm to Hornet Swarm
Just said a prayer for you and your health. I hope everything turns out well for you.
Posted on 10/26/20 at 11:49 pm to LSUTigerDoc
What you mean by the 3rd treatment is herb, good comedy, and a great support group that is postivie about the world and that isn't mopey sad. And also a therapy dog because dogs are freaking awesome and know some shite.
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