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re: Anyone on here ever been diagnosed with leukemia?

Posted on 10/13/20 at 8:30 pm to
Posted by Lickitty Split
Inside
Member since Apr 2017
3911 posts
Posted on 10/13/20 at 8:30 pm to
Roger, do you live in Louisiana?
Posted by Lickitty Split
Inside
Member since Apr 2017
3911 posts
Posted on 10/13/20 at 8:32 pm to
Do you live in Louisiana?
Posted by Chucktown_Badger
The banks of the Ashley River
Member since May 2013
31158 posts
Posted on 10/13/20 at 8:32 pm to
Lots of different forms of leukemia. It's really important to know which form.
Posted by Chucktown_Badger
The banks of the Ashley River
Member since May 2013
31158 posts
Posted on 10/13/20 at 8:36 pm to
That NFL crucial catch commercial has chuck pagano talking about his wife seeing the bruises and making him get checked. He had acute promyelotic leukemia, which I'm not really familiar with.
Posted by LSUTigerDoc
Baton Rouge
Member since Oct 2008
580 posts
Posted on 10/13/20 at 8:43 pm to
quote:

That NFL crucial catch commercial has chuck pagano talking about his wife seeing the bruises and making him get checked. He had acute promyelotic leukemia, which I'm not really familiar with.


A fascinating disease characterized by a genetic mutation in the white blood cells at the retinoic acid receptor gene locus. Although this is a variant of acute myeloid leukemia, this subset of aml actually has an amazingly good prognosis. Due to the driver mutation for this disease, it can actually be successfully treated with all-trans retenoic acid, a derivative of vitamin A. More interesting is the fact that arsenic (oral or intravenous) is not only very effective in the therapy of this disease but also FDA approved for use.
Posted by Reubaltaich
A nation under duress
Member since Jun 2006
4967 posts
Posted on 10/13/20 at 8:48 pm to
quote:

Hornet Swarm


Prayers for you my friend.

I have a family member whom the doctors suspect has some type of leukemia.
He is in his mid-20s and is strong as a horse.

He passed out while at work and fell on his back(he was just standing up).
Several of his vertebrae were broken.

This threw up some red-flags to the doctors as a strong healthy young man should not have sustained several broken vertebrae.

Fortunately he able to walk and but is now in pain.

They think he has some sort of spongy-bones.

IDK, he and his mother are super-stressed about this.

They have run a few test but there is nothing conclusive yet.

Prayers for you my friend. Praying for a good diagnosis.
Posted by FishinTygah84
LA
Member since Dec 2013
1976 posts
Posted on 10/13/20 at 8:55 pm to
I’ll probably give myself away with this story but my dad died of Leukemia a little over 3 years ago. It was misdiagnosed as a B12 deficiency. After months of B12 shots and blood transfusions, I took him to the Dr on a Friday and the dr said “we missed it. You have leukemia.” Got him to MD Anderson on Monday and he died Friday. He was 63. My advice is if you are in Louisiana, don’t screw around with the bottom of the barrel Drs here. Go to MD Anderson and your chances of beating it go up 99.9%
Posted by LSUTigerDoc
Baton Rouge
Member since Oct 2008
580 posts
Posted on 10/13/20 at 8:57 pm to
Hornet: I misread your previous post. Did you say your hematologist did or did not mention the presence of blasts in the peripheral blood?
Posted by windshieldman
Member since Nov 2012
12818 posts
Posted on 10/13/20 at 8:57 pm to
quote:

LSUTigerDoc


Are you in oncology? If not, obviously you know a lot about cancer. Just curious on what you know of as the biggest breakthroughs in last maybe 2-3 years. I know there are so many different cancers, but maybe some that were a death sentence a few years ago but now have a successful recovery overall. I’m in the medical field but just a paramedic and don’t know much about cancer research but find it interesting

Had a friend of mine, non smoker that went 7 years with a stage 4 lung cancer, in his 30s. Was pretty remarkable
Posted by LSUTigerDoc
Baton Rouge
Member since Oct 2008
580 posts
Posted on 10/13/20 at 9:07 pm to
quote:

windshieldman


Biggest breakthroughs in past several years in oncology:

1. Immunotherapy: harnessing the body’s own immune system to recognize and eliminate cancer cells. A game changer for several cancers; less advantageous for others.

2. Cellular therapy: not the game changer we hoped it could be, but the science provides a wonderful platform to build upon. Can we genetically alter one’s own immune cells, propagate them, and deliver them back to the patient to attack cancer?

3. Supportive care: in the cases of many cancer subtypes, the chemotherapy used hasn’t changed in decades, but the medications administered with chemotherapy to counteract the side effects of chemo have helped to improve survival by enabling us to administer full doses and full courses of chemotherapy.

Posted by TigerstuckinMS
Member since Nov 2005
33687 posts
Posted on 10/13/20 at 9:09 pm to
quote:

Are you in oncology?

I mean, he's got to be a hematologist/oncologist. Nobody else has that big of an interest in which mutated gene locus causes a particular type of AML.
This post was edited on 10/13/20 at 9:10 pm
Posted by LSUTigerDoc
Baton Rouge
Member since Oct 2008
580 posts
Posted on 10/13/20 at 9:10 pm to
quote:

FishinTygah84


quote:

don’t screw around with the bottom of the barrel Drs here


I take major offense to this. When it comes to judging doctors, we’d appreciate if you’d be a splitter rather than a lumper.
Posted by Nawlinsboyinbossier
Bossier City
Member since Feb 2014
663 posts
Posted on 10/13/20 at 9:14 pm to
Had hairy cell leukemia 10 years ago. Did 7 days of a 24 hour drip chemotherapy. Been clear for over 10 years now. It really puts everything into perspective. Good luck and God speed.
Posted by windshieldman
Member since Nov 2012
12818 posts
Posted on 10/13/20 at 9:15 pm to
Thank you for your response LSUTigerDoc
Posted by LSUTigerDoc
Baton Rouge
Member since Oct 2008
580 posts
Posted on 10/13/20 at 9:20 pm to
quote:

Had hairy cell leukemia 10 years ago. Did 7 days of a 24 hour drip chemotherapy. Been clear for over 10 years now. It really puts everything into perspective. Good luck and God speed.


Cladribine! Still the only malignancy successfully treated with a single course of chemotherapy — and with a 70-80% response rate! Amazing!
Posted by Nawlinsboyinbossier
Bossier City
Member since Feb 2014
663 posts
Posted on 10/13/20 at 9:21 pm to
Yep, that was it.
Posted by Hornet Swarm
Member since Nov 2017
14 posts
Posted on 10/13/20 at 9:21 pm to
He mentioned blasts. Honestly, I'm not sure if he saw it in the CBC or was saying that would be concerning. It was a phone call visit. The bruising all developed this past week. I had 2 units of platelets transfused over the weekend. Its been a long week.
Posted by johnnyrocket
Ghetto once known as Baton Rouge
Member since Apr 2013
9790 posts
Posted on 10/13/20 at 9:29 pm to
Had it.
My doctor was Andre Goy.
LINK
surgery
bone marrow transplant
chemo

Is it easy to fight? No.
I wish I could say it was.
You will have good days and a few bad days during treatment.
All the things that are scary about the treatment will become normal.
Will you lose your hair?
Yes, body hair, hair on your head in spots, eye lashes, and will not need to shave.

You will get adjusted to the change in lifestyle including diet, medications, doctor appointments, etc.

Hey, I am here today and it has been between 20 to 30 yrs.
This post was edited on 10/13/20 at 9:31 pm
Posted by tankyank13
NOLA
Member since Nov 2012
7722 posts
Posted on 10/13/20 at 9:30 pm to
quote:

The problem that got me to talking to a hematologist today was low platelets, they got below 10. I developed huge bruises. White blood cell count was around normal though. He did mention evidence of blasts.


Have your immunoglobulin levels checked (IGg IGa IGM)

I had a bout with low platelets (ITP) and went years not being diagnosed with an immune deficiency.
Same thing, was tested for everything, leukemia, HIV and they never could figure out the cause. I was finally diagnosed 7 years later with an immune deficiency after almost dying from pneumonia. Looking back, doctors determined my ITP was related to my immune deficiency.

This post was edited on 10/13/20 at 9:31 pm
Posted by Hornet Swarm
Member since Nov 2017
14 posts
Posted on 10/13/20 at 9:38 pm to
Thanks all! I don't know where this is going, just wondering what it might be like if this is where it takes me and my family.
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