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Anyone on here ever been diagnosed with leukemia?

Posted on 10/13/20 at 7:34 pm
Posted by Hornet Swarm
Member since Nov 2017
14 posts
Posted on 10/13/20 at 7:34 pm
What was it like? I haven't been diagnosed yet, still have some tests to go through. Possible though.
Posted by LegendInMyMind
Member since Apr 2019
53330 posts
Posted on 10/13/20 at 7:36 pm to
I had a cousin who had it as a kid. I can't remember which form, though. He spent alot of time at St. Jude. He's in his early 50s now.
Posted by LSUJML
BR
Member since May 2008
45007 posts
Posted on 10/13/20 at 7:37 pm to
I have no experience or advice
Just want to wish you well & will pray for your health
Posted by windshieldman
Member since Nov 2012
12818 posts
Posted on 10/13/20 at 7:40 pm to
Hopefully it comes out you don’t have it, obviously. Am I wrong in thinking this is much better treated nowadays? Seems I’ve heard or maybe it’s childhood leukemia that survival rate has gone up drastically

ETA: From reading below replies sounds like there are many different forms of it
This post was edited on 10/13/20 at 7:41 pm
Posted by Yellerhammer5
Member since Oct 2012
10850 posts
Posted on 10/13/20 at 7:40 pm to
There’s many different types, so be careful about what exactly your particular diagnosis is and where you search for information. Good luck, and of course hopefully your tests come back negative.
Posted by RogerTheShrubber
Juneau, AK
Member since Jan 2009
259354 posts
Posted on 10/13/20 at 7:40 pm to
Ive got Chronic Lymphocytic Leukemia. Going strong on 6 years since diagnosis.

Have to have regular bloodwork.
Posted by RollTide1987
Augusta, GA
Member since Nov 2009
64877 posts
Posted on 10/13/20 at 7:41 pm to
My dad was diagnosed with AML in 2017. It was a very scary time. He had a bone marrow transplant and everything. In three days we will find out if he's officially cancer free or not. If you are diagnosed just maintain a positive attitude. That was half the battle for my dad.
This post was edited on 10/13/20 at 7:43 pm
Posted by RibsandWhiskey
Metry
Member since Aug 2011
614 posts
Posted on 10/13/20 at 7:43 pm to
A close friend of mine has a little 6 year old boy that was diagnosed last year. The fear of him getting sick with this underlying condition is scary. This little guy is a champ in my book.

Kick it’s arse.
Posted by Iron Lion
North of the river
Member since Nov 2014
11798 posts
Posted on 10/13/20 at 7:43 pm to
My mom had acute myeloid leukemia. Pray that isn't your diagnosis.
Posted by windshieldman
Member since Nov 2012
12818 posts
Posted on 10/13/20 at 7:46 pm to
quote:

three days we will find out if he's officially cancer free or not.


Hate to hear that, hopefully positive results in 3 days. He a history buff also?
Posted by LSUTigerDoc
Baton Rouge
Member since Oct 2008
580 posts
Posted on 10/13/20 at 7:46 pm to
The fact that you’re likely posting this from home and not from an inpatient facility implies to me that blood analysis has revealed an elevated white blood cell count but without evidence of blasts, the prototypical cell of the acute leukemias. Therefore, if you do indeed have leukemia, you more likely have a chronic leukemia.

There are two main types of chronic leukemia: chronic myeloid leukemia (cml) and chronic lymphocytic leukemia (cll). Chronic myeloid leukemia is a very well understood disease whose therapy consists of oral chemotherapy given indefinitely as it is a very treatable disease but not considered to be curable. Chronic lymphocytic leukemia is a disease that is more common than cml, and it can often be monitored until there is an indication for therapy. That can actually be years after diagnosis.

The more likely explanation for your elevated white blood cell count is temporary inflammatory response that will self resolve.
This post was edited on 10/13/20 at 7:52 pm
Posted by RollTide1987
Augusta, GA
Member since Nov 2009
64877 posts
Posted on 10/13/20 at 7:48 pm to
quote:

He a history buff also?


He finds history interesting but I kind of developed a love for it that is quite unlike the rest of my family. But I'm pretty sure the results are good as he had the biopsy almost three weeks ago. We would have heard something by now if there was anything abnormal I am sure. But...have to wait until Friday to get the official word. I wish I could be home for it because it's such a huge deal.
Posted by FLObserver
Jacksonville
Member since Nov 2005
14421 posts
Posted on 10/13/20 at 7:48 pm to
quote:

hopefully positive results in 3 days.


I think in this case you want negative results Sorry couldnt resist. Good luck OP.
Posted by RogerTheShrubber
Juneau, AK
Member since Jan 2009
259354 posts
Posted on 10/13/20 at 7:48 pm to
quote:

Chronic lymphocytic leukemia is a disease that is more common than cml, and it can often be monitored until there is an indication for therapy. That can actually be years after diagnosis.



This is my situation. Outside of swollen lymph nodes and some tiredness, my life is pretty normal.
Posted by Hornet Swarm
Member since Nov 2017
14 posts
Posted on 10/13/20 at 7:53 pm to
The problem that got me to talking to a hematologist today was low platelets, they got below 10. I developed huge bruises. White blood cell count was around normal though. He did mention evidence of blasts.
Posted by windshieldman
Member since Nov 2012
12818 posts
Posted on 10/13/20 at 7:54 pm to
quote:

But I'm pretty sure the results are good as he had the biopsy almost three weeks ago. We would have heard something by now if there was anything abnormal I am sure


Yea makes sense y’all would have heard something if anything bad, hope that’s the case and he’s all clear
Posted by LSUTigerDoc
Baton Rouge
Member since Oct 2008
580 posts
Posted on 10/13/20 at 7:57 pm to
quote:

The problem that got me to talking to a hematologist today was low platelets, they got below 10. I developed huge bruises. White blood cell count was around normal though. He did mention evidence of blasts.


That would be a relatively unusual presentation of leukemia as the only abnormality of your CBC (complete blood count). The most likely cause of platelets less than ten is either pseudothrombocytopenia (an abnormality caused by the platelets clumping when collected in the collection tube) or, most likely, ITP (immune thrombocytopenic purpura), an autoimmune disease characterized by the body inappropriately recognizing platelets as foreign and destroying them.
Posted by windshieldman
Member since Nov 2012
12818 posts
Posted on 10/13/20 at 8:00 pm to
quote:

think in this case you want negative results Sorry couldnt resist. Good luck OP.


Well, you make a good point
Posted by wfallstiger
Wichita Falls, Texas
Member since Jun 2006
11316 posts
Posted on 10/13/20 at 8:20 pm to
Young brother, long time ago -60s-. Not much they could do back then.
Posted by tigeraddict
Baton Rouge
Member since Mar 2007
11774 posts
Posted on 10/13/20 at 8:29 pm to
My uncle had leukemia in the 90s. Had chemo then a bone marrrow transplant (my aunt was a perfect match)

I remember him going to MD Anderson. And was in isolation room for a month. He got shingles and was miserable. After kittens my moms other sister was also diagnosed. She went through the same process. But the body rejected the marrow transplant and he organs shut down.
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