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Hornet Swarm
Member since Nov 2017
14 posts

Anyone on here ever been diagnosed with leukemia?
What was it like? I haven't been diagnosed yet, still have some tests to go through. Possible though.


LegendInMyMind
Member since Apr 2019
11912 posts
 Online 

re: Anyone on here ever been diagnosed with leukemia?
I had a cousin who had it as a kid. I can't remember which form, though. He spent alot of time at St. Jude. He's in his early 50s now.


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310
LSUJML
LSU Fan
BR
Member since May 2008
26799 posts

re: Anyone on here ever been diagnosed with leukemia?
I have no experience or advice
Just want to wish you well & will pray for your health


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530
windshieldman
USA Fan
Member since Nov 2012
11564 posts

re: Anyone on here ever been diagnosed with leukemia?
Hopefully it comes out you don’t have it, obviously. Am I wrong in thinking this is much better treated nowadays? Seems I’ve heard or maybe it’s childhood leukemia that survival rate has gone up drastically

ETA: From reading below replies sounds like there are many different forms of it
This post was edited on 10/13 at 7:41 pm


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Yellerhammer5
Alabama Fan
Member since Oct 2012
8602 posts
 Online 

re: Anyone on here ever been diagnosed with leukemia?
There’s many different types, so be careful about what exactly your particular diagnosis is and where you search for information. Good luck, and of course hopefully your tests come back negative.


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150
RogerTheShrubber
LSU Fan
Juneau, AK
Member since Jan 2009
186421 posts

re: Anyone on here ever been diagnosed with leukemia?
Ive got Chronic Lymphocytic Leukemia. Going strong on 6 years since diagnosis.

Have to have regular bloodwork.


RollTide1987
Alabama Fan
Washington, D.C.
Member since Nov 2009
50515 posts

re: Anyone on here ever been diagnosed with leukemia?
My dad was diagnosed with AML in 2017. It was a very scary time. He had a bone marrow transplant and everything. In three days we will find out if he's officially cancer free or not. If you are diagnosed just maintain a positive attitude. That was half the battle for my dad.
This post was edited on 10/13 at 7:43 pm


RibsandWhiskey
LSU Fan
Metry
Member since Aug 2011
40 posts

re: Anyone on here ever been diagnosed with leukemia?
A close friend of mine has a little 6 year old boy that was diagnosed last year. The fear of him getting sick with this underlying condition is scary. This little guy is a champ in my book.

Kick it’s ass.


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230
Iron Lion
Alabama Fan
North of the river
Member since Nov 2014
8001 posts

re: Anyone on here ever been diagnosed with leukemia?
My mom had acute myeloid leukemia. Pray that isn't your diagnosis.


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windshieldman
USA Fan
Member since Nov 2012
11564 posts

re: Anyone on here ever been diagnosed with leukemia?
quote:

three days we will find out if he's officially cancer free or not.


Hate to hear that, hopefully positive results in 3 days. He a history buff also?


LSUTigerDoc
LSU Fan
Baton Rouge
Member since Oct 2008
568 posts

re: Anyone on here ever been diagnosed with leukemia?
The fact that you’re likely posting this from home and not from an inpatient facility implies to me that blood analysis has revealed an elevated white blood cell count but without evidence of blasts, the prototypical cell of the acute leukemias. Therefore, if you do indeed have leukemia, you more likely have a chronic leukemia.

There are two main types of chronic leukemia: chronic myeloid leukemia (cml) and chronic lymphocytic leukemia (cll). Chronic myeloid leukemia is a very well understood disease whose therapy consists of oral chemotherapy given indefinitely as it is a very treatable disease but not considered to be curable. Chronic lymphocytic leukemia is a disease that is more common than cml, and it can often be monitored until there is an indication for therapy. That can actually be years after diagnosis.

The more likely explanation for your elevated white blood cell count is temporary inflammatory response that will self resolve.
This post was edited on 10/13 at 7:52 pm


RollTide1987
Alabama Fan
Washington, D.C.
Member since Nov 2009
50515 posts

re: Anyone on here ever been diagnosed with leukemia?
quote:

He a history buff also?


He finds history interesting but I kind of developed a love for it that is quite unlike the rest of my family. But I'm pretty sure the results are good as he had the biopsy almost three weeks ago. We would have heard something by now if there was anything abnormal I am sure. But...have to wait until Friday to get the official word. I wish I could be home for it because it's such a huge deal.


FLObserver
LSU Fan
Jacksonville
Member since Nov 2005
8551 posts

re: Anyone on here ever been diagnosed with leukemia?
quote:

hopefully positive results in 3 days.


I think in this case you want negative results Sorry couldnt resist. Good luck OP.


RogerTheShrubber
LSU Fan
Juneau, AK
Member since Jan 2009
186421 posts

re: Anyone on here ever been diagnosed with leukemia?
quote:

Chronic lymphocytic leukemia is a disease that is more common than cml, and it can often be monitored until there is an indication for therapy. That can actually be years after diagnosis.



This is my situation. Outside of swollen lymph nodes and some tiredness, my life is pretty normal.


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61
Hornet Swarm
Member since Nov 2017
14 posts

re: Anyone on here ever been diagnosed with leukemia?
The problem that got me to talking to a hematologist today was low platelets, they got below 10. I developed huge bruises. White blood cell count was around normal though. He did mention evidence of blasts.


windshieldman
USA Fan
Member since Nov 2012
11564 posts

re: Anyone on here ever been diagnosed with leukemia?
quote:

But I'm pretty sure the results are good as he had the biopsy almost three weeks ago. We would have heard something by now if there was anything abnormal I am sure


Yea makes sense y’all would have heard something if anything bad, hope that’s the case and he’s all clear


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LSUTigerDoc
LSU Fan
Baton Rouge
Member since Oct 2008
568 posts

re: Anyone on here ever been diagnosed with leukemia?
quote:

The problem that got me to talking to a hematologist today was low platelets, they got below 10. I developed huge bruises. White blood cell count was around normal though. He did mention evidence of blasts.


That would be a relatively unusual presentation of leukemia as the only abnormality of your CBC (complete blood count). The most likely cause of platelets less than ten is either pseudothrombocytopenia (an abnormality caused by the platelets clumping when collected in the collection tube) or, most likely, ITP (immune thrombocytopenic purpura), an autoimmune disease characterized by the body inappropriately recognizing platelets as foreign and destroying them.


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140
windshieldman
USA Fan
Member since Nov 2012
11564 posts

re: Anyone on here ever been diagnosed with leukemia?
quote:

think in this case you want negative results Sorry couldnt resist. Good luck OP.


Well, you make a good point


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wfallstiger
LSU Fan
Wichita Falls, Texas
Member since Jun 2006
8902 posts
 Online 

re: Anyone on here ever been diagnosed with leukemia?
Young brother, long time ago -60s-. Not much they could do back then.


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tigeraddict
LSU Fan
Baton Rouge
Member since Mar 2007
8802 posts

re: Anyone on here ever been diagnosed with leukemia?
My uncle had leukemia in the 90s. Had chemo then a bone marrrow transplant (my aunt was a perfect match)

I remember him going to MD Anderson. And was in isolation room for a month. He got shingles and was miserable. After kittens my moms other sister was also diagnosed. She went through the same process. But the body rejected the marrow transplant and he organs shut down.


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