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Help with Rosacea

Posted on 3/5/24 at 12:40 pm
Posted by Jerrysworld
Lafayette
Member since Sep 2016
174 posts
Posted on 3/5/24 at 12:40 pm
i've tried three different dermatologists and they have all pretty much prescribed the same regimen. Nothing has worked. Anyone had any success with diet, or any other way besides dermatologists?
Posted by dgnx6
Baton Rouge
Member since Feb 2006
68466 posts
Posted on 3/5/24 at 1:25 pm to
Only thing that saved me was ivermectin.

No joke.


And when I couldn’t get back to my derm because of covid to reup my script, I went with apostrophe. Was delt with in minutes and had a new script on the way that day.

Just sent them pictures of my face and what I was previously on.

I deal with a bit of subderm too so every other day my morning regime is wash my entire face and head with nizoral. You can get the ketoconazol shampoo script but I like the nizoral better and I can just buy it otc.


As far as diet triggers, alcohol and spicy food.

If you are like me the breakouts are caused by the skin mites we all have.


quote:

Rosacea is a chronic dermatological disorder with a variety of clinical manifestations localized largely to the central face. The unclear etiology of rosacea fosters therapeutic difficulty; however, subtle clinical improvement with pharmacologic treatments of various drug categories suggests a multifactorial etiology of the disease. Factors that may contribute to disease pathogenesis include immune abnormality, vascular abnormality, neurogenic dysregulation, presence of cutaneous microorganisms, UV damage, and skin barrier dysfunction. The role of ivermectin in the treatment of rosacea may be as an anti-inflammatory and anti-parasitic agent targeting Demodex mites.


They eat the dead skin and the inflammation is your reaction to them. So me also battling the subderm is important. Dead flaky skin means more mites munching on you and more inflammation.


quote:

Topical ivermectin has significant clinical efficacy and decreases the density of Demodex mites found in the skin of people with rosacea, but cutaneous dysbiosis remains, according to a report presented at the recent European Academy of Dermatology and Venereology (EADV) 2023 Congress.

"This is the first hint that the host's cutaneous microbiome plays a secondary role in the immunopathogenesis of rosacea," said Bernard Homey, MD, director of the Department of Dermatology at University Hospital Düsseldorf in Germany.

"In rosacea, we are well aware of trigger factors such as stress, UV light, heat, cold, food, and alcohol," he said. "We are also well aware that there is an increase in Demodex mites in the pilosebaceous unit."


This post was edited on 3/5/24 at 1:58 pm
Posted by Jerrysworld
Lafayette
Member since Sep 2016
174 posts
Posted on 3/5/24 at 2:45 pm to
thank you so much! i wasnt aware of apostrophe. i will ask for ivermectin
Posted by dgnx6
Baton Rouge
Member since Feb 2006
68466 posts
Posted on 3/5/24 at 6:41 pm to
I was hoping you hadn’t tried that route.


They will prob put you on minocylcine and the ivermectin cream you put on every night.

They will also suggest various cleansers and spf lotion.


They go pretty in depth and can just shoot messages back and forth if you have any questions. And every three months you just send them a pic update and the doctor will either tell you to keep at what you are doing or adjust it.

After moving I’m glad I was using them. Trying to find a new dermatologist, the waits for an appointment were months out.


And apostrophe was acquired by the fir hims brand.


quote:

“Today begins a new chapter of clearer, healthier skin for consumers,” said Andrew Dudum, Chief Executive Officer and co-founder of Hims & Hers. “The future of dermatology is in providing highly personalized products that fit consumers’ needs. With this acquisition, Hims & Hers gains a trusted partner with expertise in charting this new future, as well as a leadership team that will help take our dermatology business to the next level. We are thrilled to be joining forces with the Apostrophe team and working together to help more people access high quality, personalized products to improve their skin through our platform.”



This post was edited on 3/5/24 at 6:47 pm
Posted by tigergal918
Member since Feb 2022
115 posts
Posted on 3/6/24 at 2:16 pm to
Ivermectin helped me as well. I also use azelaic acid by the Ordinary brand that I think helps as well. And of course, sunscreen daily.
Posted by Rust Cohle
Baton rouge
Member since Mar 2014
1940 posts
Posted on 3/8/24 at 9:39 am to
sunscreen seems to be one of my triggers. I just wear a huge hat, but when I do wear SC I wash my face before and asap after.

I imagine you’re talking about the kind that has pimples. Salicylic acid. It’s in my face wash twice a day, and the old school OXY pads are salicylic acid twice a day. Might need to wash your face three times a day. If it’s in your hair, need to be watching that twice a day too. Unfortunately for me diet is a big one. I’ve used Metrogel and ivermectin, and I have mixed results. The best thing I’ve done is Vbeam laser, but of course it’s like 500 bucks, but I’ve been doing it once a year and seems to really keep things at bay.

I have had redness,l rosacea, but it’s mostly like acne. These bumps that never form heads and pop. I member being a teenager and have a pimple come and go in three days, now they stay for months.

As unbelievable as it appears, it looks like these red and blue LED light therapy’s are beneficial. You can get a machine pretty cheap, or even make your own if you’re industrious. It’s just colored LED diode’s. They do have to be very close to your face, as the wave length attenuates quickly.
This post was edited on 3/8/24 at 9:22 pm
Posted by specchaser
lafayette
Member since Feb 2008
2586 posts
Posted on 3/9/24 at 6:57 am to
Acutane
Posted by Odysseus32
Member since Dec 2009
7301 posts
Posted on 3/9/24 at 8:39 am to
(no message)
This post was edited on 3/12/24 at 3:51 pm
Posted by LRB1967
Tennessee
Member since Dec 2020
15486 posts
Posted on 3/10/24 at 10:53 pm to
Probiotics have worked well for me
Posted by TejasHorn
High Plains Driftin'
Member since Mar 2007
10909 posts
Posted on 3/11/24 at 8:50 am to
I don’t have it anymore, but I used T Gel (coal tar) shampoo and it worked very well. Rub it on directly, no need to lather it up first, and let it sit 5 minutes or so before rinsing off. It gradually got rid of it, treating daily for a while.

I’ve heard of a correlation with drinking alcohol too, which dries out the skin and makes you more susceptible to it.
This post was edited on 3/11/24 at 8:52 am
Posted by Soul Gleaux
Baton Rouge
Member since Sep 2012
4026 posts
Posted on 3/11/24 at 9:09 am to
I had it for close to 10yrs, and was taking low dose doxycycline to suppress it (not treat it, as it would come back in a few days if I quit taking it). I hate having to take meds, so they tried various creams but none did as well as the doxy. So I sucked it up and took it every day. Along comes covid, and I get prescribed ivermectin. Face has been crystal clear ever since.
Posted by Soul Gleaux
Baton Rouge
Member since Sep 2012
4026 posts
Posted on 3/11/24 at 9:13 am to
quote:

Topical ivermectin has significant clinical efficacy and decreases the density of Demodex mites found in the skin of people with rosacea


This was one of the creams they tried on me, set my face on fire. It would give me burning whelps near my eyes.
Posted by tiger91
In my own little world
Member since Nov 2005
36703 posts
Posted on 3/12/24 at 10:58 am to
You used the TGel on your face? Just want to make sure I understand. Thanks.
Posted by TejasHorn
High Plains Driftin'
Member since Mar 2007
10909 posts
Posted on 3/12/24 at 3:07 pm to
quote:

You used the TGel on your face


Yes. Also Selsun Blue but it didn’t work as well.

The TGel will make your skin shiny and tight for a bit but it definitely cleared it up. Results after a few treatments.
Posted by dgnx6
Baton Rouge
Member since Feb 2006
68466 posts
Posted on 3/12/24 at 4:48 pm to
quote:

Ivermectin helped me as well. I also use azelaic acid by the Ordinary brand that I think helps as well. And of course, sunscreen daily.


yeah its an azaelic acid/ivermectin topical
Posted by dgnx6
Baton Rouge
Member since Feb 2006
68466 posts
Posted on 3/12/24 at 4:53 pm to
quote:

This was one of the creams they tried on me, set my face on fire. It would give me burning whelps near my eyes.


That sucks, i do get a burning sensation but it goes away after a minute.

I do it every night, but if it gives you issues maybe an every other night thing.




Posted by dgnx6
Baton Rouge
Member since Feb 2006
68466 posts
Posted on 3/12/24 at 4:56 pm to
quote:

have had redness,l rosacea, but it’s mostly like acne. These bumps that never form heads and pop. I member being a teenager and have a pimple come and go in three days, now they stay for months.


i thouhgt i had developed adult acne, small ittle red bumps popping up around my facial hair line.

I didnt do much about it and it spread all up my sideburns and around my receding hairline on my forehead.

Thats when i decided to finally go get checked, i was like these arent normal pimples, something is up.

The dermatologist shaved a piece of dead skin and looked at it under the microscope. She suggested it was rosacea and that she could see the extra mites on the dead skin. pretty much have had a successful battle with it since then.



This post was edited on 3/12/24 at 4:59 pm
Posted by dgnx6
Baton Rouge
Member since Feb 2006
68466 posts
Posted on 3/12/24 at 5:02 pm to
quote:

had it for close to 10yrs, and was taking low dose doxycycline


The very first time i was put on doxy but I couldnt keep it down, made me vomit.
Posted by tiger91
In my own little world
Member since Nov 2005
36703 posts
Posted on 3/12/24 at 9:34 pm to
Years ago I took my son to the dermatologist for moles .. doc walked in, looked at me and said “mom, you have rosacea”. But I’ve never been officially diagnosed. Alcohol and sun get me red.

Thanks for the TGel info.
This post was edited on 3/12/24 at 9:34 pm
Posted by uscpuke
Member since Jan 2004
4999 posts
Posted on 3/12/24 at 9:44 pm to
Rub some dirt on it.
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