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re: Alzheimer is a cruel disease
Posted on 6/15/21 at 11:36 pm to Northwestern tiger
Posted on 6/15/21 at 11:36 pm to Northwestern tiger
(no message)
This post was edited on 6/23/21 at 10:00 am
0
Posted on 6/15/21 at 11:58 pm to Northwestern tiger
My mom had a stroke at 71 (my age now, yikes) and went down hill (bedridden) for about 7-8 years and never really had Alz. but suffered from dementia until her heart gave out suddenly at 80. Tough toward the end.
Now my sister-in-law is on a long, slow decline with Alz. at 75 — it’s been at least 10 years. Getting really bad with tantrums and is often violent.
My real concern is for my brother who is the lone caregiver and I fear for his health. We try to help when we can but it’s 24/7 for him. It breaks my heart.
Now my sister-in-law is on a long, slow decline with Alz. at 75 — it’s been at least 10 years. Getting really bad with tantrums and is often violent.
My real concern is for my brother who is the lone caregiver and I fear for his health. We try to help when we can but it’s 24/7 for him. It breaks my heart.
Posted on 6/16/21 at 12:22 am to Northwestern tiger
One of the absolute worst things in this world… makes it hard to believe in any kind of benevolent god
It’s so frustrating that research moves so slowly - I know the blood brain barrier is a big hurdle but still
My heart hurts for every single one of y’all.
It’s so frustrating that research moves so slowly - I know the blood brain barrier is a big hurdle but still
My heart hurts for every single one of y’all.
This post was edited on 6/16/21 at 12:27 am
Posted on 6/16/21 at 12:28 am to Northwestern tiger
My great grandmother on my dad's side had Alzheimer's when I was younger. I don't remember how long she had it, but she professed to the end of it and that was awful. I'll never forget it.
My grandmother on my mom's side had dementia for the last 10-15 years and just died last week. It was a true mercy for her to finally pass.
My grandmother on my mom's side had dementia for the last 10-15 years and just died last week. It was a true mercy for her to finally pass.
Posted on 6/16/21 at 1:06 am to Northwestern tiger
Prayers to you and yours for your loss. Living it now, also. How many times have I asked God to give my Mom more time in a normal life, even if it meant he could take mine...what son wouldn't give up his tomorrows for his Mom to have more time. Sad for all 
Posted on 6/16/21 at 5:31 am to Lutcher Lad
Terrible oiliness , prayers sent for all
Posted on 6/16/21 at 5:32 am to Lutcher Lad
The long goodbye!
My mother died from this in 93 when she was 76 years old.
From 89 to 91, not too fast of a decline, but from 91 until her death, it was down-hill fast!
Once she forgot how to swallow and a feeding peg was installed, we knew the end was near.
Horrible, horrible disease!
My mother died from this in 93 when she was 76 years old.
From 89 to 91, not too fast of a decline, but from 91 until her death, it was down-hill fast!
Once she forgot how to swallow and a feeding peg was installed, we knew the end was near.
Horrible, horrible disease!
This post was edited on 6/16/21 at 5:44 am
Posted on 6/16/21 at 7:15 am to dolamite
My dad passed away from it in December at 84. I started seeing signs when he turned 80. The last 4 weeks were the worst. He refused to eat and would barely drink. We had talked about his wishes for years before, so I respected them - no tubes, let him go. Hardest thing I ever had to do. But he was not going to get better and living with tubes going into and out of him wasn't his idea of living.
Posted on 6/16/21 at 7:17 am to Northwestern tiger
Not full Alzheimer but my great aunt always remember my dad as a high schooler so she would always tell him he got fat once we explained who he was
This post was edited on 6/16/21 at 7:18 am
Posted on 6/16/21 at 7:20 am to Northwestern tiger
All females on my moms side had it as well. My mom has the gene and at times I wonder about her.
I have found out I do not have the gene. Dementia could still happen but Not Alzheimer’s
I have found out I do not have the gene. Dementia could still happen but Not Alzheimer’s
Posted on 6/16/21 at 7:26 am to Northwestern tiger
My grandmother had this too, she would go check the mail 10-15 times a day / night, all hours and had to cross a two lane blacktop.
My grandad put locks up on top of the doors and other places but she would get a stool and find them and get out.
She also would ask you if you knew how to dance and then break out in The Charleston before you could answer.
Apparently the southern Baptists young women were forbidden from dancing back in her day so she was getting hers in at 90+. It was kind of funny
My grandad was kind of a dick all his life and mean to her so she got his arse back at the end, I wondered how much was real and how much she was putting on to irritate him
My grandad put locks up on top of the doors and other places but she would get a stool and find them and get out.
She also would ask you if you knew how to dance and then break out in The Charleston before you could answer.
Apparently the southern Baptists young women were forbidden from dancing back in her day so she was getting hers in at 90+. It was kind of funny
My grandad was kind of a dick all his life and mean to her so she got his arse back at the end, I wondered how much was real and how much she was putting on to irritate him
Posted on 6/16/21 at 7:37 am to PillageUrVillage
I’m dealing with it now with a younger brother. I am his caretaker along with my wife. Sort of a mild case but he also is going through Chemo for lymphoma.
We lost dad at age 65. He was experiencing dementia and I believe that was the cause of the accident that killed him. I was 36 at the time; now 70.
Lost mom 4 years ago. She had dementia but did not have symptoms until about 3 year before she passed. She was 3 months shy of 95.
I love telling this story about Mom:
She was in a nursing home minutes from my house and wife and I saw her every day. I walk in one evening and she looks at me with this look like Who da hell are You!?
I say mom you don’t know who I am?
She thinks hard for about a minute and says
“Oh yeah! You’re married to Patsy!!!
My wife!
Advice to all with stricken relatives. Please visit as much as you can. I firmly believe they know who comes and goes. Hate to say it but my 3 siblings rarely came to see her once She was in the home. They would say, “It’s so hard to see her that way!”
Mom, in a moment of clarity asked me, Don’t I have 3 other kids? Where are they?”
So sad I almost cried.
After she passed they felt much guilt.
I had NO sympathy.
We lost dad at age 65. He was experiencing dementia and I believe that was the cause of the accident that killed him. I was 36 at the time; now 70.
Lost mom 4 years ago. She had dementia but did not have symptoms until about 3 year before she passed. She was 3 months shy of 95.
I love telling this story about Mom:
She was in a nursing home minutes from my house and wife and I saw her every day. I walk in one evening and she looks at me with this look like Who da hell are You!?
I say mom you don’t know who I am?
She thinks hard for about a minute and says
“Oh yeah! You’re married to Patsy!!!
My wife!
Advice to all with stricken relatives. Please visit as much as you can. I firmly believe they know who comes and goes. Hate to say it but my 3 siblings rarely came to see her once She was in the home. They would say, “It’s so hard to see her that way!”
Mom, in a moment of clarity asked me, Don’t I have 3 other kids? Where are they?”
So sad I almost cried.
After she passed they felt much guilt.
I had NO sympathy.
Posted on 6/16/21 at 8:56 am to Northwestern tiger
Dad died at 80 with it. Sad sad sad.
Posted on 6/19/21 at 4:17 pm to saintsfan1977
quote:
Can someone please explain the point of this? We put pets down in this condition but people can't have this done? It's fricking stupid because if I was in that position, I'd rather be dead, and if a loved one was in that position I'd want them dead. If that's cold hearted so be it. If my parents get in that position, Dr Kavorkian Jr is getting a phone call.
Dr. Kevorkian has been dead 10 years.
Posted on 6/19/21 at 4:40 pm to Northwestern tiger
Yeah, my Mom.
We kept a close connection even though I'm sure she wasn't sure who I was. I would get face to face with her and we would smile at each other endlessly and she'd nod her head. We would then hug and laugh. She never lost her sweetness.
One day I went by to pay the sitters. The sitter saud your Mom is all here today. She said she was talking in details about her brothers and sisters, etc.
So I approaced her bedroom with curiosity. When she saw me she said "Can you believe I'm not dead yet?" I paused a moment and said "No I can't." Then we shared a big laugh. I miss her.
To OP. Try playing some of her favorite music for her. Music seems to be a key to opening up their memories. In my Mom's case it was Big Bands.
We kept a close connection even though I'm sure she wasn't sure who I was. I would get face to face with her and we would smile at each other endlessly and she'd nod her head. We would then hug and laugh. She never lost her sweetness.
One day I went by to pay the sitters. The sitter saud your Mom is all here today. She said she was talking in details about her brothers and sisters, etc.
So I approaced her bedroom with curiosity. When she saw me she said "Can you believe I'm not dead yet?" I paused a moment and said "No I can't." Then we shared a big laugh. I miss her.
To OP. Try playing some of her favorite music for her. Music seems to be a key to opening up their memories. In my Mom's case it was Big Bands.
This post was edited on 6/19/21 at 4:42 pm
Posted on 6/19/21 at 4:45 pm to Northwestern tiger
I’m so sorry that you’re having to go through this, this terrible disease that is taking your Mom from you. Stay strong brother.
Posted on 6/19/21 at 4:48 pm to Northwestern tiger
Dealing with it with my dad now. We’re at Huntsville Hospital now. He has not recognized me for about 8/9 mos. He’s gone from being able to take care of himself to almost completely full time care in a month. So sad!!
Posted on 6/19/21 at 5:53 pm to tiger91
quote:
I have found out I do not have the gene. Dementia could still happen but Not Alzheimer’s
Just out of curiosity, how did you find this out?
I'm 27 and dad died of Alzheimers at 93. He had it for 7 to 8ish years. As far as I know, he was the only one in his family to get it.
Posted on 6/19/21 at 6:34 pm to Bottom9
fathers side:
my grandmother (his mother)
fathers sister
fathers older brother
fathers younger brother
my dad is 74 and seemingly unaffected. My grandmother was diagnosed with Alzheimer’s and lived 12 more years as basically an infant.
I have an old yeller plan in place.
I will not allow that to happen to me
my grandmother (his mother)
fathers sister
fathers older brother
fathers younger brother
my dad is 74 and seemingly unaffected. My grandmother was diagnosed with Alzheimer’s and lived 12 more years as basically an infant.
I have an old yeller plan in place.
I will not allow that to happen to me
Posted on 6/19/21 at 6:45 pm to Northwestern tiger
My mother had a glio blastoma(sp??), brain cancer. She lasted 6 months. At the end, she did not know anyone. If you smiled at her, she would smile back. It was without recognition and true emotion. She did not recognize me on my birthday. She was the only one who truly cared about that kind of stuff.
It haunts me.
I cannot imagine dealing with this for years.
I pray for them all.
It haunts me.
I cannot imagine dealing with this for years.
I pray for them all.
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