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Psoriatic arthritis, causes and treatment.

Posted on 5/1/17 at 4:09 pm
Posted by bencoleman
RIP 7/19
Member since Feb 2009
37887 posts
Posted on 5/1/17 at 4:09 pm
Does anyone have this disease or have a family member that has It? My SO has it and her mom has it. I watch these two ladies suffer, it's extremely frustrating not to mention her mom's hands are misshapen. It's a horrible disease.
Posted by buffbraz
Member since Nov 2005
5689 posts
Posted on 5/1/17 at 4:12 pm to
T-cell mediated autoimmune disease. Go see a rheumatologist, and get consulted on humira, stelara or one of the other biologics. Will help tremendously
Posted by RaginCajunz
Member since Mar 2009
5789 posts
Posted on 5/1/17 at 4:13 pm to
figure out a way to get them on Enbrel. I was diagnosed with Psoriasis in college and later developed the arthritis. I was in agony for nearly a year jumping through hoops with methotrexate etc. Enbrel was a true miracle drug with zero side effects (in me at least). My pain diminished to 10% of what it was within the first day or 2. I am nearly asymptomatic on it.

I highly recommend my Rheumatologist. Let me know if you want his info.
This post was edited on 5/1/17 at 4:15 pm
Posted by Slip Screen
Tomball, Texas
Member since Jan 2005
2120 posts
Posted on 5/1/17 at 4:24 pm to
I have it. Was very debilitating until I was actually diagnosed. To the point where I was literally rolling out of bed because I was in so much pain.

Before the diagnosis, I thought I had various orthopedic issues - and am fairly certain I had one ortho surgery that was unnecessary as they were searching for the cause of significant pain in my wrist.

After being on biologics, I am 1000 times better and arguably in the best shape of my life now that I can be as active as a want pain free. I started on Humira (which worked well, but not excellent). Doc said I should at least try Enbrel - I have not been off it since.
Posted by Melleaux Tiger
Pearland, TX
Member since Dec 2003
616 posts
Posted on 5/1/17 at 4:32 pm to
I have Ankylosing Spondylitis, same family of diseases. Basically, inflammation run amok in your body because your immune system is overreacting to something. What that something is, is what they haven't truly figured out yet. With these, it seems to be that your are predisposed (genetically) to getting them and something triggers it during your lifetime - might be an illness, an injury, or exposure to something. It's like a switch is flipped and the inflammation starts to take over. With mine, it ultimately causes fusion of your major core joints - sacroiliac, spine, neck.

I was on oral anti-inflammatories for years until they finally gave me an ulcer, then started to affect my kidney function. At that point, switched to a biologic (Simponi, same general class as Humira) and it's worked great for 5+ years or so. While Humira I think is a once a week or every two-week injection, Simponi is a once a month. You do it at home with a pen-type applicator. It's worked great so far, but who knows the long-term effects. Better than letting the disease ravage me or killing myself with anti-inflammatory meds. Such is life! We all have our obstacles and mine could be so much worse!
This post was edited on 5/2/17 at 10:43 am
Posted by el Gaucho
He/They
Member since Dec 2010
54697 posts
Posted on 5/1/17 at 4:37 pm to
The government puts fluoride in the water to cause arthritis so that people are in pain and get hooked on pills. Alex Jones has been preaching this stuff for years

I bought and installed his water filters and haven't had pain since
Posted by LSUengr
Baton Rouge
Member since Sep 2005
2376 posts
Posted on 5/1/17 at 5:08 pm to
Have had it for 11 years now. Been on and off different medications. Have done Methotrexate, Humira, Enbrel and Simponi. Simponi has done the best. Get tired of taking it from time to time though and relapse. The arthritis pain for me is generally controlled with any of those listed. The psoriasis is the part that responds differently. My toes are curled and have problems with my toenails from the arthritis.
Posted by Gris Gris
OTIS!NO RULES FOR SAUCES ON STEAK!!
Member since Feb 2008
48039 posts
Posted on 5/1/17 at 5:27 pm to
I have both and was misdiagnosed for a good while. I did my own research and diagnosed myself. The pain is indescribable. I have the arthritis on one side and I wanted to literally cut off my limbs because I couldn't imagine that would be more painful. All I could do was to take pain meds and stay in the bed. I don't think I would have stayed on this earth if I hadn't finally gotten some relief. Fortunately, I have no outward damage and very little internally.

I went to the National Psoriasis Foundatin forum and those folks gave me letters they'd had their docs write to their health insurers get on Enbrel or other biologics. I didn't want to take methotrexate. Wrote one up and gave it to my doc who agreed with the letter, but had little faith that it would work without the metho first, but it worked like a charm. Took a while, but it worked. I stay clear as far as the psoriasis and have little issues with the arthritis. I've been on Enbrel for about 11 years. I never want to feel that kind of pain again. I don't know how anyone could live in that kind of pain daily.
Posted by SlapahoeTribe
Tiger Nation
Member since Jul 2012
12139 posts
Posted on 5/1/17 at 6:40 pm to
Biologic meds worked wonders for me. I was on Enbrel for psoriasis (same family of causes as the arthritis). Took it for several months a few years ago. Haven't had a single flareup since.

Just make damned sure you're ready to max out that insurance deductible. As I recall the meds cost in the neighborhood of $4,200 each month. That is the only time in my life I've taken more out of health insurance than I've put in.
Posted by Jcorye1
Tom Brady = GoAT
Member since Dec 2007
72611 posts
Posted on 5/1/17 at 8:13 pm to
The doctors think I have it in my back. I can't touch my toes and some days its stiff as a board.
Posted by sweet niblets
Virginia
Member since Oct 2007
884 posts
Posted on 5/1/17 at 8:24 pm to
A friend of mine has psoriatic arthritis + ankylosing spondylitis, genetic marker included. I could go into how terrible things were for him pre-diagnosis (constant pain, fatigue, etc. + 9 ortho surgeries that we now realize may have been unneeded), but it sounds like everyone here gets it. He dealt with an idiot primary care doc who did nothing but throw minor pain meds at him for years, but he finally got a referral to a rheumatologist and a diagnosis in 2014.

He tried Humira with mixed results. It succeeded in lowering his inflammation markers within normal range, but the side effects were terrible. He would be sick for 2-3 days after every injection and developed IBD-like GI issues that he'd never had before. So he quit after a year.

Since then he got a new GP who wanted to try diet and exercise in lieu of (or at least in conjunction with) biologics. He started on the auto-immune protocol (AIP) diet in January, and it has been a life-changer. He feels 100x better than he ever did with or without the Humira, and his inflammation markers are in a workable range. And all with zero side effects. The diet is INTENSE (stricter than Paleo/Whole 30) but so worth it.

I never bought into alternative medicine until I saw what a difference changing his diet made. So with diet + the right meds, I'd imagine ever more is possible. He's just not ready to go the biologic route again after the nightmare that was Humira.

TL;DR version: Autoimmune issues suck. Meds can help, but don't rule out diet as well.
This post was edited on 9/16/23 at 5:25 pm
Posted by AUsteriskPride
Albuquerque, NM
Member since Feb 2011
18385 posts
Posted on 5/1/17 at 8:53 pm to
My dad does.. Humira has worked well for him. Regardless, an anti-inflammatory diet works wonders for autoimmune.
Posted by Whatafrekinchessiebr
somewhere down river
Member since Nov 2013
1598 posts
Posted on 5/2/17 at 12:48 pm to
quote:

Enbrel was a true miracle drug


If they have private insurance (paid by them/employer and they are not on medicare/medicaid) they are likely eligible for the Enbrel support program.

1 shot of Enbrel can run upwards of $1500.00 (taken once a week). Through the Enbrel support program I pay a $10.00 co-pay and Amgen (the manufacturer of Enbrel) covers any additional charges that I would normally be responsible for through my insurance. This includes any deductibles. For example I am on a HDHP and this program pays my entire deductible on the 1st refill of the year.

They also provide free sharps containers, alcohol swabs, and access to nurses 24/7 if you have any questions or concerns. It truly is an amazing drug.
Posted by ThuperThumpin
Member since Dec 2013
7669 posts
Posted on 5/2/17 at 2:34 pm to
My mother has rheumatoid arthritis. Its taken its toll on her her hands and feet. I forget which drug she is taking now but all the medications mentioned in this thread sound familiar. I'm 38 and about 3 months ago I started having redness and pain on my elbow, hands and shoulder. My mother said this is how her symptoms started at the same age. Then my knees swelled up and remained swollen for about 6 weeks. A steroid shot and prednisone has alleviated a lot of the symptoms but I still feel tired all the time. Do some of you all just feel the fatigue without the pain?
Posted by Tiger Jefe
Louisiana
Member since Oct 2016
45 posts
Posted on 5/3/17 at 7:01 am to
Check out OWCP, they're a research company making THC infused psoriatic cream. If any of you guys trade stocks, this company is gonna pop soon. Under $1 per share is a steal.

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