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re: My dad might have ALS

Posted on 11/24/14 at 5:24 pm to
Posted by diplip
the Mars Hotel
Member since Jan 2011
897 posts
Posted on 11/24/14 at 5:24 pm to
Sorry to hear that man. Sounds more like MS than ALS...
Posted by DallasTiger11
Los Angeles
Member since Mar 2004
11878 posts
Posted on 11/24/14 at 5:29 pm to
I legitimately teared up reading your post. Stay strong bud.

I'm not a doctor so take what I say with a grain of salt, but it doesn't sound like classic ALS to me. Like you said, the muscle weakness could be from sitting around not using his muscles at all.
Posted by Cracker
in a box
Member since Nov 2009
17918 posts
Posted on 11/24/14 at 5:30 pm to
Sorry to hear that, Lost my dad to ALS and it is very misdiagnosed. Talk to the Neuro and see what they say, there is no objective test for ALS I hope its something else like residule effects from a stroke.
Posted by chinhoyang
Member since Jun 2011
23818 posts
Posted on 11/24/14 at 5:32 pm to
I hope for the best and will keep you and your family in my prayers. I'm sorry.
Posted by glassman
Next to the beer taps at Finn's
Member since Oct 2008
116255 posts
Posted on 11/24/14 at 5:34 pm to
I hope not. I had a scare last August and September. Had every nerve test and blood test possible. Numbness started in my left foot and progressed really fast up my left leg to my right foot up the right leg. Started in my hands as well.

They couldn't find anything. Only explanation was stress.

I was freaked out for about a month. I sincerely hope your dad doesn't have it, it is the worst possible diagnosis.
Posted by SM6
Georgia
Member since Jul 2008
8804 posts
Posted on 11/24/14 at 6:18 pm to
Stay strong man. Most importantly, if in fact ALS, help your dad maintain his dignity. ALS is a terrible disease, it will take its toll on everything.
Posted by piratedude
baton rouge
Member since Oct 2009
2522 posts
Posted on 11/24/14 at 6:23 pm to
quote:

Any doctors who can tell me if those symptoms sound like ALS.


i had a buddy who had ALS. when they were examining him the dr. asked him to place his foot on the ground and then lift the front of his foot off the ground while leaving his heel down (flexion). he could not do it and the doc said ALS.
Posted by lsucoonass
shreveport and east texas
Member since Nov 2003
68539 posts
Posted on 11/24/14 at 6:26 pm to
Definitely sounds like a neurological issue. I'm so sorry
Posted by The Mick
Member since Oct 2010
43379 posts
Posted on 11/24/14 at 6:28 pm to
One of my best friends has ALS. it's terrible to say the least.

PS- very sorry about your dad, God bless your family
This post was edited on 11/24/14 at 6:29 pm
Posted by Yewkindewit
Near Birmingham, Alabama
Member since Apr 2012
20191 posts
Posted on 11/24/14 at 6:30 pm to
Prayers indeed man!
Posted by Spankum
Miss-sippi
Member since Jan 2007
56259 posts
Posted on 11/24/14 at 6:33 pm to
man, you and your dad are in my prayers tonight...

I have been in that situation before and waiting for an answer in that is just excruciating...honestly, you just have to force yourself to be kind of numb to it all just so that you can be there to support others in your family if you get bad news....
Posted by eScott
Member since Oct 2008
11376 posts
Posted on 11/24/14 at 6:33 pm to
Prayers sent.
Posted by KG6
Member since Aug 2009
10920 posts
Posted on 11/24/14 at 6:45 pm to
My wife's grandmother had ALS. Recently she had an aunt who was diagnosed as well. Doctors don't believe that it is the genetic form or they would have seen many more cases in their family, but I'm still concerned. I worry about it every time it comes up. I hope your father doesn't have it. It's a scary thought to see a loved one go through it.
Posted by CHEDBALLZ
South Central LA
Member since Dec 2009
22015 posts
Posted on 11/24/14 at 6:57 pm to
Drs. thought my MIL had ALS. Turns out it was conplications from a medication that she was taking. Shes doing great now. Best of luck to your dad and your family.
Posted by CaliforniaTiger
The Land of Fruits and Nuts
Member since Dec 2007
5309 posts
Posted on 11/24/14 at 7:10 pm to
God bless him and your family. He's so young
Posted by dodgeviper
Bunkie
Member since Nov 2014
629 posts
Posted on 11/24/14 at 7:28 pm to
I don't know much about ALS, but if he does have it, just know that it's not absolutely "the end of everything." Diseases act differently in different people.

My dad suffered a massive aortic dissection a few years ago when he was just 49 and I was just 24. Before I even drove to the hospital after hearing the initial diagnosis, I foolishly googled "aortic dissection survival rate" and saw that it was about 10%. I spent the rest of the day, week, month, year preparing for his death, and now, more than four years later and after a variety of resulting complications (liver failure, kidney failure), he's still operating just as we was before, and probably the best he's been since the multiple surgeries he had at the time (i.e. he works 40+ hours a week, pays for my sister's college, exercises, etc.).

He's not exactly like he was before, maybe 80%, but I'm thrilled I still have him. If your dad is diagnosed with ALS, and hopefully he's not, just be sure to treasure every moment with him. Don't mope, because it won't help either of you. Be strong for him and treasure every moment. Stay in the moment--It's the best for both you and him.

Posted by Interweb Cowboy
NW Bama
Member since Dec 2010
3138 posts
Posted on 11/24/14 at 9:04 pm to
Prayers for you and your family.
Posted by okietiger
Chelsea F.C. Fan
Member since Oct 2005
41010 posts
Posted on 11/24/14 at 9:12 pm to
Lost my grandfather to the disease.

Saying a prayer for him, you, and your family as I type this my friend. Hope it turns out to be nothing.
Posted by Weaver
Madisonville, LA
Member since Nov 2005
27750 posts
Posted on 11/24/14 at 10:25 pm to
Prayers for your dad
Posted by IonaTiger
The Commonwealth Of Virginia
Member since Mar 2006
33053 posts
Posted on 11/24/14 at 10:26 pm to
Prayers sent. God Bless your Dad and your family.
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