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re: Scott Pruitt Unveils Controversial Limits to Scientific Research

Posted on 4/25/18 at 9:46 am to
Posted by BamaAtl
South of North
Member since Dec 2009
22253 posts
Posted on 4/25/18 at 9:46 am to
quote:

"The proposed new policy — the details of which are still being worked out "


Hopefully the uproar over this absurd rule will convince them to change it into something workable - but we both know that's not likely.
Posted by starsandstripes
Georgia
Member since Nov 2017
11897 posts
Posted on 4/25/18 at 9:57 am to
quote:

Not and fulfill the requirements that the data be preserved in such a way as to allow for replication


Sheer bullshite. I've done this research. I've written the compliance instructions, I've passed audits. I've dealt with raw source data, I've dealt with de-identified data. I've had data behind the firewall then safe harbored for analysis. I'm published. My name is searchable in PubMed. Every bit of analysis I did after the safe harbor could be replicated and would provide the same exact results as if you used non de-id data.

You are a liar.

The Open Science Foundation and a frick ton of others out there have been dealing with this for years now.

You are a liar.
Posted by starsandstripes
Georgia
Member since Nov 2017
11897 posts
Posted on 4/25/18 at 9:58 am to
quote:

Hopefully the uproar over this absurd rule will convince them to change it into something workable - but we both know that's not likely.


You can't have a rule without details being flushed out.

You are a liar.
Posted by Turbeauxdog
Member since Aug 2004
24073 posts
Posted on 4/25/18 at 10:01 am to
[quote]Hopefully the ridiculous progressive histrionics/quote]

Fify
Posted by thatthang
Member since Jan 2012
7844 posts
Posted on 4/25/18 at 10:05 am to
quote:

There is a lot of research that goes on using proprietary data. Data that some company or organization might allow to be used with NDAs in place in order to protect their intellectual property or trade secrets.

I'm conflicted on this one.


Exactly- it's almost as if people don't know what they'r talking about in their rush to agree or disagree with something. The fact that you have almost equal downvotes to upvotes on this statement tell us a lot about this board's tolerance for free thinkers.
Posted by DownSouthJukin
1x tRant Poster of the Millennium
Member since Jan 2014
31143 posts
Posted on 4/25/18 at 10:05 am to
Big Brother: "Why? Because I said so. Trust me. I know more than you. Ignorance is strength."
Posted by wutangfinancial
Treasure Valley
Member since Sep 2015
11826 posts
Posted on 4/25/18 at 10:21 am to
I think that non elected officials shouldn't be allowed to shake down private companies without disclosing the underlying data. I'm sure you can find exceptions where it would be inappropriate but that's what debates are for. I don't understand why that's controversial.
Posted by roadGator
Member since Feb 2009
154361 posts
Posted on 4/25/18 at 10:26 am to
quote:

progressive histrionics 


Yep. HIPAA would still apply.

Sky screaming resistance fighters just stamping their feet.
Posted by Turbeauxdog
Member since Aug 2004
24073 posts
Posted on 4/25/18 at 10:38 am to
quote:

Exactly- it's almost as if people don't know what they'r talking about in their rush to agree or disagree with something. The fact that you have almost equal downvotes to upvotes on this statement tell us a lot about this board's tolerance for free thinkers.


There is still no conflict. Nothing stops that research from being used for private applications and initiatives. This policy just requires if the research is going to be used for public applications and initiatives, public disclosure is required.

Posted by thatthang
Member since Jan 2012
7844 posts
Posted on 4/25/18 at 10:38 am to
quote:

I think that non elected officials shouldn't be allowed to shake down private companies without disclosing the underlying data. I'm sure you can find exceptions where it would be inappropriate but that's what debates are for. I don't understand why that's controversial.


This is all reasonable, both the part where data ideally would be transparent and that exceptions probably exist. What I was referencing was the fact that some people seem to understand this issue only superficially, failing to see the complexity and potential pitfalls of this proposed regulation, at least within the confines of the existing research industry.
Posted by Turbeauxdog
Member since Aug 2004
24073 posts
Posted on 4/25/18 at 10:42 am to
quote:

at least within the confines of the existing research industry


Nobody cares. The only implication is that the EPA can't use it, not that it can't be used.
Posted by BamaAtl
South of North
Member since Dec 2009
22253 posts
Posted on 4/25/18 at 1:17 pm to
quote:

You can't have a rule without details being flushed out.


The details - the rule - are already posted. That's not to say it's final, because there's still a comment period that could in theory fix it.
Posted by ShortyRob
Member since Oct 2008
82116 posts
Posted on 4/25/18 at 3:40 pm to
quote:


Example: My employer currently pays a butt-load of money for me to have access to global macroeconomic data and forecasts created by Oxford Economics.


Yeah, but the PUBLIC didn't buy that data. When the USG buys it........the Public DID. You and your company can access the data cause YOU bought it. Welp, guess who = you and your company in the USG sitaution? Yep. Us.
Posted by Centinel
Idaho
Member since Sep 2016
44121 posts
Posted on 4/25/18 at 3:49 pm to
quote:

starsandstripes


DAAAAAAAAAAAAAAAAAAAAAAAAMN

Our little board authoritarian just got bitch slapped again
Posted by Morty
Member since Feb 2018
2252 posts
Posted on 4/26/18 at 10:46 am to
Not related to anything, but Pruitt is the oldest looking 49 year old ever. I though he was at least 60.
Posted by Cruiserhog
Little Rock
Member since Apr 2008
10460 posts
Posted on 4/26/18 at 10:59 am to
under Pruitt's EPA new rules you would still be breathing leaded gas/paint fumes. you would have no warnings of second hand smoke

because those studies used had confidential patient information that Pruitt's epa will invalidate.
Posted by Zach
Gizmonic Institute
Member since May 2005
116638 posts
Posted on 4/26/18 at 10:59 am to
The spin on this has been amazing. I've seen articles that say people will die because Pruitt will shut down medical research.
Posted by 10MTNTiger
Banks of the Guadalupe
Member since Sep 2012
4139 posts
Posted on 4/26/18 at 11:34 am to
quote:

under Pruitt's EPA new rules you would still be breathing leaded gas/paint fumes. you would have no warnings of second hand smoke



What a drama queen.

I will give you one very concrete example that shows this rule is a good thing. Google the word "Dicamba" and read about the controversy surrounding the EPA approving new formulations of this herbicide for use over the past two years.

In the most basic terms, the registration process under FIFRA requires the EPA to review data chemical corporations submit to approve a new pesticide, in this case new formulations of the herbicide dicamba. The company must include scientific studies and data that supports their product is safe and does what they says it does...

Problem is the companies want to protect proprietary secrets and data and can cherry pick what studies go to the EPA and can even restrict what testing independent, outside groups are able to do on the products, such as university researchers being denied the ability to test Dicamba for volatility. The EPA has a few experts, but not enough to fact check and replicate every single study associated with a product submission. So we have a situation where shite goes wrong and the impartial scientific review of the agency charged with regulating this field is called into question, with good reason.

That is EXACTLY what is happening with the new Dicamba blends, where the companies are saying "this stuff is totally safe - we showed you our data and you don't need to see any other data" and the EPA takes their word for it. Many folks including University Weed Scientists at Arkansas, Missouri, Iowa, North Dakota, and elsewhere are saying that might not be true and we need to shine a light on this and let scientists actually examine these chemicals before just approving them for use.

The new rule proposes that the EPA can only consider studies that are opened to public review - that is how science is supposed to operate. And of course there will be protections for proprietary data, that is a normal standard as others have pointed out.

So save me the histrionics about Pruitt not caring about the environment, this regulation is PRECISELY aimed at protecting the environment in this example, and is actually 100% against the interests of the large chemical corporations such as Monsanto.
Posted by wutangfinancial
Treasure Valley
Member since Sep 2015
11826 posts
Posted on 4/26/18 at 11:41 am to
Hmm, weird. I guess under Regina McCarthy people were drinking led in their water see how this game works?
Posted by 10MTNTiger
Banks of the Guadalupe
Member since Sep 2012
4139 posts
Posted on 4/26/18 at 11:47 am to
quote:

wait "raw data" includes subject identifications, too?


quote:

It's not always possible to fully de-identify (or even partially de-identify) a dataset in such a way that study participants could not be identified. Think small affected populations, or studies where specific geographic locations are important for analysis. So, again, yes.


Yeah you are 100% wrong, did you even read the proposed rule?

Page 9-10 goes into depth on exactly this stating in part,

EPA believes that concerns about access to confidential or private information can, in many cases, be addressed through the application of solutions commonly in use across some parts of the federal government. Nothing in the proposed rule compels the disclosure of any confidential or private information in a manner that violates applicable legal and ethical protections. Other federal agencies have developed tools and methods to de-identify private information for a variety of disciplines. The National Academies have noted that simple data masking, coding, and de-identification techniques have been developed over the last half century and that "Nothing in the past suggests that increasing access to research data without damage to privacy and confidentiality rights is beyond scientific reach." More recently, both the National Academies and the Bipartisan Commission on Evidence Based Policy19 have discussed the challenges and opportunities for facilitating to secure access to confidential data for nongovernment analysts...

Here is the link if you were to actually want to read it instead of parroting news articles written by similarly ill-informed hacks (some would call liars and propagators of fake news). LINK
This post was edited on 4/26/18 at 12:23 pm
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