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re: Prostate cancer, gleason score 6, psa 5…..

Posted on 12/2/21 at 7:07 pm to
Posted by Wiseguy
Member since Mar 2020
3402 posts
Posted on 12/2/21 at 7:07 pm to
quote:

My dad had HIFU. High intensity focused ultrasound. Obliterated his tumor. That said, he is a retired physician and wishes he had done radiation.


Why? If the HIFU worked…
Posted by TigerstuckinMS
Member since Nov 2005
33687 posts
Posted on 12/2/21 at 7:12 pm to
quote:

Wait, what? Why?

My dad just had the giant robot spider prostatectomy. From what we understood, radiation causes changes to the prostate that make surgery very hard to successfully complete later. It's like the texture and how it attaches to stuff in the area changes and makes it hard to peel the prostate cleanly off the surroundings successfully if the cancer returns. If surgery after radiation makes sure to take the cancer, the risk of bad damage to the rectum, nerves, etc. Is relatively high. If you try to spare the surrounding structures, you run a very real risk of leaving cancer behind.

At least that's how I understood what the urologist said.

Discuss with your doc.
This post was edited on 12/2/21 at 7:38 pm
Posted by Hangit
The Green Swamp
Member since Aug 2014
39193 posts
Posted on 12/2/21 at 7:24 pm to
Sorry to hear it, JD. I have experience with a lot of medical issues, but this is not one I know much aboot.

All I can do is offer encouragement and try to send good thoughts and vibes your way.
Posted by CajunTiger92
Member since Dec 2007
2821 posts
Posted on 12/2/21 at 7:25 pm to
There is a genome test they can run on the biopsy core samples that will give a score used in the same manner as Gleason. They examine the genetic make up of the cells to see what type of cells are there (aggressive /nonaggressive). It can give the patient another data point that can help uncover additional risk not seen with the Gleason. It’s not cheap but should be covered by insurance.
Posted by vl100butch
Ridgeland, MS
Member since Sep 2005
34670 posts
Posted on 12/2/21 at 7:42 pm to
I had mine removed in 2014, family history of prostate cancer and was advised that if I had radiation first, I wouldn't be able to have surgery...but if I had the surgery, I could have radiation if necessary...

it was a rough operation as I was under for about 8 hours due to the size of my prostate...

recovery took about a year to return to something resembling normal...
Posted by Keltic Tiger
Baton Rouge
Member since Dec 2006
19329 posts
Posted on 12/2/21 at 8:26 pm to
My urologist and radiologist both told me the same thing : if you have radiation first, surgery is not a safe second option if cancer returns. The detailed explanation above matches what I was told, too. If you have surgery first, then radiation is an option.
Posted by Cosmo
glassman's guest house
Member since Oct 2003
120379 posts
Posted on 12/2/21 at 8:33 pm to
quote:

Gleason 6


Wait

Thats not real cancer
Posted by ItzMe1972
Member since Dec 2013
9822 posts
Posted on 12/2/21 at 8:35 pm to
Dang Butch.

Where did you have surgery?
Posted by jeffsdad
Member since Mar 2007
21467 posts
Posted on 12/2/21 at 8:40 pm to
quote:

There is a genome test they can run on the biopsy core samples that will give a score used in the same manner as Gleason. They examine the genetic make up of the cells to see what type of cells are there (aggressive /nonaggressive). It can give the patient another data point that can help uncover additional risk not seen with the Gleason. It’s not cheap but should be covered by insurance.


That was done from the first biopsy from a year ago. the percentages from that those 3 suspicious places were deemed 27% likely nonagressive, 39% agressive, and 34% not likely to be cancerous. Then they did this recent biopsy which came back as said.

And yes some say Gleason of 6 is non-cancerous, but most docs consider it cancer since it can invade surrounding areas and causes cell anomalies.
Posted by vl100butch
Ridgeland, MS
Member since Sep 2005
34670 posts
Posted on 12/2/21 at 9:00 pm to
I had my surgery at River Oaks in Flowood...
Posted by bhtigerfan
Baton Rouge
Member since Sep 2008
29665 posts
Posted on 12/2/21 at 9:13 pm to
About 2 years ago, I did some blood work and got a call from a nurse a couple days later. She says, “Your PSA is 12.4.”

I’m like, “Okay. Is that not normal?” She says, “No, it’s high and you should see a doctor soon.” I tell her thanks and hang up and forget about it. I didn’t even know what a PSA was.

A couple days later, I’m at work in Houston between flights and my wife calls me. She had opened my test results and saw the PSA. (She was bringing the results to our insurance to get a $100 refund). She asked if I was concerned and I said no. She says, “Look up a PSA test on your phone and what your numbers should be and call me back.”

So I look up PSA scores. It says that a PSA over 10 means you have a 50% of prostate cancer. My heart dropped. I called my wife back and told her I was coming home. Called out sick and flew home. Next day I got an emergency appointment with a doctor and he gave me a prostate exam and found nothing. Did the blood work again and the PSA came back normal.

Don’t know how that happened, but it scared the shite out of me.
Posted by jeffsdad
Member since Mar 2007
21467 posts
Posted on 12/2/21 at 9:20 pm to
As a med tech, I hate to hear stories like that. Mis-identified specimen probably.
Posted by PBD4BAMA
Sweet Home Alabama
Member since Dec 2014
4723 posts
Posted on 12/2/21 at 9:36 pm to
quote:


Don’t know how that happened, but it scared the shite out of me.

Enlarged prostate will give a higher rating PSA and so will sex the night before a blood test. Happened to me, I had a biopsy ran and all 12 samples came back negative. Turns out I have a very enlarged prostate.
Posted by CamdenTiger
Member since Aug 2009
62483 posts
Posted on 12/2/21 at 9:45 pm to
Dad had a Gleason of 8, went to MD Anderson and they refused to treat him( years ago, protocols there cut off at 7, then, I know, was shocked), so called a friend that was a Urologist, up in Tulsa, and he agreed to see him, and they did Radiation implants and Lupron. Dad lived another 10 years and never had any prostate issues….
Posted by La Place Mike
West Florida Republic
Member since Jan 2004
28834 posts
Posted on 12/2/21 at 9:48 pm to
At 6 I would wait. It could be years before you have to make a decision. I went two years before I elected to surgery. Relax. You will beat this.
Posted by Gorilla Ball
Member since Feb 2006
11763 posts
Posted on 12/2/21 at 9:56 pm to
Even if it’s the Mayo Clinic. Hifu vs radiation or vs complete removal?
Posted by jivy26
Member since Nov 2008
2760 posts
Posted on 12/2/21 at 9:57 pm to
This post was edited on 11/7/22 at 1:33 pm
Posted by patmacff
Bay St. Louis, Ms.
Member since Sep 2011
36 posts
Posted on 12/2/21 at 9:57 pm to
What meds did you take to lower your PSA aRmTexasDillo? I have an enlarged prostate with a PSA of 9.7. I've had 2 biopsies with no cancer.
Posted by Gorilla Ball
Member since Feb 2006
11763 posts
Posted on 12/2/21 at 10:03 pm to
I’ll have three opinions when I’m done. I was trying to figure out what’s the desk with HIfU vs radiation or complete removal
Posted by Cdawg
TigerFred's Living Room
Member since Sep 2003
59595 posts
Posted on 12/2/21 at 10:23 pm to
quote:

I've had 2 biopsies

Wow. Prayers sent.
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