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re: One of our own is going through a heart transplant as I type this
Posted on 10/3/26 at 5:01 pm to NawlinsTiger9
Posted on 10/3/26 at 5:01 pm to NawlinsTiger9
Wow.
Posted on 10/3/26 at 8:05 pm to im4LSU
quote:
Figured I could share this here and give y’all a chuckle
Man, that’s awesome!
Pretty unbelievable that your surgery took 20 hours.
Posted on 10/3/26 at 8:11 pm to im4LSU
Wow, legitimately impressive you were walking with all of that. After my second valve replacement I was only walking with an IV pump and stats monitor, I was range walking though and my nurse didn't plan that she would be the one trying to keep up... 
Posted on 10/3/26 at 8:38 pm to shutterspeed
No, they would have a much bigger problem if they didn’t. I’ve got all the games going. On the TV, two on the laptop, and one on the iPad.
It gives them a good blood pressure range for me lol
It gives them a good blood pressure range for me lol
Posted on 10/3/26 at 8:40 pm to Spankum
quote:
Pretty unbelievable that your surgery took 20 hours.
Yeah, it was a two-day procedure. They did the heart first and let me recuperate a little bit, and then I went back under to do the liver the next morning.
Posted on 10/4/26 at 12:42 am to im4LSU
Glad you’re on the mend. Hoping for a speedy recovery for you baw
Posted on 10/4/26 at 1:08 am to im4LSU
How long was the work up for the transplant?
I guess hear is more critical so the work up is not a bad. I need a kidney. I've been on dialysis (not a big deal on it now, PD)for 30 months now. I just finished my trading to get a kidney. But the entire first year they wouldn't test because I only had 80% insurance. .I always wonder how other organ transplant goes.
What's crazy is I have three living donors. Still is like test, wait 2 months for next test. Had colonoscopy Friday. They pulled 26 vials of blood a while back. Non stop. But a heart? That's serious because it requires a matching donor that's brain dead or recently deceased.
I guess I'm curious how long was it from finding you needed a heart to getting a heart?
And prayers to a fast recovery.
I guess hear is more critical so the work up is not a bad. I need a kidney. I've been on dialysis (not a big deal on it now, PD)for 30 months now. I just finished my trading to get a kidney. But the entire first year they wouldn't test because I only had 80% insurance. .I always wonder how other organ transplant goes.
What's crazy is I have three living donors. Still is like test, wait 2 months for next test. Had colonoscopy Friday. They pulled 26 vials of blood a while back. Non stop. But a heart? That's serious because it requires a matching donor that's brain dead or recently deceased.
I guess I'm curious how long was it from finding you needed a heart to getting a heart?
And prayers to a fast recovery.
Posted on 10/4/26 at 1:15 am to Napoleon
I have a transplanted liver. I'm on the list for a kidney but inactive and not on dialysis with a 24 gfr. I remember the 26 vials of blood they took for the kidney workup. I thought she would never finish.
This post was edited on 10/4/26 at 1:17 am
Posted on 10/4/26 at 4:03 am to im4LSU
Glad you are alive baw. Get recovered
Posted on 10/4/26 at 5:03 am to im4LSU
That’s awesome
Posted on 10/4/26 at 7:37 am to im4LSU
quote:
im4LSU
Good to see you up and walking.
Posted on 10/4/26 at 9:34 am to VoodooGlowSkull
My gfr is like 5. I only pee like twice a week.
Posted on 10/4/26 at 1:02 pm to Napoleon
Well, I’ve known I was gonna need a heart at some point my entire life. My anatomy was just too jacked up from the get-go and had to have a rare surgery when I was 2 1/2 in 89 at UAB.
I didn’t start really going downhill until about 2018. And my a fib started kicking into pretty high gear. Since then, it was kind of a steady decline and we knew this was getting closer. I had a revision to my first surgery back in 2021 and that gave me a few more years before the transplant was needed. But last October is when we started to get the word that it was getting really close. It was a full long week in Houston with testing from seven in the morning till four in the evening with any and every kind of physician. Hepatology, nephrology, psychology, Neuro psychiatry, respiratory therapist, PT/OT, biopsies, and obviously cardiology/ heart failure.
It was absolutely brutal. Once it got to the point to where I had to be in the hospital, I came in and from then until the time I got put on the list was about two months. Then from that point it was about another two months before I got the call that there was an offer. Family all came down, surgeons went and laid eyes on the organs and accepted them last Saturday. I went under on Sunday morning.
So it was a long process for sure.
I didn’t start really going downhill until about 2018. And my a fib started kicking into pretty high gear. Since then, it was kind of a steady decline and we knew this was getting closer. I had a revision to my first surgery back in 2021 and that gave me a few more years before the transplant was needed. But last October is when we started to get the word that it was getting really close. It was a full long week in Houston with testing from seven in the morning till four in the evening with any and every kind of physician. Hepatology, nephrology, psychology, Neuro psychiatry, respiratory therapist, PT/OT, biopsies, and obviously cardiology/ heart failure.
It was absolutely brutal. Once it got to the point to where I had to be in the hospital, I came in and from then until the time I got put on the list was about two months. Then from that point it was about another two months before I got the call that there was an offer. Family all came down, surgeons went and laid eyes on the organs and accepted them last Saturday. I went under on Sunday morning.
So it was a long process for sure.
Posted on 10/4/26 at 1:04 pm to im4LSU
Hope you get back up and running soon!!
Posted on 10/4/26 at 5:32 pm to im4LSU
Wow. Hope for a speedy recovery.
So you were in the hospital for those months or they let you do home health?
So you were in the hospital for those months or they let you do home health?
Posted on 10/4/26 at 5:37 pm to im4LSU
Awesome to hear you are doing well. God bless and keep going!
Posted on 10/4/26 at 6:06 pm to Napoleon
I had to be in the hospital. I needed constant iv meds to help keep my heart going and had to have an intra-aortic balloon pump inserted to keep pressures up.
Posted on 10/4/26 at 7:06 pm to Napoleon
quote:
My gfr is like 5. I only pee like twice a week.
I was like that after my liver transplant. I was able to get off dialysis thankfully. I feel for you. Dialysis is brutal. I make plenty of urine, my kidneys just don't filter well. Potassium is my enemy even with a blocker. Hope you get a kidney soon. You definitely need it more than I do.
Posted on 10/4/26 at 7:26 pm to im4LSU
Praying for a speedy recovery.
My daughter was born with HLHS.
She had transplant at 9 weeks old. She is now 29yo. Same heart.
God has blessed her over and over. I pray that you have many happy years ahead.
My daughter was born with HLHS.
She had transplant at 9 weeks old. She is now 29yo. Same heart.
God has blessed her over and over. I pray that you have many happy years ahead.
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